Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi . Welcome!!!! My son, , was diagnosed with a hearing loss at the age of 5 2 years ago. We are in South Jersy and we go to Children's for audiology/ENT. Where are you? Cherie Ian and R Collin wrote: Hi all, My name is and I live in the suburbs of Philadelphia. My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi, , Welcome to the list! You have found a good place to ask questions and get information. My son was also identified through newborn screening, and his severe loss was confirmed at one month. Not my best memories of his infancy!! I was actually laid off during my maternity leave, and decided I couldn't handle a job and his care, so stayed home. But I know other people who went back to work and found great daycare that was willing to learn about how to care for infants with hearing loss, and I bet you can too. For those babies who are in daycare, I believe the specialists that provide services to age three go right to the daycare to work with the baby, and the caregivers. And otherwise, with infants it's really about loving them. Also, you would want to make sure that the caregivers know how to communicate with your child, whether it's sign or speech or both. That may sway where you're willing to leave your child. Before I totally inundate you with info, I'll leave it at that. I'm sure others will chime in! Feel free to ask more questions as they come to you; someone is always here -- Take care, Stefanie Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote: > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) > hearing loss in both ears last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple families whose children had > failed at the hospital and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the more involved testing that > our dear girl couldn't hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all > imagine. I hope to learn a lot from all of you as we move ahead and do our > best to make sure our sweet little one has every advantage we can provide for > her. > > My first question - I am currently on maternity leave and am lucky enough to > be able to take 6 months off from work. I am due to return to my job at the > end of September. However, as I learn more and more, I am starting to wonder > if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a > good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi, , Welcome to the list! You have found a good place to ask questions and get information. My son was also identified through newborn screening, and his severe loss was confirmed at one month. Not my best memories of his infancy!! I was actually laid off during my maternity leave, and decided I couldn't handle a job and his care, so stayed home. But I know other people who went back to work and found great daycare that was willing to learn about how to care for infants with hearing loss, and I bet you can too. For those babies who are in daycare, I believe the specialists that provide services to age three go right to the daycare to work with the baby, and the caregivers. And otherwise, with infants it's really about loving them. Also, you would want to make sure that the caregivers know how to communicate with your child, whether it's sign or speech or both. That may sway where you're willing to leave your child. Before I totally inundate you with info, I'll leave it at that. I'm sure others will chime in! Feel free to ask more questions as they come to you; someone is always here -- Take care, Stefanie Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote: > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) > hearing loss in both ears last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple families whose children had > failed at the hospital and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the more involved testing that > our dear girl couldn't hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all > imagine. I hope to learn a lot from all of you as we move ahead and do our > best to make sure our sweet little one has every advantage we can provide for > her. > > My first question - I am currently on maternity leave and am lucky enough to > be able to take 6 months off from work. I am due to return to my job at the > end of September. However, as I learn more and more, I am starting to wonder > if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a > good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi, , Welcome to the list! You have found a good place to ask questions and get information. My son was also identified through newborn screening, and his severe loss was confirmed at one month. Not my best memories of his infancy!! I was actually laid off during my maternity leave, and decided I couldn't handle a job and his care, so stayed home. But I know other people who went back to work and found great daycare that was willing to learn about how to care for infants with hearing loss, and I bet you can too. For those babies who are in daycare, I believe the specialists that provide services to age three go right to the daycare to work with the baby, and the caregivers. And otherwise, with infants it's really about loving them. Also, you would want to make sure that the caregivers know how to communicate with your child, whether it's sign or speech or both. That may sway where you're willing to leave your child. Before I totally inundate you with info, I'll leave it at that. I'm sure others will chime in! Feel free to ask more questions as they come to you; someone is always here -- Take care, Stefanie Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote: > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) > hearing loss in both ears last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple families whose children had > failed at the hospital