Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I would bring the abstracts with you because there are many ways to do MRI such as variations with and without contrast, delayed scans, T1 and T2 weighted. I would ask to consult the radiologist before the scan. For one MRCP the radiologist came out and basically asked me what we were looking for and I said " cholangiocarcinoma and biliary strictures " so he added another type of scan to the procedure that he hadn't been planning to do. Now I always ask them to list cholangiocarcinoma surveillance on the order form, because the radiologists know better how to look for something they can see, but may not know all the sequelae associated with a particular disease. Sheesh, honey, this sounds horrible. Hang in there, keep lots of notes, and take him in for lab work so maybe you can catch this in an acute phase and get the blood work to support you. Sounds like that one ammonia level was not an anomaly. Keep pushing for help, you are doing the right thing. Martha (MA) He is scheduled for an MRI for his migraine diagnosis recently. > I would assume that they could see WHATEVER on that same scan too?! > Is that a safe assumption? I would think the radiologist would just > be reading for any and all abnormalities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Good point Martha. I really appreciate all these ideas. I have days where I feel brain dead and there are things as simple as what you suggest that should be easy for me to think of that are so far from my mind. I have tried so hard to figure this out for him. I probably should take a break. LOL! But then something else happens...like him running into the banister, or the molding like he has done several times this weekend...at full speed btw...I just hope he doesn't break something. Osteopenia on top of it all would not make a huge hit like that good. He is so not aware of the fact that he is not normal when it comes to the day to day. It is only when something around the school work happens that he really gets frustrated, and cries, or kicks, throws a fit, pulls at his hair, lips...what have you. I just want to hold him until this is all over. It is when he hurts like that that it is so painful for us all. Even Aidan and Zoe can sympathize. Aidan is 5 and asks what is wrong. Quote Link to comment Share on other sites More sharing options...
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