to be or not to be listed

[Guest guest]

to be or not to be listed, that is the question

at this time the decision is mine

went to pulmonary today--6 min walk, pft--the works

was able to do 6 min walk on room air, but o2 sats were in low 90's

took a few minutes for blood pressure to come down afterward

was very out of breath after 6 min walk, even though o2 went back up while standing still, was eager to put cannula back on -- first time I felt like that after 6 min walk

most of pft results were in red

for now doc increased prednisone to 40 to see if lungs are responsive

call her in 2 weeks

then she will wean me down again

might put me on another drug with the prednisone

the docs say i can be listed whenever i am ready

catch 22--the darn insurance !#$% & * --probably need to wait until jan 1st, since current, more expensive plan is not accepted by provider

difficult decision

last week, i had a tooth ache, dentist said root canal, went the same day, tooth felt better

it was an easy decision to make

there is no pain with this stupid disease

made a list of quality of life issues

pay closer attention to oximeter -- need higher level of o2 when active -- c4

thanks for listening, writing is a good form of therapy and or decision making

Pink Joyce IPF 3/06 Pennsylvania