Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 Hi Tingling in the hands was the first sign of PM back in 1998 then it changed to pain, The PM caused my Fibrosis two years later. A blood test for CPK will show if you have PM P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 9 LPM 8/04, PH 3/06, ILL yo 60Subject: O2 levels and other questions?To: Breathe-Support Date: Tuesday, September 30, 2008, 3:23 AM hi guys, just a couple of questions as so newly diagnosed! are we supposed to have a certain level of oxygen to feel ok? and is this worked out by one of those things you slip on your finger when you also get your blood pressure checked at the hospital? is that oxygen saturation or something, and how often should we check this etc? is it normal to have slight tingling in both my hands too, sortof like lack of blood circulation? and also, today my lungs have felt very sore, i feel like i have to stretch my back out to almost stretch my lungs, does that sound weird? and i sometimes get sharp pains and also hurts a bit to breath in lately thanks for any help! regards monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 hay john! yes i have polymyositis! dx jan 07, now just diagnosed with pf! just like you! am anti jo 1 positive too, and am part of the myositis association and talk on their forum too! thanks for that! Quote Link to comment Share on other sites More sharing options...
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