Re: medical records question (warning - long!)

[Guest guest]

Why is Dr. telling you you can't be cured when you are still

in the stage of trying medications? That doesn't even make sense!

Lots and lots of women who achieve symptom relief on meds get off the

meds eventually, and she knows this. I stopped seeing Dr. in

2002 and went to see Dr. in Rochester, NY. He told me I

would get better, and I did (through a combo of meds, surgery, and

pt). Dr. seems to have made a conscious decision to tell her

patients they are incurable. Why? I think it's about celebrity and

self-importance. Doctors who treat the incurable are, perhaps,

deemed more noble or important. It is not the first time I have

encountered this. When I had chronic fatigue, a CFS " expert " told me

I would never be well and offered to write me a disability letter.

That was 15+ years ago and fatigue is no longer an issue for me

thanks to some doctors who TREATED me rather than naysaying and

discouraging me. I am a big fan of Dr. . In Boston, there is

also Dr. Marjorie Green at Mt. Auburn who I have not seen, but I have

seen her speak and she seemed good and not caught up in image and

status, etc. Holly Herman is a great pt in Boston. I lived in RI

for 10 years and don't anymore, but there is also--in Providence--Dr.

Lori Boardman at Women and Infants' Hospital. She's a vulvar

specialist. I found her rather late in the game (after my surgery)

but quite liked her. GOOD LUCK!

Lia

>

> Ladies,

> Thanks SO much for your replies!! I feel so much better. I still am

> not looking forward to seeing and Margesson today but don't

> feel so alone. I am a person who really HATES not being liked and I

> try really hard to make everyone happy (another problem I have!) so

I

> am very strongly affected by criticism. I can take it if it's

> constructive but in this case, it's just plain mean and unnecessary.

>

> You know, on some of the notes, when I refuse a specific medication

> because of negative side effects, they do note this, but usually

with

> a qualifier like " Patient reports she stopped taking lyrica due to

> side effects, but is not willing to give a longer trial. Explained

to

> patient once again that she needs to be willing to work with us and

> that things take time to work. Patient cannot accept that that her

> condition cannot be cured.Had to spend more than 50% of today's

visit

> on answering patient's long list of questions and explaning to her

> thtat there aren't always answers " .

>

> Yeah. OK, I'm not a moron, I know it can't be cured - but I've

been

> going there for 15 months and they can't even get me under control!

I

> may write a letter after tomorrow's appointment if I have some time

> to process and calm my thoughts down. I am just sick of being

treated

> like a child who needs to be controlled and dumbed down to rather

> than an equal partner in a health care team. I definitely will not

be

> releasing these records to any future physicians as it surely

doesn't

> make me look very nice to work with. I'm actually very nice, I'm

not

> rude or mean or anything, I just ask a lot of questions and bring

up

> alternative treatments.

>

> I am glad that I am not the only one who has had a bad experience

> with 's practice. I'm not sure if anyone else could help me

> anymore than they have, but I feel like someone else might treat me

> better as a patient. We'll see how tomorrow goes! Thanks again SO

> much for your replies. I talked to my husband and he said all the

> same stuff, but it's different to hear it from others who have been

> through it. =)

>

> Lia, who do you see now if Dr. wasn't helpful? nne,

how

> about you? I know you have a pain specialist, but I mean for GYN.

> care/vulvar skin issues?

>

> Melinda

>