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RE: Noah and Pitt's plan

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HOORAY!!! Some kind of action plan. Glad to finally hear it. Amimariapamom wrote: Rob called Pitt this morning after not hearing back from them latelast week and the symptoms increasing over the weekend. He is a badcartoon at this point.I don't want him to hurt himself. He very calmly talked to Amy and I stayed far away so as not to coaxor add anything. (Thanks Joanne :) )They recommended we call neurology and explain to

them what was goingon. I did. Nothing back from them yet.Amy has since called us back and Dr. S's recommendation is to have anEEG on Noah. He said that will definitively show HE or NO HE.They are sending us a script, we can get it done here or there...theyprefer there...and will probably do it there for continuity of care.We are getting somewhere, but who knows where. :) Ami mom to - 8 yrs - Double Lung Tx 2/26/2006, PSC - Pre-Liver Tx, Central DI, Steroid Induced Diabetes, HypoT, GERD, High BP, ADD, Anemia, Osteopenia, Gastroperesis, Varices mom to Emma - 13 yrs - Migraines, otherwise healthy stepmom to - 14 yrs - ADHD, ODD ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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Double HORRAY! Good luck, and as always if

I can help at all while you are in Pgh just give me a call.

LINDA

LINDA

(Mom of Suzanne,

17; IBD 1/04; PSC 3/04)

From: [mailto: ] On Behalf Of Ami Fox

HOORAY!!! Some kind of action plan. Glad to finally hear

it.

Ami

mariapamom <kickkat17mom (AT) comcast (DOT) net>

wrote:

Amy has since called us back and Dr. S's

recommendation is to have an

EEG on Noah. He said that will definitively show HE or NO HE.

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