RE: To TIGGER - Re: NEW & have NO IDEA where to begin...from Kandi

[Guest guest]

Khandi,

I just share what I can and hope others to the same because what works for

one doesn't necessarily work for someone else.

I'll tell you it's been a rough year. I've learned to have more patience

and understanding. well, I'm not that great at the patience thing.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Kandi J.

Kieffer

Sent: Saturday, March 15, 2008 3:06 PM

To: Fibromyalgia_Support_Group

Subject: To TIGGER - Re: NEW & have NO IDEA where to begin...from

Kandi

Hi Tigger! You guys have been SO GREAT! I can't begin to tell you how

comforting this experience has been so far. I'd love to read ALL the

posts, but that would be impossible...at least it is with a 2 yr. old

in the house . I've been reading what I can, trying to get to know

everybody. Seems like you've been through a lot. My thoughts are with

you & I hope you have some better days ahead. I LOVED what you said in

a recent post, in reference to the " not much support, seems like a

clique " thread...that " We suffer from pain, fatigue, frustration and

my favorite, the desire to choke the life out of most doctors. " That

made me laugh! I think it should be on a bumper sticker...

As for my remedies...I'm on a large amount of whole food supplements

(from Standard Process). I've found them to work better for me than

the synthetic vitamins. I noticed an improvement in my overall energy

after a few weeks on them. It's still far from normal, but definitely

improved. I also see a wonderful chiropractor who does trigger point

massage that has also helped me a great deal. Of course this isn't for

everyone, but I swear by it. I also have a lot of problems in my neck

& shoulder areas. I have a spot in my neck & a spot between my

shoulder blades in my spine that is always out of whack, so I go in

every couple weeks to get those adjusted. Some days I walk out of his

office feeling all light & fluffy! Some days nothing helps, but I have

been known to down a Red Bull just to get a few things done. My

chiropractor thinks they're liquid evil, but sometimes they make me

feel better for a while, so as great as he is, he can bite me. As

for pain, I've been lucky so far to not have horribly debilitating

pain but because of my esophageal & stomach problems I'm not allowed

(as per my PCP) to take any NSAIDS (because I get really bad

esophagitis from just a couple pills, it's ridiculous), so if I have

really bad flares, like in winter sometimes, my PCP will usually call

me in a few refills of Hydrocodone if I need it. I've found that an

ice pack works pretty good on headaches...esp. the ones that pull the

whole way around your head & down your neck. I try to stretch a little

every day too. Seems to give me a little boost & can keep some of the

bad muscle pains at bay for a while. Of course, that's me...don't want

anybody to hurt themselves!

Oh, AND, I just broke down & bought a new memory foam mattress! Just

got it today, so I'll let everyone know if it helps. I've heard good

things about them for people with fibro, so... " fingers crossed "

Hugs,

~Kandi

>

> Hi hon,

>

> Sorry you have to be here, it stinks feeling pain and fatigue all

the time.

> What I can recommend for you is to read everything you can here and

ask any

> and all questions you have. There is no stupid question. We've all

been

> where you are.

>

>

>

> The other thing I have to say is, jump in with both feet. Ask

questions,

> answer what you can or want to. If you aren't heard the first time, try

> again and put it in caps if no one is listening. Don't give up

because some

> of us flare at the same time. actually a lot of us do.

>

>

>

> Have you found anything that helps you with pain and/or fatigue?

I'm always

> looking for something to help.

>

>

>

> Tigger (Ruth) in Rhode Island