HOLLIS/Testing for Pudendal Neuropathy

[Guest guest]

Hi

Hollis,

I

am doing very well – thanks for asking. I stayed off the groups for awhile to

give myself a chance to heal. This is a long recovery period – at least two

years and I have only had six months of recovery. I have had some good months

and some very bad months, and I seem to be on the upward swing now. I went out

shopping on Saturday and even ate dinner out (on my cushion). But this is

remarkable as I am still in bed (daybed in front of TV) most of every day. I

also take a lot of medication to see me through the day.

Unfortunately

my vestibulectomy did not take and the nerve endings grew back after three

months. I still would have a vestibulectomy again in a heartbeat, as I do

believe they are wonderful and heal most people. And the recovery is so easy –

virtually pain free. There is a 20 percent failure rate, and I was one of them.

I did have three months of wonderful complete vaginal and perineum pain free. I

passed the q-tip test with flying colors – and like I said – I was completely

pain free with and without touch. Now it is all back again, but Dr. Conway

feels it will eventually be pain free again as my pudendal nerves heal.

The

surgery was completely successful – the nerve was compressed on both sides and

Dr. Conway was able to free the nerves. Following surgery at my first and

second month checkup, Dr. Conway was able to do an internal exam that was

completely pain free. He pressed on the PN, and I didn’t feel any pain. But the

internal nerves are inflamed from being disturbed and the nerves in the butt

and the perineum are inflamed from being disturbed also. They use retractors

during surgery which pull all the butt muscles, bowels, vagina out of place. That

is why I am getting the impar blocks – these blocks calm all the nerve endings

in the pelvis and my PM doctor (Dr. Quesada) thinks that this will help. That

is where most of my pain is located – in the butt. It feels like I was slammed

with a 2 x 4.

I

started PT today and my therapist (Raquel Perlis) did not find any trigger

points or muscle spasms. She thought all my muscles were in good shape

considering I have been in bed the last six months. She had been in touch with

for directions on post pudendal surgery PT. It has only been the last

several weeks that I have started to move around. I got a good dose of an hour’s

worth of skin rolling which really felt good, and will start internal work in

about a month. Raquel said I was her only client that never screamed or cried

during the skin rolling. For some reason I find it very soothing.

So

I have a long way still to go before I am pain free, but I am making baby

steps. And I am so glad I had the surgery done. It was the very best decision I

could have made. Now everything would be perfect if the nerves would just hurry

up and heal so I could be pain free. I have a wonderful team of doctors and they

will do everything possible to help me. If these blocks don’t help, then I am

going to try Botox. Dr. Conway keeps telling me the story of his patient who

kept telling him that it was the worse decision she ever made to have the

surgery. She was a bad case, as bad as I am, and she kept telling Dr. Conway

this over and over. At the end of two years, she called him up and told him it

was the best decision she ever made as she was completely pain free and

healed! He keeps telling me that this will be me – it just takes that long for

the nerves to heal.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of hgz

Sent: Monday, February 11, 2008 2:58 PM

To: VulvarDisorders

Subject: RE: /Testing for Pudendal Neuropathy

nne,

I have been thinking about you and wondering how you were doing

post-surgery, so it's nice to see you back on the group. How are

things going in your recovery? Are you where you

expected to be at this point? You mentioned having some

blocks done. Was this part of

your " plan " -- or something that is a response to new

developments?

Hope you're doing well. You deserve it after all you've been

through!

Hollis

> Carolyn, I have PNE, LS, Vulvodynia and Vestibulitis. I am

almost six months

post pudendal decompression surgery.

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On

Behalf Of Carolyn52192@...

Sent: Sunday, February 10, 2008 11:09 PM

To: VulvarDisorders

Subject: Re: /Testing for Pudendal Neuropathy

nne,

What is your diagnosis

C

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