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RE: /Testing for Pudendal Neuropathy

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Carolyn,

I have PNE, LS, Vulvodynia and Vestibulitis. I am almost six months post

pudendal decompression surgery.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Carolyn52192@...

Sent: Sunday, February 10, 2008 11:09 PM

To: VulvarDisorders

Subject: Re: /Testing for Pudendal Neuropathy

nne,

What is your diagnosis

C

Who's never won? Biggest

Grammy Award surprises of all time on AOL Music.

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Carolyn,

I have PNE, LS, Vulvodynia and Vestibulitis. I am almost six months post

pudendal decompression surgery.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Carolyn52192@...

Sent: Sunday, February 10, 2008 11:09 PM

To: VulvarDisorders

Subject: Re: /Testing for Pudendal Neuropathy

nne,

What is your diagnosis

C

Who's never won? Biggest

Grammy Award surprises of all time on AOL Music.

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I

was wrong on the state my friend went to for the PNMLT – it was South Carolina.

If anyone lives there and is interested I can get more information.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of millburytimes

Sent: Sunday, February 10, 2008 10:22 PM

To: VulvarDisorders

Subject: /Testing for Pudendal Neuropathy

Doctor Conway does

only the EMG testing. A friend of mine flew down to West Virginia to have the

PNMLT done, as there was no one in the Boston/Rhode Island area that did either

test. It was shortly after she had her test done that Dr. Conway completed his

training in France along with his technician who does the testing. She went to

France with him also. The machine that she uses is made in France and when she

started doing the testing, it was the only one in the US. There may be more

now. I will ask my friend if she knows what the difference is between the two

tests is. But if you read the description carefully below, the PNMLT test does

not test the entire body. The EMG tests the entire length of the pudendal nerve. I know I had

electrodes in my forehead and they shocked other areas of my body to look for

nerve conductuity in the spine, to make sure there are no issues with spinal

conductivity. They don’t do that with the PNMLT testing.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Saturday, February 09, 2008 9:59 AM

To: VulvarDisorders

Subject: Re: Testing for Pudendal Neuropathy

i don't really understand the difference between this

and the emg. does dr. conway do this? i had the emg

done by him but it sounds the same....

erin

--- millburytimes

wrote:

> Below is a description of testing done for a

> possible compression of the pudendal nerve.

>

>

>

> A PNMLT is an electrophysiological procedure,

> similar to an EMG (electromyogram), which measures

> the speed of nerve conduction. This exam is done by

> a neurologist. Not all neurologists have the

> necessary equipment to do this type of examination.

> During this exam, the pudendal nerve is stimulated

> electrically inside the rectum (or vagina) at the

> ischial spine with electrodes on the tip of a

> special glove. The speed of the nerve conduction is

> recorded by a small needle inserted in the perineum.

> If the nerve responds slower than normal, this gives

> an indication that the nerve may be entrapped or

> damaged.

>

>

>

> The PNMLT examines only the motor function of the

> nerve. There is no way to test for the sensory

> fibers of the nerve which transmit pain. The reason

> for the test is based on the assertion that an

> abnormal motor function will most likely conceal a

> sensory affection as well. So, an abnormal PNMLT

> indicates that the pudendal nerve is affected but a

> normal reading does not rule out PNE. In this case

> an entrapment could exist even if the motor fiber of

> the nerve has not been affected yet. This is more

> common with people who have had PNE only for a short

> period of time. Nevertheless, the PNMLT is the most

> accurate neurological examination for the pudendal

> nerve.

>

>

>

> The neurological examination can be completed by the

> measurement of the anal reflex latency, measurements

> of the bulbocavernosus reflex latencies (BCRLs),

> somatosensory evoked potentials of the pudendal

> nerve (SEPPNs) and the sensory conduction velocity

> of the dorsal nerve of the penis (SCVDNP). Those

> exams can give further information about the

> condition of the nerve or the origin of the pain.

>

>

>

> The EMG tests the entire length of the pudendal

> nerve. I had electrodes in my forehead and they

> shocked other areas of my body to look for nerve

> conductuity in the spine, to make sure there are no

> issues with spinal conductivity.

>

>

>

> My understanding, (reports I have heard from other

> doctors), is that the PNMLT is more reliable than

> the EMG. Every doctor though has their own opinion

> and the PNMLT is sometimes not a great indicator of

> entrapment or not.

>

>

>

> nne

>

>

>

>

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

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I

was wrong on the state my friend went to for the PNMLT – it was South Carolina.

