Re: Newbie has questions/Emma

[Guest guest]

HI Emma-

Yes, I've been on HRT since I had the hystero in '84 so I'm good with that. Thanks for the suggestion though!!

Hugs-

Ivy

PS, love your name!

-- Re: Newbie has questions

Hi Ivy,

I am sorry you are going through this, I completely understand.

I too have similar symptoms, including the urinary ones. I

sometimes don't know which is worse!

Something about your intro note struck me. You had a hysterectomy a

long time ago - have you been on hormone replacement therapy in the

past, or now? Some doctors think this VVS stuff AND cystitis is

related to low levels of estrogen which can damage the sensitive

skin in the area.

If you aren't on hormonal therapy now, perhaps mention it to your

new doctor. Also, i see your in AZ. There is a medical clinic in

Tucson that specializes in hormonal therapies for the problems you

are having - Dr Vliet at http://www.herplace.com

Good luck Ivy. While this VVS/Vulvodynia thing is so hard to treat,

many, MANY women get better with time.

Best,Emma

> Hi everyone-

>

> I'm new here, my name is Ivy, I'm 47, married, originally from NY

and have

> lived in AZ for 17 years or so.

> I had a hysterectomy (complete) at the age of 24 due to adhesions.

>

> I've always had a problem with what I thought were yeast

infections and

> cramps. I was recently diagnosed with vulvar vestibulitis and

possibly

> lichen sclerosis. (She hasn't taken a biopsy yet because I'm

scared to do

> it). My gyno put me on some cortisone vaginal suppositories over a

month ago

> The first week I used them daily, then she told me to go to every

other day

> At first it seemed to help, but then "whatever this is" came back

and now

> nothing's helping. I saw the gyno again last week for the itching,

cramping

> and irritation and I also had another yeast infection then too.

She gave me

> diflucan and the next day I had the worst abdominal cramps I've

had in years

> It seemed to subside for a couple of days and now it's back again

and I

> took another diflucan today and I'm cramping again.

> I'm so tired of hurting and itching and cramping and so tired of

not getting

> any relief. On top of it, my gyno no longer takes my insurance and

I tried

> another gyno recently and she was horrible, I literally felt as if

I'd been

> raped and she told me there was nothing wrong with me. Worst

experience of

> my life (and I've had some bad ones...yes, I did report her).

> So now I don't know what to do anymore. I'm still on the cortisone

> suppositories and I can't afford to keep running back to the gyno

once a

> week and pay out of pocket. I see my PCP next week so I'll ask for

another

> gyno referral but I hate to leave mine, I've been with her 10

years and I

> adore her and her staff.

>

> So...I guess my questions are:

> 1) What does vestibulitis feel like and how do I know I have it?

> 2) Does it ever go away?

> 3) Is there anything naturopathic I can do to help myself?

> 4) Is cramping normal for having this?

>

> I'm sure I'll have a ton more questions as time goes on so I guess

that's it

> for now.

> Thank you for having me here. I'm very frustrated, scared and

angry because

> of the v.v.

> Hugs-

> Ivy

>

>

>

>

>

>

>

> Never miss a thing. Make Yahoo your homepage.

>

**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

Thanks for your cooperation! **

***

[Guest guest]

HI Emma-

Yes, I've been on HRT since I had the hystero in '84 so I'm good with that. Thanks for the suggestion though!!

Hugs-

Ivy

PS, love your name!

-- Re: Newbie has questions

Hi Ivy,

I am sorry you are going through this, I completely understand.

I too have similar symptoms, including the urinary ones. I

sometimes don't know which is worse!

Something about your intro note struck me. You had a hysterectomy a

long time ago - have you been on hormone replacement therapy in the

past, or now? Some doctors think this VVS stuff AND cystitis is

related to low levels of estrogen which can damage the sensitive

skin in the area.

If you aren't on hormonal therapy now, perhaps mention it to your

new doctor. Also, i see your in AZ. There is a medical clinic in

Tucson that specializes in hormonal therapies for the problems you

are having - Dr Vliet at http://www.herplace.com

Good luck Ivy. While this VVS/Vulvodynia thing is so hard to treat,

many, MANY women get better with time.

Best,Emma

> Hi everyone-

>

> I'm new here, my name is Ivy, I'm 47, married, originally from NY

and have

> lived in AZ for 17 years or so.

> I had a hysterectomy (complete) at the age of 24 due to adhesions.

>

> I've always had a problem with what I thought were yeast

infections and

> cramps. I was recently diagnosed with vulvar vestibulitis and

possibly

> lichen sclerosis. (She hasn't taken a biopsy yet because I'm

scared to do

> it). My gyno put me on some cortisone vaginal suppositories over a

month ago

> The first week I used them daily, then she told me to go to every

other day

> At first it seemed to help, but then "whatever this is" came back

and now

> nothing's helping. I saw the gyno again last week for the itching,

cramping

> and irritation and I also had another yeast infection then too.

She gave me

> diflucan and the next day I had the worst abdominal cramps I've

had in years

> It seemed to subside for a couple of days and now it's back again

and I

> took another diflucan today and I'm cramping again.

> I'm so tired of hurting and itching and cramping and so tired of

not getting

> any relief. On top of it, my gyno no longer takes my insurance and

I tried

> another gyno recently and she was horrible, I literally felt as if

I'd been

> raped and she told me there was nothing wrong with me. Worst

experience of

> my life (and I've had some bad ones...yes, I did report her).

> So now I don't know what to do anymore. I'm still on the cortisone

> suppositories and I can't afford to keep running back to the gyno

once a

> week and pay out of pocket. I see my PCP next week so I'll ask for

another

> gyno referral but I hate to leave mine, I've been with her 10

years and I

> adore her and her staff.

>

> So...I guess my questions are:

> 1) What does vestibulitis feel like and how do I know I have it?

> 2) Does it ever go away?

> 3) Is there anything naturopathic I can do to help myself?

> 4) Is cramping normal for having this?

>

> I'm sure I'll have a ton more questions as time goes on so I guess

that's it

> for now.

> Thank you for having me here. I'm very frustrated, scared and

angry because

> of the v.v.

> Hugs-

> Ivy

>

>

>

>

>

>

>

> Never miss a thing. Make Yahoo your homepage.

>

**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

Thanks for your cooperation! **

***