and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the more involved testing that > our dear girl couldn't hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all > imagine. I hope to learn a lot from all of you as we move ahead and do our > best to make sure our sweet little one has every advantage we can provide for > her. > > My first question - I am currently on maternity leave and am lucky enough to > be able to take 6 months off from work. I am due to return to my job at the > end of September. However, as I learn more and more, I am starting to wonder > if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a > good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Six months! How lucky! I envy that! Yes, your daugther can go to daycare. As a former single working mom, mine were in day care, including my deaf 13 year old. It worked out fine, really. If your daugther does turn out to have a hearing loss, I need to tell you though I think its little comfort - you have caught it SOOO early and you are that much further ahead. I am a still recent transplant to PA, also. My family and I are in Mechanicsburg, suburb of burg and my daughter attends Western PA school for the deaf, a very good residential school, in PGH, which she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that that is somethng you need to be worrying about - I am mostly telling you that because I have been pleasantly surprised at the resources PA has to offer, which includes this school. The choice for Hayley to attend this school was my family's but mostly Hayley's. More on that some other time. Welcome to the list, and best wishes. I know you are feeling lost and overwhelmed now, but you've come to the right place, and we are here to help you however we can. > My name is and I live in the suburbs of Philadelphia. > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Six months! How lucky! I envy that! Yes, your daugther can go to daycare. As a former single working mom, mine were in day care, including my deaf 13 year old. It worked out fine, really. If your daugther does turn out to have a hearing loss, I need to tell you though I think its little comfort - you have caught it SOOO early and you are that much further ahead. I am a still recent transplant to PA, also. My family and I are in Mechanicsburg, suburb of burg and my daughter attends Western PA school for the deaf, a very good residential school, in PGH, which she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that that is somethng you need to be worrying about - I am mostly telling you that because I have been pleasantly surprised at the resources PA has to offer, which includes this school. The choice for Hayley to attend this school was my family's but mostly Hayley's. More on that some other time. Welcome to the list, and best wishes. I know you are feeling lost and overwhelmed now, but you've come to the right place, and we are here to help you however we can. > My name is and I live in the suburbs of Philadelphia. > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Six months! How lucky! I envy that! Yes, your daugther can go to daycare. As a former single working mom, mine were in day care, including my deaf 13 year old. It worked out fine, really. If your daugther does turn out to have a hearing loss, I need to tell you though I think its little comfort - you have caught it SOOO early and you are that much further ahead. I am a still recent transplant to PA, also. My family and I are in Mechanicsburg, suburb of burg and my daughter attends Western PA school for the deaf, a very good residential school, in PGH, which she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that that is somethng you need to be worrying about - I am mostly telling you that because I have been pleasantly surprised at the resources PA has to offer, which includes this school. The choice for Hayley to attend this school was my family's but mostly Hayley's. More on that some other time. Welcome to the list, and best wishes. I know you are feeling lost and overwhelmed now, but you've come to the right place, and we are here to help you however we can. > My name is and I live in the suburbs of Philadelphia. > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 What audiologist do you see? They're all excellent! I have 3 kids and they've all had hearing issues to some extent, so we know the audiologists very well at this point! You'll get through all this. Trust me, you'll be an expert before you know it. Stick around here and you'll learn a lot. This is an awesome bunch of mommies!!!!! Cherie ian_and_jen wrote: Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 What audiologist do you see? They're all excellent! I have 3 kids and they've all had hearing issues to some extent, so we know the audiologists very well at this point! You'll get through all this. Trust me, you'll be an expert before you know it. Stick around here and you'll learn a lot. This is an awesome bunch of mommies!!!!! Cherie ian_and_jen wrote: Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 What audiologist do you see? They're all excellent! I have 3 kids and they've all had hearing issues to some extent, so we know the audiologists very well at this point! You'll get through all this. Trust me, you'll be an expert before you know it. Stick around here and you'll learn a lot. This is an awesome bunch of mommies!!!!! Cherie ian_and_jen wrote: Thanks for the welcome, Cherie! We are going to CHOP for all of our hearing-related appts. Carys (my daughter) is being fitted with her first set of hearing aids in a few weeks. I can't imagine a 2 month old with a set of hearing aids, but we'll see how it goes. This is all just a lot to absorb right now - I'm sure you understand. > Hi all, > > My name is and I live in the suburbs of