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Whom to tell--when

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Hi all,

I'd like to weigh in on this discussion too. I know we all have preferences and

reasons for doing it however we choose. I've gotten valuable information from

you all regarding this issue but I still have a huge dilemma which I am facing

and don't know how to handle it.

I've told my 4 sisters, 2 brothers and 2 oldest nieces (who are grown and

married). They are all sent updates each time I visit doctors and have tests.

I've told the 3 people at work with whom I work the closest. My boss knows more

than the other 2, but even she doesn't know all the details. It helps to have

their support at work due to time off for drs appts etc.

My dilemma is my mother. She's 85 years and not in the best health herself.

She is a cancer survivor and 20 year sufferer of COPD and chronic bronchitis. I

have told her that I have Sarcoid and that it is an inflammation which is

causing all the coughing. I am scared to tell her any more for fear she will

feel it's her fault and worry too much which could lead to further declining

health for her.

My sisters are split on this issue, the 2 oldest don't agree with me and the 2

youngest do. My feeling is that as I continue to decline, I may have no choice,

but for right now I don't want to worry her needlessly.

Roxanne, 58, South Carolina

2006 Asthma/ PF

2008 IPF/ Sarcoidosis/Gerd

Lady Slipper Orchid

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