Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Hi Steph, > > The terms incurable or curable don't really apply to > true CFS - at least > not currently. Not enough is understood about the > illness. I assume the " real " one is where they haven't found another real disease. > > > > I certainly did not mean to imply that having CFS is > hopeless. Proactive > and aggressive management of the illness is critical > to success. If one > rolls over and gives up, one really is in a bad > spot. However, at this > point, treating the illness is at the level of > management and treatment > of symptoms. Just as Baab stated - she tooks steps > with her diet which > resulted in a significant improvement. That is what > I mean by > " management " . I consider the improvement and in fact disappearance of the CFS to have indicated that I had realized that I didn't have something called CFS but I had Celiac Disease. It wasn't management. > And finally, what was I trying to say regarding > CFS-MS-pudendal nerve is > quite simple: CFS impacts the central system. It is > quite reasonable to > postulate that vulvodynia and vestibulodynia could > be triggered by that > CNS impact. Yes, however, Celiac Disease thoroughly and seriously impacts the nervous system, central and peripheral and could be the cause of vulvodynia and vestibulodynia. It seems to me that one might accept the Disease that causes fatique and Nervous System damage and that more is known about (albeit not enough) than one that is " not known much about " at least to the degree that one would have a simple stool test at an accurate and well informed lab to rule out gluten sensitivity. If that is the problem it is mostly easily cured--fatique and all the other effects of it without meds. If it has gone untreated for too long one can find that she has permanent nerve damage. If interested in Neuropathy and Celiac Disease people can google " Latov Neuropathy Celiac " and find many articles about a Dr. Latov, neurologist, and the work he has done in this area with others. He is at Cornell. Arline ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
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