Philadelphia. > > My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. > > We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. > > My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? > > I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi and congrats on the birth of your daughter! I was in your same situation 2 years ago and I know exactly how you feel. It was a horrible time for us when it should have been wonderful! But it DOES get easier. My one piece of advice is to just enjoy that little girl of yours and try not to stress just yet over her hearing loss. She's still so young! Does your daughter seem to react to sounds? I remember I used to always open a can of soda near Lucy to see if her eyes would blink or she would startle. I had all kinds of tests. If she's startling to some sounds, that's a good thing. Mother knows best!! Doctors don't always know best! I will spare you our saga which continues to this day but it does get better and it does get easier. Keep getting her hearing tested even though that is very hard to do as the babies get older. Good luck and if you have any questions let me know. Alison mom to Lucy - 2 years old - mild-moderate loss --- Ian and R Collin wrote: > Hi all, > > My name is and I live in the suburbs of > Philadelphia. > > My younger daughter is 1 month old and was diagnosed > with severe (maybe worse) hearing loss in both ears > last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple > families whose children had failed at the hospital > and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the > more involved testing that our dear girl couldn't > hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this > news, as I'm sure you can all imagine. I hope to > learn a lot from all of you as we move ahead and do > our best to make sure our sweet little one has every > advantage we can provide for her. > > My first question - I am currently on maternity > leave and am lucky enough to be able to take 6 > months off from work. I am due to return to my job > at the end of September. However, as I learn more > and more, I am starting to wonder if it will even be > possible for my daughter to go to daycare. Any > input? > > I look forward to learning more about your kids > and hope I will someday be a good resource for > others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones > from your PC and save big. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi and congrats on the birth of your daughter! I was in your same situation 2 years ago and I know exactly how you feel. It was a horrible time for us when it should have been wonderful! But it DOES get easier. My one piece of advice is to just enjoy that little girl of yours and try not to stress just yet over her hearing loss. She's still so young! Does your daughter seem to react to sounds? I remember I used to always open a can of soda near Lucy to see if her eyes would blink or she would startle. I had all kinds of tests. If she's startling to some sounds, that's a good thing. Mother knows best!! Doctors don't always know best! I will spare you our saga which continues to this day but it does get better and it does get easier. Keep getting her hearing tested even though that is very hard to do as the babies get older. Good luck and if you have any questions let me know. Alison mom to Lucy - 2 years old - mild-moderate loss --- Ian and R Collin wrote: > Hi all, > > My name is and I live in the suburbs of > Philadelphia. > > My younger daughter is 1 month old and was diagnosed > with severe (maybe worse) hearing loss in both ears > last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple > families whose children had failed at the hospital > and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the > more involved testing that our dear girl couldn't > hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this > news, as I'm sure you can all imagine. I hope to > learn a lot from all of you as we move ahead and do > our best to make sure our sweet little one has every > advantage we can provide for her. > > My first question - I am currently on maternity > leave and am lucky enough to be able to take 6 > months off from work. I am due to return to my job > at the end of September. However, as I learn more > and more, I am starting to wonder if it will even be > possible for my daughter to go to daycare. Any > input? > > I look forward to learning more about your kids > and hope I will someday be a good resource for > others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones > from your PC and save big. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi and congrats on the birth of your daughter! I was in your same situation 2 years ago and I know exactly how you feel. It was a horrible time for us when it should have been wonderful! But it DOES get easier. My one piece of advice is to just enjoy that little girl of yours and try not to stress just yet over her hearing loss. She's still so young! Does your daughter seem to react to sounds? I remember I used to always open a can of soda near Lucy to see if her eyes would blink or she would startle. I had all kinds of tests. If she's startling to some sounds, that's a good thing. Mother knows best!! Doctors don't always know best! I will spare you our saga which continues to this day but it does get better and it does get easier. Keep getting her hearing tested even though that is very hard to do as the babies get older. Good luck and if you have any questions let me know. Alison mom to Lucy - 2 years old - mild-moderate loss --- Ian and R Collin wrote: > Hi all, > > My name is and I live in the suburbs of > Philadelphia. > > My younger daughter is 1 month old and was diagnosed > with severe (maybe worse) hearing loss in both ears > last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple > families whose children had failed at the hospital > and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the > more involved testing that our dear girl couldn't > hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this > news, as I'm sure you can all imagine. I hope to > learn a lot from all of you as we move ahead and do > our best to make sure our sweet little one has every > advantage we can provide for her. > > My first question - I am currently on maternity > leave and am lucky enough to be able to take 6 > months off from work. I am due to return to my job > at the end of September. However, as I learn more > and more, I am starting to wonder if it will even be > possible for my daughter to go to daycare. Any > input? > > I look forward to learning more about your kids > and hope I will someday be a good resource for > others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones > from your PC and save big. