Re: New: intro, questions, greetings

[Guest guest]

Welcome Meagan,I saw your note and I recognize your thirst for more information. When our son was diagnosed his junior year of college, I also went looking for all I could find out about PSC.  Please check out PSC Partners Seeking a Cure at www.pscpartners.org and start looking through all the information there. All the newsletters are filled with information and the links will help you.There are a lot of moms [and dad's] here with even younger children.You are not alone. Also, PSC Partners is getting ready to have their 3rd educational conference for PSC patients and caregivers in Denver, April 13-15. In fact there will be a pediatric question and answer section with the experts. You will find all this information on the Partners web site.Ask your questions here and many will help you.I wish you all the best and hope to meet you in Denver !!Lee mother of Bill 24 PSC/UC 06/04Hi, I'm Meghan, a west-coaster (37yo). We're new to this support board ('we' being my husband, Russ and our son, Wyatt) --even though I'm the one posting. I've skimmed the board a little, but haven't seen any post so far regarding a child with PSC. Our son, Wyatt is 12 and was diagnosed this week after many weeks of symptoms and testing leading up to it. He's stage 1.