Re: For

[Guest guest]

Hi , I haven't read that book. I too have constant burning, stinging and rawness. Right now I'm sitting with lidocaine on with an icepack. The lidocaine doesn't seem to work for me. Yes catheters make me shudder as well. I've been taking lyrica for a few months now. I take 300mg a day. I also have fms/cfs and ibs. I've been told I have possible ms or lupus. My uncle and brother both have ms, my uncle's is extremely bad. I hope you find something that helps you.

,I have IC and clitoradynia. I can have sex. I just have this constant clitoral burning like I have a piece of glass constantly cutting me. The idea of having a catheter near my urethra makes me shudder. As a result, I've made the decision to treat my problems holistically.I've altered my diet (for the IC), but am thinking of taking a new pain blocking med that a neurologist recently prescribed called lyrica. All along (I've only been dealing with this for 8 months), I've felt like I have an infection- but every doctor tells me that I don't. Two docs, however, have told me they think I have lyme disease. It's so controversial, I don't know if I believe it as I've had three others tell me I don't have it. All I know, , is that this is INSANE. I could never have imagined the pain I feel or felt to anyone before January. Have you ever read Simone's book, called Along a Healing Path? It's a great book on IC.

rachel metzdorf <homekeepermamaof3 (AT) gmail (DOT) com> wrote:

I would like to know what strength of Lidocaine you used, and what specific pain symtoms you had. What other types of numbing creams are there? I have IC, and with going to the bathroom so much, it's very hard to keep any cream on. Any others here have IC?

On 9/2/07, timeflies <TIME-FLIES@...

> wrote:

Along with my pudendal nerve surgery, I ALSO had a vestibulectomy. It turned out perfect – all my surface pain is now gone – I no longer have to use Lidocaine, or any other numbing creams. (I have a medicine cabinet full) The vestibulectomy surgery was painless (less than two weeks ago). I can't even feel where the stitching was done. The only reason I am mentioning this is to dispel all the awful vestibulectomy posts that have proliferated over the years. If you have VV pain, there is a solution – there is no reason to continue to suffer. It works – it really does. I don't know how much stronger that I can write this. If you want to talk about it further, please don't hesitate to email me privately. I can truly attest that this is a good surgery.

In regards to my pudendal surgery, I will still have pain from Pudendal Neuropathy for a long time. Especially butt pain – I feel like I have been kicked by a horse!! Not from the surgery itself, but from the nerves healing.

nne

----My situation is very much like yours. I had a partial vestibulectomy 4 years ago and I also have LS. I'm not perfect either but substantially improved! Sandy

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[Guest guest]

I saw Blanchard yesterday. I posted about it. He is a pretty cool guy and I

liked him. He prescribed a combination of Levoxyl (no dye tablets) and small

dose of timed release T3. He also put me on 5,000 iu Vitamin D. I don't know

that this protocol will work for me since I have high reverse T3 and I believe

need more T3 than he has prescribed, but I will try it and maybe add in a little

of my cytomel here and there. He seems workable and if something doesn't work

for his patients, he's open to trying other treatments, e.g. Armour for some,

etc.

For

Hi ....I read a while ago that you were going to see Blanchard.

Am I correct?

Have you seen him? How did it go? Anything new you can share with us?

Thanks,

Naffy

[Guest guest]

I saw Blanchard yesterday. I posted about it. He is a pretty cool guy and I

liked him. He prescribed a combination of Levoxyl (no dye tablets) and small

dose of timed release T3. He also put me on 5,000 iu Vitamin D. I don't know

that this protocol will work for me since I have high reverse T3 and I believe

need more T3 than he has prescribed, but I will try it and maybe add in a little

of my cytomel here and there. He seems workable and if something doesn't work

for his patients, he's open to trying other treatments, e.g. Armour for some,

etc.

For

Hi ....I read a while ago that you were going to see Blanchard.

Am I correct?

Have you seen him? How did it go? Anything new you can share with us?

Thanks,

Naffy