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 I totally understand that it is difficult to imagine hearing aids on a baby, but once she has them you will learn that looking at old photos of her without them will look strange, like something is missing, but you can't pinpoint what. My daughter who is seventeen months old was fitted with hearing aids when she was 11 weeks old. She has a moderate/moderately severe loss. If you can have someone else with you when she gets her hearing aids, please do. It is quite an emotional experience. My husband came and listened to all the instructions about taking care of the aids, while I reacted to my daughter's reactions to all these new noises she was hearing for the first time. in Manassas, VA > > We are going to CHOP for all of our hearing-related appts. Carys > (my daughter) is being fitted with her first set of hearing aids in > a few weeks. I can't imagine a 2 month old with a set of hearing > aids, but we'll see how it goes. > > This is all just a lot to absorb right now - I'm sure you understand. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 I totally understand that it is difficult to imagine hearing aids on a baby, but once she has them you will learn that looking at old photos of her without them will look strange, like something is missing, but you can't pinpoint what. My daughter who is seventeen months old was fitted with hearing aids when she was 11 weeks old. She has a moderate/moderately severe loss. If you can have someone else with you when she gets her hearing aids, please do. It is quite an emotional experience. My husband came and listened to all the instructions about taking care of the aids, while I reacted to my daughter's reactions to all these new noises she was hearing for the first time. in Manassas, VA > > We are going to CHOP for all of our hearing-related appts. Carys > (my daughter) is being fitted with her first set of hearing aids in > a few weeks. I can't imagine a 2 month old with a set of hearing > aids, but we'll see how it goes. > > This is all just a lot to absorb right now - I'm sure you understand. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi , Welcome to the group-- and congratulations on finding it so fast! I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was diagnosed through newborn hearing screen and was aided for her severe bilateral loss when she was six months old. Hadley started auditory-verbal therapy (AVT) the very next day (an oral method that trains the child to really develop his/her listening skills without the use of visual cues or lipreading). She is in her second year of preschool, is preparing for a kids' opera recital next month, training for her very first gymnastics show, taking a musical theatre class this summer, and begging me to sign her up for daily swim lessons. The fact that she listens with hearing aids is just a small part of her, just like her hair is brown and her feet are big! I did go back to work for a short time when Hadley was four months old, and my husband took his family leave time then. For me, I just couldn't do my job the way I wanted to and still be the kind of mother I wanted to be for Hadley, so I resigned at the end of my husband's paternity leave. AVT is parent guided therapy, so I really threw myself into learning everything I could in those first few months. That, coupled with the massive numbers of medical appointments, left me just enough time to teach my daughter to talk! Having said this, I have met so many great families who have made daycare work for their children (and you will meet some of them in this group). If staying at your job is your plan, you can make it happen in a way that serves your entire family. I don't think any of us have forgotten the shock and pain we experienced in those early days of learning of our child(ren)'s hearing loss. I will say that, for me, those early months of figuring out the diagnosis and what to do were the absolute worst part of this whole journey. Looking back, things have only become better since that day when Hadley received her first set of aids. Don't get me wrong-- we've had our share of obstacles and bad news along the way, but none of that compares to the grief, anger and guilt I went through at the start of all of this. And I'm glad I went through all of it, because it made me tougher for my daughter. You'll get to a good place-- we all do eventually. Until then, vent, ask as many questions as you need to, and vent some more. Kerry Introduction Hi all, My name is and I live in the suburbs of Philadelphia. My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi , Welcome to the group-- and congratulations on finding it so fast! I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was diagnosed through newborn hearing screen and was aided for her severe bilateral loss when she was six months old. Hadley started auditory-verbal therapy (AVT) the very next day (an oral method that trains the child to really develop