If anyone lives there and is interested I can get more information.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of millburytimes

Sent: Sunday, February 10, 2008 10:22 PM

To: VulvarDisorders

Subject: /Testing for Pudendal Neuropathy

Doctor Conway does

only the EMG testing. A friend of mine flew down to West Virginia to have the

PNMLT done, as there was no one in the Boston/Rhode Island area that did either

test. It was shortly after she had her test done that Dr. Conway completed his

training in France along with his technician who does the testing. She went to

France with him also. The machine that she uses is made in France and when she

started doing the testing, it was the only one in the US. There may be more

now. I will ask my friend if she knows what the difference is between the two

tests is. But if you read the description carefully below, the PNMLT test does

not test the entire body. The EMG tests the entire length of the pudendal nerve. I know I had

electrodes in my forehead and they shocked other areas of my body to look for

nerve conductuity in the spine, to make sure there are no issues with spinal

conductivity. They don’t do that with the PNMLT testing.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Saturday, February 09, 2008 9:59 AM

To: VulvarDisorders

Subject: Re: Testing for Pudendal Neuropathy

i don't really understand the difference between this

and the emg. does dr. conway do this? i had the emg

done by him but it sounds the same....

erin

--- millburytimes

wrote:

> Below is a description of testing done for a

> possible compression of the pudendal nerve.

>

>

>

> A PNMLT is an electrophysiological procedure,

> similar to an EMG (electromyogram), which measures

> the speed of nerve conduction. This exam is done by

> a neurologist. Not all neurologists have the

> necessary equipment to do this type of examination.

> During this exam, the pudendal nerve is stimulated

> electrically inside the rectum (or vagina) at the

> ischial spine with electrodes on the tip of a

> special glove. The speed of the nerve conduction is

> recorded by a small needle inserted in the perineum.

> If the nerve responds slower than normal, this gives

> an indication that the nerve may be entrapped or

> damaged.

>

>

>

> The PNMLT examines only the motor function of the

> nerve. There is no way to test for the sensory

> fibers of the nerve which transmit pain. The reason

> for the test is based on the assertion that an

> abnormal motor function will most likely conceal a

> sensory affection as well. So, an abnormal PNMLT

> indicates that the pudendal nerve is affected but a

> normal reading does not rule out PNE. In this case

> an entrapment could exist even if the motor fiber of

> the nerve has not been affected yet. This is more

> common with people who have had PNE only for a short

> period of time. Nevertheless, the PNMLT is the most

> accurate neurological examination for the pudendal

> nerve.

>

>

>

> The neurological examination can be completed by the

> measurement of the anal reflex latency, measurements

> of the bulbocavernosus reflex latencies (BCRLs),

> somatosensory evoked potentials of the pudendal

> nerve (SEPPNs) and the sensory conduction velocity

> of the dorsal nerve of the penis (SCVDNP). Those

> exams can give further information about the

> condition of the nerve or the origin of the pain.

>

>

>

> The EMG tests the entire length of the pudendal

> nerve. I had electrodes in my forehead and they

> shocked other areas of my body to look for nerve

> conductuity in the spine, to make sure there are no

> issues with spinal conductivity.

>

>

>

> My understanding, (reports I have heard from other

> doctors), is that the PNMLT is more reliable than

> the EMG. Every doctor though has their own opinion

> and the PNMLT is sometimes not a great indicator of

> entrapment or not.

>

>

>

> nne

>

>

>

>

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

Link to comment
Share on other sites

I

was wrong on the state my friend went to for the PNMLT – it was South Carolina.

If anyone lives there and is interested I can get more information.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of millburytimes

Sent: Sunday, February 10, 2008 10:22 PM

To: VulvarDisorders

Subject: /Testing for Pudendal Neuropathy

Doctor Conway does

only the EMG testing. A friend of mine flew down to West Virginia to have the

PNMLT done, as there was no one in the Boston/Rhode Island area that did either

test. It was shortly after she had her test done that Dr. Conway completed his

training in France along with his technician who does the testing. She went to

France with him also. The machine that she uses is made in France and when she

started doing the testing, it was the only one in the US. There may be more

now. I will ask my friend if she knows what the difference is between the two

tests is. But if you read the description carefully below, the PNMLT test does

not test the entire body. The EMG tests the entire length of the pudendal nerve. I know I had

electrodes in my forehead and they shocked other areas of my body to look for

nerve conductuity in the spine, to make sure there are no issues with spinal

conductivity. They don’t do that with the PNMLT testing.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Saturday, February 09, 2008 9:59 AM

To: VulvarDisorders

Subject: Re: Testing for Pudendal Neuropathy

i don't really understand the difference between this

and the emg. does dr. conway do this? i had the emg

done by him but it sounds the same....

erin

--- millburytimes

wrote:

> Below is a description of testing done for a

> possible compression of the pudendal nerve.

