Re: Question about Ascites Post Tx

[Guest guest]

Jon,

If you look back through the post prior to this past November, You

will find that I posted about my husband's ascites almost

constantly. He was in and out of the hospital with ascites problems

almost every other week right before getting the call. As a matter

of fact he was in the local hospital when the tx center called us.

His doctor tried everything. He was taking above the max on Lasix

160mg twice a day. Aldactone (I'm not sure of the dosage) and he was

tried on other diaretics as well. All of which caused electrolyte

problems. His GI preferred to put him in the hospital and give him

Albumin and Lasix to remove the fluid, but he was also taped several

times. The problem he had was that he had had a previous J pouch

surgery that caused scar tissue and he had to have ultrasound guided

periocetisis (sp?). He also had a hernia.

also had " fat clothes " and " skinny clothes " as we liked to call

them even though he was mostly skin and bones everywhere except is

stomach. He wore anywhere from a 36 waist to a 40 at his worse

ascites.

Now the good news, he is two months post transplant and no ascites

and he has settled at a comfortable 38 waist with a belt. His surgeon

repaired the hernia during the transplant. I was so excited that he

had a normal belly button for a while, but some fluid

post transplant caused it to pop back out again.

Hang in there. It gets better!

wife of

PSC/UC 2000

J pouch 2004

tx November 18, 2006

[Guest guest]

,

Thank you for your encouraging words

regarding ’s experience. I also appreciate the comments from MizKit

and Ali which were most heartening further proving the value of this site!

Thanks again,

Jon

From: [mailto: ] On Behalf Of Peace

Sent: Sunday, January 21, 2007

9:04 PM

To:

Subject: Re:

Question about Ascites Post Tx

Jon,

If you look back through the post prior to this past November, You

will find that I posted about my husband's ascites almost

constantly. He was in and out of the hospital with ascites problems

almost every other week right before getting the call. As a matter

of fact he was in the local hospital when the tx center called us.

His doctor tried everything. He was taking above the max on Lasix

160mg twice a day. Aldactone (I'm not sure of the dosage) and he was

tried on other diaretics as well. All of which caused electrolyte

problems. His GI preferred to put him in the hospital and give him

Albumin and Lasix to remove the fluid, but he was also taped several

times. The problem he had was that he had had a previous J pouch

surgery that caused scar tissue and he had to have ultrasound guided

periocetisis (sp?). He also had a hernia.

also had " fat clothes " and " skinny clothes " as we

liked to call

them even though he was mostly skin and bones everywhere except is

stomach. He wore anywhere from a 36 waist to a 40 at his worse

ascites.

Now the good news, he is two months post transplant and no ascites

and he has settled at a comfortable 38 waist with a belt. His surgeon

repaired the hernia during the transplant. I was so excited that he

had a normal belly button for a while, but some fluid

post transplant caused it to pop back out again.

Hang in there. It gets better!

wife of

PSC/UC 2000

J pouch 2004

tx November 18, 2006

[Guest guest]

Isn't that encouraging?!! I just have a feeling that, by Fall, all

that you're going through now will seem like it was a bad dream. I wish

you were journaling the thoughts and insights and feelings you are

experiencing during this time. I think they would help you later on.

>>> mry_peace@... 01/21/07 09:04PM >>>

Jon,

If you look back through the post prior to this past November, You

will find that I posted about my husband's ascites almost

constantly. He was in and out of the hospital with ascites problems

almost every other week right before getting the call. As a matter

of fact he was in the local hospital when the tx center called us.

His doctor tried everything. He was taking above the max on Lasix

160mg twice a day. Aldactone (I'm not sure of the dosage) and he was

tried on other diaretics as well. All of which caused electrolyte

problems. His GI preferred to put him in the hospital and give him

Albumin and Lasix to remove the fluid, but he was also taped several

times. The problem he had was that he had had a previous J pouch

surgery that caused scar tissue and he had to have ultrasound guided

periocetisis (sp?). He also had a hernia.

also had " fat clothes " and " skinny clothes " as we liked to call

them even though he was mostly skin and bones everywhere except is

stomach. He wore anywhere from a 36 waist to a 40 at his worse

ascites.

Now the good news, he is two months post transplant and no ascites

and he has settled at a comfortable 38 waist with a belt. His surgeon

repaired the hernia during the transplant. I was so excited that he

had a normal belly button for a while, but some fluid

post transplant caused it to pop back out again.

Hang in there. It gets better!

wife of

PSC/UC 2000

J pouch 2004

tx November 18, 2006