ERIN/ specialist/nerve block trip

[Guest guest]

Hi ,

Well I guess

it is what you consider a handful. It was a handful six months ago when I first

went to him, but at the rate he is going per week, he has done a lot. A month

ago when I asked him, he said over 25, but that he is scheduled for more than

five a week, and he had stopped counting. I personally know of one person, who

is having it done this coming week, and I am in constant touch with five

others, and we are all doing great. And to answer your question where I was

entrapped I don’t know. Dr. Conway didn’t say, and it was not a

question that I had thought of to ask. I do know the surgery was done on both sides

– both sides were severely entrapped.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Sales

Sent: Wednesday, September 19, 2007 8:38 PM

To: VulvarDisorders

Subject: [sPAM] Re: Update on my PN specialist/nerve block trip

nne,

I think I misunderstood you- i thought you said that

he had only done a handful of the surgeries. But that

is excellent news that all of his surgeries were

successful and i hope that they work for you.

When you say that your nerve was entrapped- was it

entrapped in muscles, ligaments...?

--- timeflies

wrote:

> ,

>

> It is nice to hear you are OK and that everything

> worked out for you. It

> must have been an exhausting two days - but it is

> over and you can go

> forward now and get well.

>

> You gave an excellent description of a nerve block -

> I hope others who want

> to know how this is done will refer back to your

> post for the description. I

> have had three nerve blocks - one unilateral, and

> the other was bilateral.

> My nerve blocks did not help me which is another

> reason why I was a

> candidate for surgery. Also Dr. Quesada is a

> wonderful compassionate doctor

> and goes out of his way to provide the best care. He

> is my pain management

> doctor - I have been going to him monthly for the

> last eighteen months.

>

> BUT I DO want to correct your statement ( " I know

> they haven't done many of

> them and from what I read some people didn't get too

> great of results from

> it " .)This is absolutely not true. Dr. Conway is

> doing on an average of five

> per week, and (I spoke with him on Monday), every

> one of them has been a

> success. I personally am in touch with six women who

> have had the surgery,

> and we all are doing great - on the road to

> recovery, and it is going to

> take time for the inflamed nerve to calm down, but

> we are all absolutely

> better. And without this surgery, there would have

> been no hope for

> recovery, because the nerve was entrapped, and there

> was no other way beside

> surgery for it to be released. So, I don't know

> where you got your

> information from, but Dr. Conway is doing a

> marvelous job in helping to heal

> and fix this awful condition. And I certainly would

> recommend it (and Dr.

> Conway), if other options did not work.

>

> In your case, I am glad you had the nerve blocks

> done, and you won't have to

> consider anything else.

>

> nne

>

>

>

>

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ]

On Behalf

> Of emsuc02

> Sent: Wednesday, September 19, 2007 5:20 PM

> To: VulvarDisorders

> Subject: [sPAM] Update on my PN

> specialist/nerve block trip

>

>

>

> Ok, I'll warn you that this is very long but there's

> a lot to tell and I've

> seen some people on

> here asking about PN blocks so I figured I'd give

> you a run-down of what

> happens.also

> that I'm posting it in two groups so sorry if you

> get it twice.

>

> Yesterday I got back from the pudendal specialists

> in New Hampshire (Conway

> and

> Quesada). Overall it was an ok experience but

> started off pretty badly.

> Monday I met with

> Dr. Conway and had the pelvic exam and emg test. I

> was so scared of the emg

> test that I

> wasn't sure that I could go through with it, but in

> the end I decided if I

> didn't I would

> always wonder. Just the thought of having a shock to

> my clitoris, which is

> where I have

> pain, not to mention the pressure from the thing

> they used was just

> terrifying me. But it

> actually didn't really hurt. The nurse confused me

> though because she said

> my nerves

> were conducting " beautifully " but then when I left

> the room she stopped me

> in the hall and

> said that two of the tests had numbers in the 4's

> and 5's and they should be

> below 2

> which meant that I have an entrapment on both sides.

> This just ABSOLUTELY

> scared me to

> death and I went outside with my mom and was just

> bawling and wanted to

> leave. It didn't

> make sense to me how I could have an entrapment on

> both sides but only have

> pain in the

> clitoris and no where else in my pelvis. I was

> convinced that they would say

> I need surgery

> and I was very scared because I know they haven't

> done many of them and from

> what I

> read some people didn't get too great of results

> from it. But my mom

> convinced me to go

> back inside and meet with Dr. Conway. Thank god I

> did because he said that

> I'm not a

> candidate for surgery and they don't think I need

> it. He said from the

> pelvic exam he

> could not find any spots that would indicate an

> entrapment- all my answers

> to his " does

> this hurt " questions were " no " . He said that he

> thinks my pudendal nerve is

> just irritated

> from maybe a tiny tiny entrapment that wouldn't

> require surgery or just from

> plain old

> irritation. He said that he really thinks several

> nerve blocks will greatly

> decrease my pain if

> not completely and that his other patients with my

> symptoms have seen good

> results from

> the blocks. He was very nice and patient and took

> the time to explain the

> pudendal nerve

> to me and my mom and answered all the questions we

> had- and he was also

> funny as

> nne said which was nice. When I asked why my

> emg results were the way

> they were

> if he didn't think I had an entrapment or needed

> surgery he said he couldn't

> really give me

> an answer besides the thoughts of tiny or former

> entrapment or irritation or

> maybe even

> an entrapment further up that he couldn't reach

> which we would have a better

> idea of after

> we see if the blocks work. But in the end he really

> thought the blocks would

> help.

>

> So then the next day I saw Dr. Quesada for the

> blocks. (and of course to

> make the whole 2

> days even worse, we were late for my appointment

> because we were lost and my

> mom got

> in an accident- no one was hurt- but I had to get a

> ride to the hospital for

> my appt. from

> someone who lived on the street there and that meant

> my mom wouldn't get to

> come in

> with me to hear what he had to say) So I had to

> explain the whole thing to

> Dr. Quesada-

> mainly aching/soreness pain with direct

> touch/pressure to the clitoris, and

> sometimes

> when sitting, no other symptoms. He said the same

> thing that Conway said

> that the

> blocks should help and that we'd do them 2 times,

> bilateral both times.

> After the 2nd

> time we should have a better idea of if more blocks

> will help. He warned me

> that I would

> be numb for the rest of the day/night and then my

> pain would probably come

> back for a

> week or so and then hopefully the blocks will kick

> in and start decreasing

> my pain. In

> response to some of my questions he said there is

> always a risk of infection

>

=== message truncated ===

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