ERIN/ jolts at night and having a really hard time

[Guest guest]

,

I don’t know how they he do it, but as soon as she has it done I will

post all the details. I hope it works for her as she is in so much pain –

the electrical shocks are just terrible.

,

why don’t you call Dr. Conway and see what he thinks. Also, why don’t

you make an appointment with Dr. Quesada and ask him. I am in the process

of having a series of five ganglion of Impar blocks done. I have had one already, and a

second one next week. This was at the suggestion of Dr. Conway, and Dr. Quesada

does them. I still see both of the once a month, and they both have been

extremely helpful.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Saturday, February 09, 2008 9:52 AM

To: VulvarDisorders

Subject: Re: ERIN/ jolts at night and having a really hard time

nne,

How are they going to do botox in the clitoris? I

really hate this clitoral pain- i woke up this morning

and had that arousal feeling again which i've never

had in the morning- usually the mornings are when i

feel best, so now i think i'm getting worse.

wonderful.

erin

--- millburytimes

wrote:

> - I just found out today that my best friend

> who has the clitoral

> shocks, and is a patient of Dr. Conway and Dr.

> Quesada will be getting Botox

> in hopes that it will help her. She is in pretty bad

> shape, so they are

> trying everything possible to help her. We don't

> know yet if Botox will be

> covered for this condition by her insurance company,

> but even if it isn't

> she will have it done anyway.

>

>

>

> nne

>

>

>

>

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ]

On Behalf

> Of euc1109 s

> Sent: Wednesday, February 06, 2008 8:53 AM

> To: VulvarDisorders

> Subject: RE: jolts at night and having a

> really hard time

>

>

>

> Thanks for everyone's input. I am one of Dr.

> Conway's patients and he does

> not think my nerve is entrapped (at least not severe

> enough to require

> surgery). I haven't talked to him about these yet,

> as they are relatively

> recent, but I am going to get another block in a

> couple of weeks and will

> talk to him about them then. While I don't know why

> I am having these, I

> hope that it means my nerve is starting to heal,

> since they're not painful.

> But, who knows....i doubt it, but I try to look on

> the positive side for

> some hope. I'm currently on medications but

> relatively low ones and if a

> few more different blocks don't help then Dr.

> Quesada is going to change my

> meds. I'm only 23 and pretty healthy- my nerves

> should be able to fully

> heal!!!!! (that's me looking on the positive

> side...usually I don't have

> any hope)

>

>

>

> erin

>

> millburytimes

wrote:

>

> If you do a search for electric shocks or jolts on

> the pudendal.info site

> you will find a lot of information. It is called

> hyper-arousal syndrome. A

> very good friend of mine has this very severely. It

> was caused by the birth

> of her child - he should have been delivered by

> C-section, but the doctor

> let him sit with his head pressing on the pudendal

> nerve (near the clitoris)

> for too long. That was two years ago. Her shocks are

> so bad, that she can no

> longer drive as she jerks so badly she swerves off

> the road. She can have 30

> or more shocks during a 24 hour period, also while

> sleeping. They are

> extremely painful and can literally double her over.

> She has no other PN or

> vaginal symptoms. She is a patient of Dr. Conway and

> had pudendal

> decompression surgery five months ago, and still is

> not any better. Dr.

> Conway feels that she will improve with time, but

> (as with all PN surgeries)

> it can take up to two years.

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ]

On Behalf

> Of euc1109

> Sent: Monday, February 04, 2008 2:35 AM

> To: VulvarDisorders

> Subject: jolts at night and having a really

> hard time

>

> hi all,

>

> i'm having a very difficult time going to sleep

> right now and am on the

> verge of just losing

> every single ounce of hope. i think i am getting

> worse because lately when i

> go to bed

> and my body relaxes, i get these jolts into the

> clitoris. they don't hurt

> and i don't really

> know how to describe them, but they wake me up and

> eventually my nerves just

> end up

> feeling aroused and very stimulated. i don't know

> why i only get this at

> night, and it's not

> when i'm laying in bed watching tv, it's as i'm

> falling asleep. i have no

> idea what this

> means and have a feeling it's not good. does anyone

> else ever experience

> this?

>

> all in all i am just breaking down. i just keep

> thinking this is a horrible

> dream and that i

> just have to wake up, but it never happens. i'm only

> 23 and can't even

> fathom living the

> rest of my life like this. i feel like i've tried

> everything, and i don't

> even know what my

> problem is. at first i thought it was pudendal

> neuralgia but i'm questioning

> that lately.

> then i thought maybe it's lichen planus under the

> hood, but with these

> jolts/arousal

> feeling at night now, i'm not sure how that could be

> from lichen. i feel so

> alone through

> all of this. my friend and my mom knows about it,

> but i think they're tired

> of dealing with

> me and don't know what to say so i just don't talk

> to them about it anymore.

> i don't have

> a boyfriend to talk to about it, and don't see how i

> could ever start a

> relationship with this

> problem. i thought it was bad enough before, but now

> with these

> jolts/arousal like feeling

> at night it's getting hard for me to get any sleep,

> when sleep never used to

> bother me

> before, another reason that i think i'm getting

> worse. i know everyone on

> here has gone

> through times like this, but i just don't even know

> how to stay sane

> anymore. imagine

> trying to go to sleep and having jolts into your

> clitoris that end up making

> you feel

> extremely aroused that doesn't go away. sleep used

> to be my only time to

> escape but now

> i don't even have that anymore. i keep thinking that

> i don't understand how

> something

> that is used solely for pleasure is causing me so

> much pain and depression.

> i just feel like

> my life is over and for the next 50 years i'll be

> living in hell. i just

> keep pondering over

> why i get like this at night as i'm falling asleep

> and i've got nothing. i

> really don't think i

> can keep pushing along for much longer before i go

> into complete and utter

> depression,

> not to mention having a very difficult time

> sleeping.

>

> today's going to be a wonderful day at work and

> school, since i'm pretty

> sure i'll be in pain

> and will be exhausted from only getting a couple of

> hours of sleep, if any

> at all.

>

> erin

>

>

>

>

>

> _____

>

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