Re: HELP ME PLEASE! 3 children w/plagio

[Guest guest]

Hi,

I'm sorry to hear your doctors have not been helpful with your older

children. there is a group callded. Olderplage -

OlderPlag/

Your daughter is at a great age, so don't worry about her being the

most severe. You certainly have plenty of time to round out her head.

Where are you located? Maybe someone in this group can recommend a

band friendly doctor.

You can also contact offices near you that make helmets (also called

bands) and see if they can recommend a doctor they work with. you can

look at cranial tech (maker or DOCband) -

http://cranialtech.com/ClinicLocations/index.html

or orthomerica which makes STARbands -

http://orthomerica.com/technology/scan_locations.htm (this is only the

location that use their starscanner technology, but other orthos will

also use starbands with plaster casts). There are orther providers too

(Hanger included) but I don't know how to find their locations :-)

You'll get lots of support here. take care,

-christine

mom to sydney / 10 mo /starband grad.

>

> I have three children ages 4, 2 and 3 mos. ALL have misshappen

> heads. I did not seek treatment for my older boys upon advice of

> physicians and lack of support group. Now my 3 mos old has this and I

> need to do something.

>

> I was veiwing the photos in the database and if I had seen these w/my

> 1st born he would have had a helmet. My daughter's is much more

> severe and I am so distraught! Where do I get good information and is

> there a good doctor I can see for her treatment? What about my older

> boys.. is it too late for them?

>

> I'll be taking photos to upload to this group for anyones opionion...

> If I had known about this group and others like it 4 years ago I would

> not be crying so hard right now...

>

[Guest guest]

Thank you so much for your quick reply... The information here is

so vast and overwhelming... I'm looking into the other group now.

glad to hear your little one has completed treatment...

I am in Pittsburgh, PA BTW..

> >

> > I have three children ages 4, 2 and 3 mos. ALL have misshappen

> > heads. I did not seek treatment for my older boys upon advice

of

> > physicians and lack of support group. Now my 3 mos old has this

and I

> > need to do something.

> >

> > I was veiwing the photos in the database and if I had seen these

w/my

> > 1st born he would have had a helmet. My daughter's is much more

> > severe and I am so distraught! Where do I get good information

and is

> > there a good doctor I can see for her treatment? What about my

older

> > boys.. is it too late for them?

> >

> > I'll be taking photos to upload to this group for anyones

opionion...

> > If I had known about this group and others like it 4 years ago I

would

> > not be crying so hard right now...

> >

>

[Guest guest]

--- Hi,

I am also from the Pittsburgh area, my dd Jenna sees Dr. Jiang at

Childrens Hospital he is the one that diagnosed her with the plagio

and tort. She has a starband through Union Orthotics on Libery

Avenue. If you want to e-mail me directly I can give you those phone

numbers. There is also a Doc band location in Cleveland Ohio I don't

know if you are wanting to drive that far. If I can be helpful in

any way or if you have questions please let me know. Jenna has been

in the starband now for 9 weeks and has had amazing progress.

Let me know,

Tina Mama to Jenna 8 mos

In Plagiocephaly , " briacook " <briacook@...> wrote:

>

> Thank you so much for your quick reply... The information here is

> so vast and overwhelming... I'm looking into the other group now.

> glad to hear your little one has completed treatment...

>

> I am in Pittsburgh, PA BTW..

>

>

> > >

> > > I have three children ages 4, 2 and 3 mos. ALL have misshappen

> > > heads. I did not seek treatment for my older boys upon advice

> of

> > > physicians and lack of support group. Now my 3 mos old has

this

> and I

> > > need to do something.

> > >

> > > I was veiwing the photos in the database and if I had seen

these

> w/my

> > > 1st born he would have had a helmet. My daughter's is much

more

> > > severe and I am so distraught! Where do I get good information

> and is

> > > there a good doctor I can see for her treatment? What about my

> older

> > > boys.. is it too late for them?

> > >

> > > I'll be taking photos to upload to this group for anyones

> opionion...

> > > If I had known about this group and others like it 4 years ago

I

> would

> > > not be crying so hard right now...

> > >

> >

>