My story....reasons for the hysterctomy

[Guest guest]

I thought if I typed this out, maybe seeing it in black and white would help...sorry it's long... At 22 I was diagnosed with uterine retroversion (uterus flipped backwards) for me it was symptomatic...caused more pain with periods, I had Endo & it caused lots of pain with sex, and really bad rectal pain. I had a uterine suspension surgery at 26. I had one child at the time and my symptoms were worse after pregnancy. The surgery was performed by pulling the uterus up into a more normal position and stitching the broad ligaments on either side to my lower abdominal wall. It worked, put my uterus back, I felt better. No more rectal pain, sex was better, yada, yada...glad I had it. I got pregnant again at 30, I knew the ligaments would stretch out and they did. This time it's prolapse and not retroversion. Last year, while going to

FL on vacation I had terrible pain with sitting on the drive there and back. I've had this pain off and on for years...but this time it was really bad. Long story short....I think my uterus is causing my sit pain due to my previous suspension surgery. One ligament was stitched about an inch higher than the other...I think my ligaments being fixed to my lower abdominal wall is pulling my sacrum out of alignment and causing the pain with sitting. These days they do a much better job with the suspension surgery. The ligaments aren't stitched to any muscles, but rather a stitch is actually placed in the ligament itself. I'm glad I had the surgery because I was able to have another child. I went to the PT in Ohio named Tom (who used to post on our site) and he really helped me...he realigned my sacrum and the sit pain was alleviated for 1.5 yrs. Then, it came back last August and has been bad since...I

even went back to him but it didn't work like the first time, but did help some. I have also been to a Doc who does manipulations with no help. Had x-rays and and MRI. I think the weight of my uterus won't allow my sacrum to stay in place. I also have a fibroid...going for an ultrasound to see if it's grown anymore. There are exercises I could do to pull my uterus back up...but I don't think it will work for me because my ligaments are stitched in place. I had surgery to correct one thing and little did I know a problem was being created. Sorry this is so long but this is my story and why I'm having the hysterectomy. I'm mad! Prolapse usually happens more to menopausal women then to someone younger. Here I am 35 with menopausal (hormone) symptoms AND now prolapse to prove it! Unless I'm missing something....does anybody see any way around a

hysterectomy...I just don't! I do appreciate the feedback from those of you that have had the surgery...~Chelle I need a "pelvic transplant"! Do they do that surgery yet?!!!!

[Guest guest]

Chelle, first of all let me tell you that my 30 year old niece has prolapse, diagnosed at 26 after first child. She has, to date, had no surgeries to fix this and her gyn told her it is not all that uncommon . She was breastfeeding her second child when it became a really uncomfortable problem, and the doc first suggested a pessary (sp?)..... but also indicated to her that waiting until she was through breast feeding might be wise.... as breast feeding upset then natural hormonal balance in a woman's body. Turns out the doc was right and several months after she stopped breastfeeding, without ever having used a pessary things righted themselves enough to relieve her pain. You know you have hormonal issues, and so perhaps this is related - as it was for my niece.DustyChelle wrote: I thought if I typed this out, maybe seeing it in black and white would help...sorry it's long... At 22 I was diagnosed with uterine retroversion (uterus flipped backwards) for me it was symptomatic...caused more pain with periods, I had Endo & it caused lots of pain with sex, and really bad rectal pain. I had a uterine suspension surgery at 26. I had one child at the time and my symptoms were worse after pregnancy. The surgery was performed by pulling the uterus up into a more normal position and stitching the broad ligaments on either side to my lower abdominal wall. It worked, put my uterus back, I felt better. No more rectal pain, sex was better, yada, yada...glad I had it. I got pregnant again at 30, I knew the ligaments would stretch out and they did. This time it's prolapse and not

retroversion. Last year, while going to FL on vacation I had terrible pain with sitting on the drive there and back. I've had this pain off and on for years...but this time it was really bad. Long story short....I think my uterus is causing my sit pain due to my previous suspension surgery. One ligament was stitched about an inch higher than the other...I think my ligaments being fixed to my lower abdominal wall is pulling my sacrum out of alignment and causing the pain with sitting. These days they do a much better job with the suspension surgery. The ligaments aren't stitched to any muscles, but rather a stitch is actually placed in the ligament itself. I'm glad I had the surgery because I was able to have another child. I went to the PT in Ohio named Tom (who used to post on our site) and he really helped me...he realigned my sacrum and the sit pain was alleviated for 1.5 yrs. Then, it came

back last August and has been bad since...I even went back to him but it didn't work like the first time, but did help some. I have also been to a Doc who does manipulations with no help. Had x-rays and and MRI. I think the weight of my uterus won't allow my sacrum to stay in place. I also have a fibroid...going for an ultrasound to see if it's grown anymore. There are exercises I could do to pull my uterus back up...but I don't think it will work for me because my ligaments are stitched in place. I had surgery to correct one thing and little did I know a problem was being created. Sorry this is so long but this is my story and why I'm having the hysterectomy. I'm mad! Prolapse usually happens more to menopausal women then to someone younger. Here I am 35 with menopausal (hormone) symptoms AND now prolapse to prove it! Unless I'm missing

something....does anybody see any way around a hysterectomy...I just don't! I do appreciate the feedback from those of you that have had the surgery...~Chelle I need a "pelvic transplant"! Do they do that surgery yet?!!!!

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