MizKit- others with frequent ERCPs

[Guest guest]

You said in another post that 5 ERCPs is just passing amateur

level..LOL.. so what is considered professional level ? My son has

had

13 ERCPS and is 10 years old ? Is he a pro ? <wink> He's an old pro

at

surgeries and procedures- has been having them since he was 6 days

old-

and is getting rich from 'bribe payments'- so I guess that alone

makes

him a pro-and me broke

This is actually a serious question next- Any thoughts on what is

the

most # of ERCPs for treatment of obstructing stones and

sludge/strictures/stenting can be done before it is doing 'more harm

than good' ? My son has had two sphincterotomies with 'huge cuts'

because doing a roux en y was not an option for him. He has

absolutely

no 'spare' small intestines- he had 3/4 of it removed when he was an

infant. He had a series of stents placed @ every 6 weeks for a year

due to recurrent stones obstructing his CBD. He had already had his

glabladder removed several years beforehand but still had recurrent

episodes of stones due to strictures. His first HUGE stone

obstructing

his CBD was at the age of 4 3/4. Then his symptoms were ignored for

several years - NOT for a lack of trying on my part !!!!! he was

again

found to have a huge stone obstructing his CBD at age 7. After a

year

of stent replacements the GI did a second huge cut opening cut in

his

sphinctor of oddi for bile flow. Since he is 'wide open' to bacteria

getting into the liver-and is missing his ileocecal valve and has

chronic small bowel bacterial overgrowth from colonic bacteria

backing

up on him- he is on daily antibiotics.

We've been told that the frequent ERCPs did more harm than good as

did the huge sphincterotomies. A specialist he saw thought he needed

an external drain but the GI didn't agree. So I am having a hard

time knowing what to do with the " more harm than good " statement but

no guidance on how to help him now that it's been done statements

from the drs he currently sees KWIM ?

Lori