RE; TOM and Mayo and your reporting..GREAT!!!

[Guest guest]

Tom,Thank you for keeping us posted...I read everything you wrote...As I am looking to go to Mayo myself hopefully this year...LOL..I'm nervous about it too...I loved your emails and the fact your telling us everything it's GREAT!!!I'll want to know the hotel you stayed in..If it's in another email I missed it somehow...I don't need a transplant ..but do need a real DX...I was told off record I may have PSC...but I really need to know since I'm getting sicker and do have some of the symptoms..My labs are normal and have been..I do have the itching feet and hands and some yellow , more in the left eye and Right upper pain on/off..I sleep alot too..Stent placement in Pancreatic duct..Doc unable to get into my Bile duct to measure pressure..Which really worries me..I'll be interested in knowing how you started all this.?.And for those who have been to Mayo do they do a ERCP on your first visit..? MRCP's don't show the whole picture..I

will keep reading...You guys are great about the info on MN. Mayo !!! A Big Bless you and Thank You!!.. in Georgia from Ohio Tom wrote:Overall, I'm very impressed with Mayo. The people here are outstanding, caring, and dedicated to providing the highest level of service to the patients. I've rambled on far longer than I intended, so I'll stop here. More details will come tomorrow. Tom PSC 1999 UC/Crohns2004

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