Re: ER Episode

[Guest guest]

thank you so much for getting back with me.my dr. did

refern me to the mayo clinic here in jax. but they

will not see me due to me being on medicaid.for them

to even talk to me i got to come up with 2400

dollars,wwwhich of couse i don,t have.i get 528 a

month and i don,t see how they expect me to pay for

that.will anyway my dr. said thatn it might not be msa

because she said that i don,t look as bad as i should

after two years.she is saying that it could be

cellarbellar sydrom,because of the last mri that they

did in oct of 2000,because sahe said that it show

skieking of the brain.so i really don,t know because

of all of the problems that i am having.trouble

sleeping,walking,seeing things that aren,t there(which

is why she said i need to come off the sinemet because

she said that it can be causing hallnation)can,t

hardley hold things in my right hand without it going

everywhere,my writing is terrible,my memory is getting

worse,i will be doing something and forget,don,t like

being in crowds because everyone looks at you,i am

legally blind,.and the dr told me two weeks ago that

my eyes are getting worse due to something in the

back which he said is cause from what every thing that

they say i have.i am sorry that this is long but i

just don,t know what to do because people said that

they have research groups but my problem is is that i

can,t hardley gewt my medicine because of

transportation,much less go out of town.i am just

getting so frustrated i just don,t know what to do.i

have try everything that i know,and have even call

assitance living because someone call adult services

on me and said i had no heat,nop way of cooking etc so

i thought i would try assitance living but again due

to medicaid they won,t take me.so what should i do

,again i sorry for this being long but should i just

say the heck with everything i am 48 years old and i

feel that i can,t function any more.i tired of trying

because people look at you and just say oh you need

more paxil,or you are in denial but i am not i am

trying to help myself but i feel i am getting no

where..thank ya all so much for caring

--- Werre b.werre@...> wrote:

> Janice,

>

> The Mayo Clinic in ville, FL does know about

> MSA. Several people on

> the list have gone there. I am fairly sure that

> your doctor will have to

> refer you there. If your doctor is now saying it is

> pure autonomic failure -

> that is not as bad as MSA and some changes in

> lifestyle may control a lot of

> your problems. Taking you off of the Sinemet is a

> sign that you don't have a

> movement disorder. What did the doctor say it was?

>

> Take care, Bill and Charlotte

>

> =====================================

>

> janice harrell wrote:

>

> > hello everyone keeps talking about er,that is my

> > favorite show.and the fisrt time someone mention

> > shydragon is the night that i miss it.i have been

> at

> > the hosiptal with my grand baby since tuesday,so i

> > wasn,t able to watch it.if you tape it and you can

> > send me a copy i will pay for shipping and also

> the

> > tape if you don,t mind sending it to me.also i saw

> > where you said a friend from florida call you i

> live

> > in jax.fla and i was wondering do they have

> > msa,because i can,t find no one here in fla. that

> > knows anything about msa.i went to my dr.

> yesterday

> > and she really upset me this time she is now

> saying i

> > might not have msa but something else after two

> years

> > and she said i can come off the sinemet which i am

> > happy about that but it is just so upsetting that

> they

> > keep coming up with something else,and i can,t

> find

> > any one here that knows about this thing that we

> have

> > so again if ya no of any one please let me know.i

> know

> > that ya are problem tired of hearing me say that

> but i

> > feel like that i am getting no where don summers

> call

> > me and i was so happy to know that people in this

> > group is so caring,he is trying to find someone

> > here.to help. well here is my adress and my no if

> you

> > would like to call thank ya all so very much for

> all

> > of ya help....458 west 59st. jacksonville florida

> > 32208 phone no.1-

> > --- Suicoaz@... wrote:

> > > Bill,

> > >

> > > Last night a friend called from Florida to let

> us

> > > know about the ER episode.

> > > My husband taped it and I just viewed it. I

> will be

> > > happy to send it to you

> > > if someone hasn't already. I will put it in a

> > > priority mailer and send it

> > > out as soon as I can. I will need your address.

> > > Maybe you can mail it on to

> > > someone else who didn't get to see it after you

> see

> > > it.

> > >

> > > Jean (Phoenix)

> > >

> > > If you do not wish to belong to shydrager, you

> may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe

> > >

> > >

> > >

> > >

> > >