RE: OT. What do all the numbers and letters mean

[Guest guest]

Ian,

This is a good question. This practice was

in place already when I joined, so I don’t know the history of it. It is

a sort of “short hand” to give pertinent information – such as

what is your relationship to PSC? You will

see some with “Mom of …” or “husband of …”

when was the person with PSC diagnosed --

1/04, PSC

Are there other relevant diagnoses or

procedures– 1/04, UC (ulcerative colitis) ---- j-pouch (procedure done as

a result of removing a colon)

Are you (or the person with PSC) on a

transplant list – and where – Listed 7/21 (this year) at Baylor Dallas

transplant center

Have you had a transplant – when –

where ---- tx 1/04 UPMC Pgh

How many transplants have you had ----

tx1 tx2

Those are the short hands I can think of

off the top of my head … keep asking! This was a good question.

LINDA

(Mom of Suzanne, 18; 1/04 UC; 3/04 PSC; j-pouch 2/07)

From:

[mailto: ] On Behalf Of Ian Cribb

Sent: Sunday, June 03, 2007 7:55

PM

To:

Subject: OT. What do

all the numbers and letters mean

I'm fairly new to the support group and wondering what do all the numbers

and letters at the end of e-mails mean

ie.

" Barb in Texas - Together in

the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21 @

Baylor Dallas "

I understand some of it:

- Son Ken (33) - her

Son Ken is 33 years old

- UC 91 - he was diagnosed with Ulcerative

Colitis in 1991

- PSC

99 - he was diagnosed with Primary Sclerosing Cholangitis in 1999

but

what does " Listed 7/21 @ Baylor Dallas " mean??

Ian Cribb

[Guest guest]

Ian,

This is a good question. This practice was

in place already when I joined, so I don’t know the history of it. It is

a sort of “short hand” to give pertinent information – such as

what is your relationship to PSC? You will

see some with “Mom of …” or “husband of …”

when was the person with PSC diagnosed --

1/04, PSC

Are there other relevant diagnoses or

procedures– 1/04, UC (ulcerative colitis) ---- j-pouch (procedure done as

a result of removing a colon)

Are you (or the person with PSC) on a

transplant list – and where – Listed 7/21 (this year) at Baylor Dallas

transplant center

Have you had a transplant – when –

where ---- tx 1/04 UPMC Pgh

How many transplants have you had ----

tx1 tx2

Those are the short hands I can think of

off the top of my head … keep asking! This was a good question.

LINDA

(Mom of Suzanne, 18; 1/04 UC; 3/04 PSC; j-pouch 2/07)

From:

[mailto: ] On Behalf Of Ian Cribb

Sent: Sunday, June 03, 2007 7:55

PM

To:

Subject: OT. What do

all the numbers and letters mean

I'm fairly new to the support group and wondering what do all the numbers

and letters at the end of e-mails mean

ie.

" Barb in Texas - Together in

the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21 @

Baylor Dallas "

I understand some of it:

- Son Ken (33) - her

Son Ken is 33 years old

- UC 91 - he was diagnosed with Ulcerative

Colitis in 1991

- PSC

99 - he was diagnosed with Primary Sclerosing Cholangitis in 1999

but

what does " Listed 7/21 @ Baylor Dallas " mean??

Ian Cribb

[Guest guest]

Ian,

This is a good question. This practice was

in place already when I joined, so I don’t know the history of it. It is

a sort of “short hand” to give pertinent information – such as

what is your relationship to PSC? You will

see some with “Mom of …” or “husband of …”

when was the person with PSC diagnosed --

1/04, PSC

Are there other relevant diagnoses or

procedures– 1/04, UC (ulcerative colitis) ---- j-pouch (procedure done as

a result of removing a colon)

Are you (or the person with PSC) on a

transplant list – and where – Listed 7/21 (this year) at Baylor Dallas

transplant center

Have you had a transplant – when –

where ---- tx 1/04 UPMC Pgh

How many transplants have you had ----

tx1 tx2

Those are the short hands I can think of

off the top of my head … keep asking! This was a good question.

LINDA

(Mom of Suzanne, 18; 1/04 UC; 3/04 PSC; j-pouch 2/07)

From:

[mailto: ] On Behalf Of Ian Cribb

Sent: Sunday, June 03, 2007 7:55

PM

To:

Subject: OT. What do

all the numbers and letters mean

I'm fairly new to the support group and wondering what do all the numbers

and letters at the end of e-mails mean

ie.

" Barb in Texas - Together in

the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21 @

Baylor Dallas "

I understand some of it:

- Son Ken (33) - her

Son Ken is 33 years old

- UC 91 - he was diagnosed with Ulcerative

Colitis in 1991

- PSC

99 - he was diagnosed with Primary Sclerosing Cholangitis in 1999

but

what does " Listed 7/21 @ Baylor Dallas " mean??

Ian Cribb

[Guest guest]

-----Original

Message-----

so that means ken has been on a waiting list with Baylor

since July of 2006. When is the transplant expected??

We expect the

transplant to take place – whenever they call us ;-)

Honestly, who knows? Ken is #1 in his blood group (AB) at Baylor, but there are several

others with higher MELD scores in the region (Texas & Oklahoma). AB is a pretty rare

blood group, so we don’t expect anything to happen too soon and we aren’t

in any hurry, I am a firm believer in keeping all original parts as long as

possible. When they do his MRI

soon, if they find anything, that’s a different story, but otherwise we

are very happy to wait. Ken is doing well right now and Baylor does evaluations every week,

so there is always a chance someone else will be listed with a higher score. Since July he has been bouncing up and

down on the list, but like I say, we aren’t in any hurry.

Besides, Ken doesn’t want to miss the catfish tourney coming up, I know..…new liver or catfish? He’d pick a winning catfish, what’s

a mom supposed to do? Me? I go down and feed the catfish off the

dock everyday!

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21/06 @ Baylor Dallas

_._,___