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JEEPERS!!

Where is this coming from. Holding bowel movements for a day, or even and hour with UC? Holding in long enough to get to a bathroom was the best I could do.See what's free at AOL.com.

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I usually respond to surveys, but I'm afraid I'm not sure I

understand what you're asking with this survey.

Those of us that have contracted PSC subsequent to years of UC most

likely don't have any options about " holding in our bowel

movements. " I was advised 15 years ago after my j-pouch surgery to

attempt to wait as long as possible between emptying my pouch in

order to " increase its capacity " . Easier said than done.

On a good day, I may only move my bowels five times. I've learned

that I need to keep my pouch emptied on a regular basis, even if I

don't feel a need to do so, in order to avoid severe cramping and/or

infection. I use mesalamine enemas during bouts of pouchitis. It's

ver effective.

Debbie in Seattle

PSC suspected 1999; confirmed 2005

>

>

> Enter your vote today! A new poll has been created for the

> group:

>

> Did you ever hold your bowel movements in for extended periods of

time?

>

> o More than 5 times a week/

> o 5 times a week /School or Work Days

> o Between 1 and 4 days per week

> o Sometimes

> o Never

>

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group//surveys?id=2495210

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

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  • 1 month later...
Guest guest

Enter your vote today! A new poll has been created for the

group:

Has anyone who has PSC ever taken Acutane (medication for acne) in their life?

o yes

o no

To vote, please visit the following web page:

http://groups.yahoo.com/group//surveys?id=2516887

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

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-----Original

Message-----

Has anyone who has PSC ever taken Acutane

(medication for acne) in their life?

JMHO

– it would be nice if we were able to see who the person is that is taking

the poll (any poll).

Also, I noticed this

time (maybe it’s happened before & I just didn’t notice it)

that when people responded to the poll, it listed our e-mail addresses. This time it may not matter to anyone,

but sometimes the poll questions are such that others may not want their follow

PSCer’s to know if they were voting.

Just my two cents,

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 Listed 7/21/06 @ Baylor Dallas

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