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Re: Need some good news

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Here's a story from my life-Shortly after I proposed to my wife I was

told I have Wegener's Disease, which has bad outcomes also. My wife

(fiancee at the time) stood by me 100%. She could have ran the other

direction, but she didn't. If your lady is truly meant to be with you,

she will give you her 100% support. And once you get past that point,

and you've dealt with news that bad, you know that you're relationship

can survive anything. I know what you're going through-I was 24 when

this happened to me (and I also live in MN).

Jed

PSC 6/07 (Just diagnosed)

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I think we have to realize that getting the news you've been diagnosed with PSC

is not unlike

being told you have HIV or terminal cancer. Both carry with them the threat of

pending

demise. However, any one of us could also be standing at a street corner one

fine morning on

our way to work and a car could run a red light just as we're stepping out on

the street. If

you're lucky, the car could swerve and miss you or you could end up on the obits

column of

your local paper.

Personally, I see no reason why you couldn't continue with your relationship and

simply be

honest with her. If there's chemistry between the two of you already, then this

would be

something that the two of you would work through together. As you'd indicated

already, the

median life expectancy sounds fairly grim. But I'd like to think/hope that

during the interim,

you'd continue living every day to its fullest. As one member here put it very

well, you could

live to a very old age and die with PSC but not because of it.

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