RE: Debbie: Re: Introducing myself

[Guest guest]

Debbie,

What type of pain medication do you take? My hepatologist is very careful

about the meds I'm taking and right now I'm not on any pain meds. So far the

pain has been tolerable though, but I'm concerned about future pain I may

have.

Marie

PSC Stage 2; AIH; UC; J-pouch

>

>

>I've been lucky, too. My boss is a breast cancer survivor and a

>recovering alcoholic; she's also a former nurse, and she's been very

>understanding. I've been lucky with my co-workers' acceptance of my

>disease, but I've been careful about how much I let them know. I

>don't feel comfortable letting them know about the pain medication I

>take. Since I've had chronic problems for years, I've developed a

>high tolerance for pain meds. My PSC is a novelty to most of my

>coworkers; I don't think they, or most of my family members,

>recognize the seriousness of the disease. But my doctor agrees that

>there's a clear stigma against those of us that have to take regular

>high dose pain medication just to get out of bed in the morning - and

>it's best that we keep pain management to ourselves.

>

>Debbie in Seattle

>PSC stage 2, Diagnosed 1999

>

>

>

> >

> > Hello Everyone,

> >

> > I just wanted to introduce myself and was hoping to get some

> > suggestions. I am a 30 yr old student in Chicago. I just got

>diagnosed

> > with PSC. I was diagnosed with UC middle of last year. Wife and I

>are

> > going to Mayo to see Dr Lindor to seek a second opinion. Not that we

> > think he will say that I have been misdiagnosed but just to see

>what he

> > has to say about management and prognosis.

> >

> >

> > * This has come as quite a shock to me - from feeling perfectly

> > healthy to being told that I have a progressive condition. How did

>you

> > guys manage the psychological aspects? I have been feeling very

>down -

> > probably depressed. Wife is handling it much better and has been

>trying

> > to cheer me up. I know whatever the outcome, feeling depressed is

>not

> > the right thing to do.

> >

> > * The other thing I wanted opinions about is how should I break

>this

> > to my parents. I haven't told them about this yet. They are in

>India,

> > already freaked out about my UC.

> >

> > Thanks for all the help. You have been a great source of

>information for

> > us. Hope the researchers can find an effective treatment for this

>soon.

> >

> > Puneet

> > 30 yrs, UC dx 2006, PSC dx 2007

> >

>

>

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