his/her listening skills without the use of visual cues or lipreading). She is in her second year of preschool, is preparing for a kids' opera recital next month, training for her very first gymnastics show, taking a musical theatre class this summer, and begging me to sign her up for daily swim lessons. The fact that she listens with hearing aids is just a small part of her, just like her hair is brown and her feet are big! I did go back to work for a short time when Hadley was four months old, and my husband took his family leave time then. For me, I just couldn't do my job the way I wanted to and still be the kind of mother I wanted to be for Hadley, so I resigned at the end of my husband's paternity leave. AVT is parent guided therapy, so I really threw myself into learning everything I could in those first few months. That, coupled with the massive numbers of medical appointments, left me just enough time to teach my daughter to talk! Having said this, I have met so many great families who have made daycare work for their children (and you will meet some of them in this group). If staying at your job is your plan, you can make it happen in a way that serves your entire family. I don't think any of us have forgotten the shock and pain we experienced in those early days of learning of our child(ren)'s hearing loss. I will say that, for me, those early months of figuring out the diagnosis and what to do were the absolute worst part of this whole journey. Looking back, things have only become better since that day when Hadley received her first set of aids. Don't get me wrong-- we've had our share of obstacles and bad news along the way, but none of that compares to the grief, anger and guilt I went through at the start of all of this. And I'm glad I went through all of it, because it made me tougher for my daughter. You'll get to a good place-- we all do eventually. Until then, vent, ask as many questions as you need to, and vent some more. Kerry Introduction Hi all, My name is and I live in the suburbs of Philadelphia. My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi , Welcome to the group-- and congratulations on finding it so fast! I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was diagnosed through newborn hearing screen and was aided for her severe bilateral loss when she was six months old. Hadley started auditory-verbal therapy (AVT) the very next day (an oral method that trains the child to really develop his/her listening skills without the use of visual cues or lipreading). She is in her second year of preschool, is preparing for a kids' opera recital next month, training for her very first gymnastics show, taking a musical theatre class this summer, and begging me to sign her up for daily swim lessons. The fact that she listens with hearing aids is just a small part of her, just like her hair is brown and her feet are big! I did go back to work for a short time when Hadley was four months old, and my husband took his family leave time then. For me, I just couldn't do my job the way I wanted to and still be the kind of mother I wanted to be for Hadley, so I resigned at the end of my husband's paternity leave. AVT is parent guided therapy, so I really threw myself into learning everything I could in those first few months. That, coupled with the massive numbers of medical appointments, left me just enough time to teach my daughter to talk! Having said this, I have met so many great families who have made daycare work for their children (and you will meet some of them in this group). If staying at your job is your plan, you can make it happen in a way that serves your entire family. I don't think any of us have forgotten the shock and pain we experienced in those early days of learning of our child(ren)'s hearing loss. I will say that, for me, those early months of figuring out the diagnosis and what to do were the absolute worst part of this whole journey. Looking back, things have only become better since that day when Hadley received her first set of aids. Don't get me wrong-- we've had our share of obstacles and bad news along the way, but none of that compares to the grief, anger and guilt I went through at the start of all of this. And I'm glad I went through all of it, because it made me tougher for my daughter. You'll get to a good place-- we all do eventually. Until then, vent, ask as many questions as you need to, and vent some more. Kerry Introduction Hi all, My name is and I live in the suburbs of Philadelphia. My younger daughter is 1 month old and was diagnosed with severe (maybe worse) hearing loss in both ears last week. She failed the newborn hearing screen at the hospital 2 times, but as we knew multiple families whose children had failed at the hospital and then passed upon further testing we tried not to worry too much. We were shocked to find out at the more involved testing that our dear girl couldn't hear. We have no family history of hearing loss and none of the risk factors seem to apply to us. We are still in the process of absorbing this news, as I'm sure you can all imagine. I hope to learn a lot from all of you as we move ahead and do our best to make sure our sweet little one has every advantage we can provide for her. My first question - I am currently on maternity leave and am lucky enough to be able to take 6 months off from work. I am due to return to my job at the end of September. However, as I learn more and more, I am starting to wonder if it will even be possible for my daughter to go to daycare. Any input? I look forward to learning more about your kids and hope I will someday be a good resource for others as well. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Hi , welcome to our little corner of the world. I had the opposite situation than what you are in. My daughter was born with heairng loss but wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up to do. This May is her 10 year anniversary of wearing hearing aids (for a mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but there is a place called the Helen Beebe Center in Ft. Washington PA. As you are deciding which direction you are going in, it helps to visit places that offer the various modes of communication. The Beebe Center is probably the #1 center in the nation for Auditory Verbal therapy, where kids learn to listen and talk. The great thing about AV Therapy for us is that the parent and child attend once per week, so it is a little more doable from a little more distance. We went to Atlanta which is almost 100 miles away. A great book that tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue Schwartz. You can get it at your library or through interlibrary loan. Hugs to you and welcome. in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Hi , welcome to our little corner of the world. I had the opposite situation than what you are in. My daughter was born with heairng loss but wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up to do. This May is her 10 year anniversary of wearing hearing aids (for a mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but there is a place called the Helen Beebe Center in Ft. Washington PA. As you are deciding which direction you are going in, it helps to visit places that offer the various modes of communication. The Beebe Center is probably the #1 center in the nation for Auditory Verbal therapy, where kids learn to listen and talk. The great thing about AV Therapy for us is that the parent and child attend once per week, so it is a little more doable from a little more distance. We went to Atlanta which is almost 100 miles away. A great book that tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue Schwartz. You can get it at your library or through interlibrary loan. Hugs to you and welcome. in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Hi , welcome to our little corner of the world. I had the opposite situation than what you are in. My daughter was born with heairng loss but wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up to do. This May is her 10 year anniversary of wearing hearing aids (for a mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but there is a place called the Helen Beebe Center in Ft. Washington PA. As you are deciding which direction you are going in, it helps to visit places that offer the various modes of communication. The Beebe Center is probably the #1 center in the nation for Auditory Verbal therapy, where kids learn to listen and talk. The great thing about AV Therapy for us is that the parent and child attend once per week, so it is a little more doable from a little more distance. We went to Atlanta which is almost 100 miles away. A great book that tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue Schwartz. You can get it at your library or through interlibrary loan. Hugs to you and welcome. in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Dear , Welcome to the group, you have come to the right place if you haven't notice already. I am also a relatively new member to this group and lurk a lot more than I post, but I had to reply to you. I am mom to , 2 hearing and 19 weeks old. He also failed the newborn screening twice and than took the ABR (Baer test) and it was discovered that he has mild/severe hearing loss in both ears. Neither my husband nor I have hearing loss in our families so it was a shock to us. It turns out that Connexin 26 is the cause for us. When I was first told about 's hearing loss I was in denial, kinda. I thought that he was turning to sounds and reacting to sounds. However when he was 3 months he got his hearing aids, and I knew at moment that they turned on the aids that he was missing stuff. His eyes opened wide when the audiologist started talking. At that point I knew that getting everything early was the best thing for . We live in NY and have been working with Early Intervention for . He also has services from the Department of Education and goes to a center based program once a week. It is a little tough on but she has been really good. If you have any questions you can email me offline, it seems that we are going to be going through the same thing at the same time. Good luck Marni --- Ian and R Collin wrote: > Hi all, > > My name is and I live in the suburbs of > Philadelphia. > > My younger daughter is 1 month old and was diagnosed > with severe (maybe worse) hearing loss in both ears > last week. She failed the newborn hearing screen at > the hospital 2 times, but as we knew multiple > families whose children had failed at the hospital > and then passed upon further testing we tried not to > worry too much. We were shocked to find out at the > more involved testing that our dear girl couldn't > hear. We have no family history of hearing loss and > none of the risk factors seem to apply to us. > > We are still in the process of absorbing this > news, as I'm sure you can all imagine. I hope to > learn a lot from all of you as we move ahead and do > our best to make sure our sweet little one has every > advantage we can provide for her. > > My first question - I am currently on maternity > leave and am lucky enough to be able to take 6 > months off from work. I am due to return to my job > at the end of September. However, as I learn more > and more, I am starting to wonder if it will even be > possible for my daughter to go to daycare. Any > input? > > I look forward to learning more about your kids > and hope I will someday be a good resource for > others as well. Thanks! > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones > from your PC and save big. > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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