>

>

>

> A PNMLT is an electrophysiological procedure,

> similar to an EMG (electromyogram), which measures

> the speed of nerve conduction. This exam is done by

> a neurologist. Not all neurologists have the

> necessary equipment to do this type of examination.

> During this exam, the pudendal nerve is stimulated

> electrically inside the rectum (or vagina) at the

> ischial spine with electrodes on the tip of a

> special glove. The speed of the nerve conduction is

> recorded by a small needle inserted in the perineum.

> If the nerve responds slower than normal, this gives

> an indication that the nerve may be entrapped or

> damaged.

>

>

>

> The PNMLT examines only the motor function of the

> nerve. There is no way to test for the sensory

> fibers of the nerve which transmit pain. The reason

> for the test is based on the assertion that an

> abnormal motor function will most likely conceal a

> sensory affection as well. So, an abnormal PNMLT

> indicates that the pudendal nerve is affected but a

> normal reading does not rule out PNE. In this case

> an entrapment could exist even if the motor fiber of

> the nerve has not been affected yet. This is more

> common with people who have had PNE only for a short

> period of time. Nevertheless, the PNMLT is the most

> accurate neurological examination for the pudendal

> nerve.

>

>

>

> The neurological examination can be completed by the

> measurement of the anal reflex latency, measurements

> of the bulbocavernosus reflex latencies (BCRLs),

> somatosensory evoked potentials of the pudendal

> nerve (SEPPNs) and the sensory conduction velocity

> of the dorsal nerve of the penis (SCVDNP). Those

> exams can give further information about the

> condition of the nerve or the origin of the pain.

>

>

>

> The EMG tests the entire length of the pudendal

> nerve. I had electrodes in my forehead and they

> shocked other areas of my body to look for nerve

> conductuity in the spine, to make sure there are no

> issues with spinal conductivity.

>

>

>

> My understanding, (reports I have heard from other

> doctors), is that the PNMLT is more reliable than

> the EMG. Every doctor though has their own opinion

> and the PNMLT is sometimes not a great indicator of

> entrapment or not.

>

>

>

> nne

>

>

>

>

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

Link to comment
Share on other sites

nne,I have been thinking about you and wondering how you were doing post-surgery, so it's nice to see you back on the group. How are things going in your recovery? Are you where youexpected to be at this point? You mentioned having some blocks done. Was this part ofyour " plan " -- or something that is a response to new developments?Hope you're doing well. You deserve it after all you've been through!Hollis> Carolyn, I have PNE, LS, Vulvodynia and Vestibulitis. I am almost six monthspost pudendal decompression surgery. nne  From: VulvarDisorders  [mailto:VulvarDisorders ]  On Behalf Of Carolyn52192@... Sent: Sunday, February 10, 2008 11:09 PMTo: VulvarDisorders  Subject: Re: /Testing for Pudendal Neuropathy nne, What is your diagnosis C  _____  Who's never won? Biggest<http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp0030000 0002548>  Grammy Award surprises of all time on AOL Music. 

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Yes

– I took a break from the groups following my surgery. I just couldn’t talk about

it for awhile as I knew it was going to take a long time to feel better, and

everyone was very concerned and kept asking me how I was feeling. At the time I

did not have anything positive to say, so I just took a break and concentrated

on myself and getting well.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Monday, February 11, 2008 9:06 AM

To: VulvarDisorders

Subject: RE: /Testing for Pudendal Neuropathy

nne,

Are you the same nne that used to post from Mass?

How are you doing after the surgery?!

millburytimes wrote:

Carolyn,

I have PNE, LS, Vulvodynia and Vestibulitis. I am almost six months post

pudendal decompression surgery.

nne

From: VulvarDisorders [mailto:VulvarDisorders ]

On Behalf Of Carolyn52192@...

Sent: Sunday, February 10, 2008 11:09 PM

To: VulvarDisorders

Subject: Re: /Testing for Pudendal Neuropathy

nne,

What is your

diagnosis

C

Who's never won? Biggest

Grammy Award surprises of all time on AOL Music.

Looking for last minute shopping deals? Find

them fast with Yahoo! Search.

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