Re: NEW TO GROUP - welcome

[Guest guest]

I am going to University of Michigan. However, my doctor at the Liver Transplant Clinic is moving to Cleveland Clinic and I will be assigned to another doctor. I really liked my doctor. I told him I would go to Cleveland Clinic if need be. My husband's family lives there so that would be an option. but I don't want to go through all the rounds of testing again. So I will wait to see what happens with new Dr. I live in Tecumseh which is southwest of Ann Arbor. It is reassuring to know that there are other people with PSC and WOMEN. I thought I was the only one. I just knew of Walter Payton and a man who was in the hospital when I was there for a Crohn's flare. I am glad to know that the transplant isn't the end of the road. Since I was diagnosed until last March I did not have any physical problems with the PSC (Crohns/Colitis another story!!) but I always felt that it was a time bomb waiting to go

off. But I feel so much better to hear the stories like yourself and athon who have come through to the other side. It has given me a whole new lease on life!!! I think breaking my foot was a blessing also. As it showed me what I need to do in my home to make it more convenient when I have the transplant. We live in an old two story home with small rooms. Also, that I really need to get my muscle mass built up in my uppoer body to be able to lift myself, etc. Thanks for your response!! Patticmp12305@... wrote: Patti I also live in Michigan, about 45 miles north of Ann Arbor. We are not the only Michiganders in this group. I had my transplant in 2002 at U of M. After going 21 years with PSC and UC. I remember the ITCH. I had UV/B light treatments at the hospital and that took the itching away after about 5 weeks of visits, but there are also medications that others have used to relieve the maddening itch. I think that is the worst thing about this disease. I always had a body scrub brush to scratch with. If you get one with stiff bristles and a long handle, you can reach every spot that itches. It doesn't break the skin so there is less chance of infection and cuts. Where are

you going for medical care? U of M, or Ford? Or are you going out of state? Life gets easier to handle when you can ask questions and get real answers and encouragement from people who are traveling similar paths. Hope the heat goes easy on you and your broken foot. Take Care MizKit See what's free at AOL.com.

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

[Guest guest]

I am going to University of Michigan. However, my doctor at the Liver Transplant Clinic is moving to Cleveland Clinic and I will be assigned to another doctor. I really liked my doctor. I told him I would go to Cleveland Clinic if need be. My husband's family lives there so that would be an option. but I don't want to go through all the rounds of testing again. So I will wait to see what happens with new Dr. I live in Tecumseh which is southwest of Ann Arbor. It is reassuring to know that there are other people with PSC and WOMEN. I thought I was the only one. I just knew of Walter Payton and a man who was in the hospital when I was there for a Crohn's flare. I am glad to know that the transplant isn't the end of the road. Since I was diagnosed until last March I did not have any physical problems with the PSC (Crohns/Colitis another story!!) but I always felt that it was a time bomb waiting to go

off. But I feel so much better to hear the stories like yourself and athon who have come through to the other side. It has given me a whole new lease on life!!! I think breaking my foot was a blessing also. As it showed me what I need to do in my home to make it more convenient when I have the transplant. We live in an old two story home with small rooms. Also, that I really need to get my muscle mass built up in my uppoer body to be able to lift myself, etc. Thanks for your response!! Patticmp12305@... wrote: Patti I also live in Michigan, about 45 miles north of Ann Arbor. We are not the only Michiganders in this group. I had my transplant in 2002 at U of M. After going 21 years with PSC and UC. I remember the ITCH. I had UV/B light treatments at the hospital and that took the itching away after about 5 weeks of visits, but there are also medications that others have used to relieve the maddening itch. I think that is the worst thing about this disease. I always had a body scrub brush to scratch with. If you get one with stiff bristles and a long handle, you can reach every spot that itches. It doesn't break the skin so there is less chance of infection and cuts. Where are

you going for medical care? U of M, or Ford? Or are you going out of state? Life gets easier to handle when you can ask questions and get real answers and encouragement from people who are traveling similar paths. Hope the heat goes easy on you and your broken foot. Take Care MizKit See what's free at AOL.com.

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.