Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 JoAnne- I would never feel comfortable enough with 's " complicated " allergies to advise you here and I would think many of our parents are feeling the same, especially since you are one of the " pros " regarding the diet. You might want to think abut seeing a professional who is also well versed in autism. The two people I am thinking of are Dr. Cartaxo who I spoke with before Christmas at the recommendation of many of our Mosaic parents. They can tell you about her much better than I but I did get a sense that she'd be good at dealing with ph's dietary issues. We are going to take to see her. The other person who's name I can't remember is that nutritionist/nurse (someone jump in here please) that organizes the Dan conferences for Dr. Rimland. And a third person you could consider is Dr. Hoffman in NYC who is a nutritionist and works with many autistic kids. (We saw him for secretin). That is the doctor I left for Dr. Hift. I would have no hesitation recommending his office for nutritional advice. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 JoAnne- I would never feel comfortable enough with 's " complicated " allergies to advise you here and I would think many of our parents are feeling the same, especially since you are one of the " pros " regarding the diet. You might want to think abut seeing a professional who is also well versed in autism. The two people I am thinking of are Dr. Cartaxo who I spoke with before Christmas at the recommendation of many of our Mosaic parents. They can tell you about her much better than I but I did get a sense that she'd be good at dealing with ph's dietary issues. We are going to take to see her. The other person who's name I can't remember is that nutritionist/nurse (someone jump in here please) that organizes the Dan conferences for Dr. Rimland. And a third person you could consider is Dr. Hoffman in NYC who is a nutritionist and works with many autistic kids. (We saw him for secretin). That is the doctor I left for Dr. Hift. I would have no hesitation recommending his office for nutritional advice. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 JoAnne- I would never feel comfortable enough with 's " complicated " allergies to advise you here and I would think many of our parents are feeling the same, especially since you are one of the " pros " regarding the diet. You might want to think abut seeing a professional who is also well versed in autism. The two people I am thinking of are Dr. Cartaxo who I spoke with before Christmas at the recommendation of many of our Mosaic parents. They can tell you about her much better than I but I did get a sense that she'd be good at dealing with ph's dietary issues. We are going to take to see her. The other person who's name I can't remember is that nutritionist/nurse (someone jump in here please) that organizes the Dan conferences for Dr. Rimland. And a third person you could consider is Dr. Hoffman in NYC who is a nutritionist and works with many autistic kids. (We saw him for secretin). That is the doctor I left for Dr. Hift. I would have no hesitation recommending his office for nutritional advice. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Excellent input! The DAN! coordinator is Maureen McDonnell, RN. I love your ideas and I will follow up. Thanks, JoAnne BarbStrate@... wrote: > JoAnne- > I would never feel comfortable enough with 's " complicated " allergies > to advise you here and I would think many of our parents are feeling the > same, especially since you are one of the " pros " regarding the diet. You > might want to think abut seeing a professional who is also well versed in > autism. The two people I am thinking of are Dr. Cartaxo who I spoke with > before Christmas at the recommendation of many of our Mosaic parents. They > can tell you about her much better than I but I did get a sense that she'd be > good at dealing with ph's dietary issues. We are going to take to > see her. The other person who's name I can't remember is that > nutritionist/nurse (someone jump in here please) that organizes the Dan > conferences for Dr. Rimland. And a third person you could consider is Dr. > Hoffman in NYC who is a nutritionist and works with many autistic kids. (We > saw him for secretin). That is the doctor I left for Dr. Hift. I would > have no hesitation recommending his office for nutritional advice. > Barb > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Excellent input! The DAN! coordinator is Maureen McDonnell, RN. I love your ideas and I will follow up. Thanks, JoAnne BarbStrate@... wrote: > JoAnne- > I would never feel comfortable enough with 's " complicated " allergies > to advise you here and I would think many of our parents are feeling the > same, especially since you are one of the " pros " regarding the diet. You > might want to think abut seeing a professional who is also well versed in > autism. The two people I am thinking of are Dr. Cartaxo who I spoke with > before Christmas at the recommendation of many of our Mosaic parents. They > can tell you about her much better than I but I did get a sense that she'd be > good at dealing with ph's dietary issues. We are going to take to > see her. The other person who's name I can't remember is that > nutritionist/nurse (someone jump in here please) that organizes the Dan > conferences for Dr. Rimland. And a third person you could consider is Dr. > Hoffman in NYC who is a nutritionist and works with many autistic kids. (We > saw him for secretin). That is the doctor I left for Dr. Hift. I would > have no hesitation recommending his office for nutritional advice. > Barb > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Excellent input! The DAN! coordinator is Maureen McDonnell, RN. I love your ideas and I will follow up. Thanks, JoAnne BarbStrate@... wrote: > JoAnne- > I would never feel comfortable enough with 