Re: Man, oh, man - what a week and a half...

[Guest guest]

,

My husband was in and out of the hospital many times that we never

really knew what the problem was. We would just chalk them up to

complications with his liver. Sometimes they may have just been a

virus, but when you have liver problems, you over react (which is

good). It sounds like your husband has good doctors and they are

doing the right thing about getting him evaluated for the transplant

list. Since PSC is so unpredictable, you never know how long (if at

all) before transplant is neccessary. My husband was on what seemed

like a relative fast track. He was diagnosed in 2000, and really

started getting worse in 2004. It was 2006 when he got the

transplant. Others have been living with PSC for years.

I remember the shock I felt the first time our doctor said liver

transplant. I'm not sure how I didn't hit the floor. Who would have

thought I would be the one begging and praying for him to get a high

enough MELD score to get the transplant! I'm thankful for this

group, because with each of his issues before and after transplant,

there were people here who had gone through what I was going through

and could point me in the right direction.

Hang in there!

wife of

PSC & UC 2000, J pouch 2004

transplant November 2006