Itchy foods/what meds are folks taking for itch?

[Guest guest]

Hi:

I know this topic has probably been touched on a bit but has anybody

compiled a 'super list' of all foods that PSC'ers suspect of bothering

them?

For me personally it seems like food with any significant fat in it,

or coffee (Not the caffeine, the coffee, decaf also) will make me itch

3-5 days after I had a decent amount.

Currently I'm on Questran (Which seems to help a little, but not much

- Used to work well 8+ years ago). Rifampin might help a little also,

but I'm not sure. I've tried Naltrexone and I think it helped but I

think I was also having a 'good week' when I tried it. I'm going to

try it again.

I tried GabaPentin also and it seemed to have an immediate effect to

eliminate the 'snap, crackle, pop itchyness but didn't do anything for

the deep 'rash type' itch I usually get on my legs. Also it made me

very, very spacey.

What are peoples experiences with Food and Meds?

[Guest guest]

I've found that all wheat and gluten-containing alternatives cause me

to itch. Two years ago at Christmas I thought I'd try just a few baked

goods with wheat in them. A couple of days later, I wanted to claw my

muscles off. It disappeared over a week later after I stopped eating

the treats. I was tested for the classic celiac markers and they came

up negative.

Otherwise, soy and corn seem to be the most bothersome for itching.

However, I found that gluten-free baking works for me to give me my

sweet fix. I try to limit the recipes that use corn starch but when

all fails, I've been known to have it anyway and take an OTC

antihistamine. That seems to work for any itching at that point.

[Guest guest]

>

> I've found that all wheat and gluten-containing alternatives cause me

> to itch.

Arne (or someone who is wonderful at gathering information and placing

it in a special folder) -

Is there a way to start a list of foods that people find increase

their symptoms and listing the foods (food groups) with symptoms, e.g.

milk (Colitis symptoms) or Wheat (Itch), etc? Many times foods are

quite individual in their symptoms, but the list would help identify

places to start looking for what might exacerbate someone's symptoms.

Thanks for your thoughts.

Joanne

(, Ca; mom of , 17, UC/PSC 2-06)