Re: Who's Still Working? I am, but I'm tired....any suggestions?

[Guest guest]

>

> Hi,

>

> I'm new to group, but not so new to the diagnosis. I am 34 yrs old

and

> was diagnosed with Scleroderma (CREST) when i was 19. I've had

some

> struggles with my health, and have had some lung fibrosis since

> the '90s, but in Dec. 2006 breathing became hard for me. I've been

on

> oxygen since Aug. 2007. I work as an auditor and am required to

travel

> some times. I was refused boarding by an airline in Jan. 2008,

because

> I was trying to fly without my concentrator....I'd called b4 the

flight

> to inquire about o2 concentrators, but decided not to bring it b/c

the

> home health care co. refused to provide me with 2 batteries.

Anyway,

> when i work all day, I'm tired and don't feel like doing anything

> else. I know I'm being looked at differently now that I'm tied to

o2.

> I'm hoping to get better, but I've hoping to get better now for

almost

> 2 yrs. Should I apply for SSDI or try working part-time or

something

> like that at first? I don't want to give up, but it's getting hard

to

> keep up my performance at work. Sorry for the long post.

>This is Walt I am retired and just got my SSID starts next month I

also traveled for a living , But I drove a truck and passed out

going over Donner Pass in Ca. Hit a jersey wall and wound up in the

hospital in Reno for 9 days. The got be breathing good enough to make

it home. If you feel the way you do maybe you should not travel. It

is very hard to be in the Hospital for so long so far away from your

Family. Maybe you should try for SSID to. I am 61 and the hospital

Here is trying to get me on the Lung transplant list. The Fibrosis

is what I have. I took tests in 2 different Hospitals my lungs are to

shot to get a biopsy so they are still wondering what i have. Try to

apply it takes a wile. Good Luck and God bless you Walt