Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 It is not myself who has the child that has been diagnosed with torticollis and he also has plagiocephaly, it is a family member's son. This family member is too prideful to put his son in one of the helmets or bands. They are doing exercises and physical therapy, but I don't know to what extent. Also, apparently he has one side of his body shorter than the other, so it sounds like a bad case of all three things. I am not on speaking terms with this family member, but I am going to do more research and give it to him anyway. If I had not spent a few days online looking for resources, he still would not have a diagnosis. I just hate the thought of this little boy going through life with any kind of problem just because of his father's pride. It all came about by his parents discovering a knot on his neck, which was from the torticollis. The baby is now almost 8 months old, he was probably around 3-4 months when they discovered it. I have not seen the baby in person, we live a ways away. Ever since I voiced my opinion that they needed to do more for their son, they are not speaking to me. They waited around for 10 days before they took him to the doctor, at first they were afraid it was cancer. Then when I finally was told about it, I started doing research immediately and found out about torticollis. You can tell from pictures of this baby that one side of his skull is different than the other. The one eye looks smaller, one of his ears is badly cupped. I do not know how they couldn't see this when he was born, but they didn't. The pediatrician told them his head would be normal in a few weeks. HA. I have been monitoring this group for a while and it seems like a lot of you were told that. His pediatrician says he does not need a helmet. The physical therapist says he does. The person they took him to last said he does not. It looks like to me that these problems are rampant for babies now. Parents need to be educated about this problem, what to watch for. My question is this: How can I get this person to realize that his son is going to live with this for the rest of his life? Just because he does not want people to see him in a helmet. I have been looking at pictures, I think they are adorable. All you guys who have pictures on this site, your babies are gorgeous. I would have gone to the ends of the earth to rectify any problem that my daughter had, thank God she was healthy and normal. I admire people who can think first of their children and not stop until they know they have done all they possibly can for them. Quote Link to comment Share on other sites More sharing options...
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