Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Hi Jon, This really is good news to hear. A ray of hope is just like a rainbow! I'll keep my fingers crossed for your continued stability and tx evaluation. Roxanne, 58, South Carolina 2006 Asthma/ PF 2008 IPF/ Sarcoidosis/Gerd Lady Slipper Orchid > > Subject: update on jon > To: Breathe-Support > Date: Saturday, August 16, 2008, 8:25 AM > hello all,, just wanted to update everyone me and my latest > dr. > appt. with the hematologist..... we went wednesday.. and he > said things > are the same,, no change,,, things are stable and i have > been stable if > not slighty better over the past 4 months.. and in his > opinion,, there > is no reason why i cannot have a lung tx.. so that gave us > a little > ray of hope. i have had a couple really bad days of > coughing,, so that > has been rough.. but we are trying to hang in there and > have an appt. > with my pul.dr on tuesday.. then the tx. team in sept. > sometime.... > hopefully we will hear a good report then. we were planning > on driving > to PA to visit my dad in sept..but with the tx.appt. we > will not go > now, just hope its a good visit. take care everyone. jon > ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Jon Thats great news. No way to still get the PA trip in just before or after your TX appointment? Stable remains the magic word. > > hello all,, just wanted to update everyone me and my latest dr. > appt. with the hematologist..... we went wednesday.. and he said things > are the same,, no change,,, things are stable and i have been stable if > not slighty better over the past 4 months.. and in his opinion,, there > is no reason why i cannot have a lung tx.. so that gave us a little > ray of hope. i have had a couple really bad days of coughing,, so that > has been rough.. but we are trying to hang in there and have an appt. > with my pul.dr on tuesday.. then the tx. team in sept. sometime.... > hopefully we will hear a good report then. we were planning on driving > to PA to visit my dad in sept..but with the tx.appt. we will not go > now, just hope its a good visit. take care everyone. jon ipf 5-06 > Quote Link to comment Share on other sites More sharing options...
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