's " complicated " allergies > to advise you here and I would think many of our parents are feeling the > same, especially since you are one of the " pros " regarding the diet. You > might want to think abut seeing a professional who is also well versed in > autism. The two people I am thinking of are Dr. Cartaxo who I spoke with > before Christmas at the recommendation of many of our Mosaic parents. They > can tell you about her much better than I but I did get a sense that she'd be > good at dealing with ph's dietary issues. We are going to take to > see her. The other person who's name I can't remember is that > nutritionist/nurse (someone jump in here please) that organizes the Dan > conferences for Dr. Rimland. And a third person you could consider is Dr. > Hoffman in NYC who is a nutritionist and works with many autistic kids. (We > saw him for secretin). That is the doctor I left for Dr. Hift. I would > have no hesitation recommending his office for nutritional advice. > Barb > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 No test is conclusive. There are false positives and negatives. A small amount of a food in rotation may or may not provoke a level of immune response that you or your child would notice. Our son tested positive to bananas, which he hates, so no problem. If the effect is not noticeable, is it a problem? What is the sound of one hand clapping? Why were so many true celiacs undiagnosed in past years? There was not a specific enough blood test until some of the IgG and IgE tests were put into use. The recommendation from our allergist is to test a small amount of the food with the person after an elimination diet (restricted to only the foods you know to be perfectly ok) for about ten days. (She administers small vials of the food extract on the premises of the hospital just in case the person goes into allergic shock.) If you see no effect, you can then feed a meal of the stuff in every form you can. For example, when we get around to trying pork, we'll do bacon, pork chop, and sausages all in the course of a day. Compare the person's health status or performance (something measurable, like # of times shrieking, responding to name, whatever) from the elimination period and following the test. Track the child for up to a day to note any change, for example, in sleep. [Fwd: allergy testing] > Listmates, my post to the gf list is below. Any help for me here? > Happy New Year > Thanks, JoAnne > > > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms > Shop Safely Online Without a Credit Card http://www.rocketcash.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 No test is conclusive. There are false positives and negatives. A small amount of a food in rotation may or may not provoke a level of immune response that you or your child would notice. Our son tested positive to bananas, which he hates, so no problem. If the effect is not noticeable, is it a problem? What is the sound of one hand clapping? Why were so many true celiacs undiagnosed in past years? There was not a specific enough blood test until some of the IgG and IgE tests were put into use. The recommendation from our allergist is to test a small amount of the food with the person after an elimination diet (restricted to only the foods you know to be perfectly ok) for about ten days. (She administers small vials of the food extract on the premises of the hospital just in case the person goes into allergic shock.) If you see no effect, you can then feed a meal of the stuff in every form you can. For example, when we get around to trying pork, we'll do bacon, pork chop, and sausages all in the course of a day. Compare the person's health status or performance (something measurable, like # of times shrieking, responding to name, whatever) from the elimination period and following the test. Track the child for up to a day to note any change, for example, in sleep. [Fwd: allergy testing] > Listmates, my post to the gf list is below. Any help for me here? > Happy New Year > Thanks, JoAnne > > > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms > Shop Safely Online Without a Credit Card http://www.rocketcash.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 No test is conclusive. There are false positives and negatives. A small amount of a food in rotation may or may not provoke a level of immune response that you or your child would notice. Our son tested positive to bananas, which he hates, so no problem. If the effect is not noticeable, is it a problem? What is the sound of one hand clapping? Why were so many true celiacs undiagnosed in past years? There was not a specific enough blood test until some of the IgG and IgE tests were put into use. The recommendation from our allergist is to test a small amount of the food with the person after an elimination diet (restricted to only the foods you know to be perfectly ok) for about ten days. (She administers small vials of the food extract on the premises of the hospital just in case the person goes into allergic shock.) If you see no effect, you can then feed a meal of the stuff in every form you can. For example, when we get around to trying pork, we'll do bacon, pork chop, and sausages all in the course of a day. Compare the person's health status or performance (something measurable, like # of times shrieking, responding to name, whatever) from the elimination period and following the test. Track the child for up to a day to note any change, for example, in sleep. [Fwd: allergy testing] > Listmates, my post to the gf list is below. Any help for me here? > Happy New Year > Thanks, JoAnne > > > > Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every month. > http://www.egroups.com/community/MosaicMoms > Shop Safely Online Without a Credit Card http://www.rocketcash.com Quote Link to comment Share on other sites More sharing options...
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