Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Jonathon and list- As list owner I feel that I need to make sure everyone's needs are being met here on the list. Mosaic is a support group for all parents of autistic children and I would hate to think that someone will sign off the list because they aren't doing enough. We all have different situations and we have to be sensitive to this fact. Mosaic now has over 75 people signed on and while many are interested in biomedical treatments others are here simply for support. I speak to many parents about this over the phone and I know for a fact that some parents are struggling with trying to keep to the diet. Some have abandoned it for a later date. All of them, simply by being on this list know that the diet works fabulous for some kids. But it doesn't work fabulous for all and in some households, for what ever reason, it is impossible to maintain. I know, that am! ong nearly everyone I communicate with privately that no one feels they are doing a perfect job. And I know that the few who think they are doing a perfect job probably aren't. I'm sorry I was so harsh to you Jonathon but Kathy's original question was about the experiences people have had with a particular drug family. It was not a question about doing the diet or doing drugs. It would not feel safe to respond to something on this list if a parent was simply trying to be honest and someone else jumped in and told them what they should be doing. At Halloween I wrote about a party at 's school and how pleased I was that it was gfcf. I was pleased that someone brought french fries in for the kids yet when writing about it on this list I felt the need to ask that no one start lecturing me about oils. I should not feel this way about a support list. Because I am one of the more active people on this list I certainly feel comfortable defending myself, but the parent who doesn't feel as comfortable should not fear that they will be kindly "criticized" because they aren't doing what someone else is doing. Life is tough enough. So please accept my apologies for my gruffness and lets all try to support each other with sensitivity. Barb Quote Link to comment Share on other sites More sharing options...
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