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Hi ,

I can really see why your vestibulectomy was

so successful – you really did it the right way – by talking to the

doctors who performed the surgery, got their success rates, talked with other

women, etc., etc.

I am trying to fit myself in the description

that you wrote below. Moreover, as I mentioned earlier I just had a successful

vestibulectomy and pudendal nerve compression surgery. My primary pain

condition was pudendal neuropathy, the VV came second and the LS third. I did

my research on the PN surgery, but had very little choice as my doctor is the

only one in the US

who performs the TIR approach to this surgery (operating through the vagina,

versus cutting through the butt), and this was my chosen method of surgery. And

as I mentioned before, My doctor recommended doing the vestibulectomy along

with the PN as he was already operating in that area and he thought it would

really help my vulvar surface pain.

His new specialty is the PN surgery, but he

has only performed less than 20 in the past two years and I do not know how

many vestibulectomies he has done in his career. But he also does all other

kinds of women surgeries and still delivers babies! He did say that so far, all

of his PN surgeries have been successful, but it takes up to two years for significant

results to be documented. However, this is where I disagree with you, as my

doctor said I would find, from his experience, significant improvement with my LS

and in my case where the LS pain was minor, that possibly the pain and outward

visible symptoms would be gone altogether. I hope that he is correct. But I do

agree with you that this surgery is not for everyone – and every woman’s

body is different, and each pain condition is different. But if each woman does

her homework as you did, (I took a blind chance) there might be more women who

could get rid of their pain altogether and not be afraid of the surgery.

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On

Behalf Of

Bunny

Sent: Monday, September 03, 2007 7:33 PM

To:

vulvardisorders

Subject: Life after VVS

Surgery

I would agree that the procedure is not for

everyone. The highest success rates are for women who have primary

VVS. Women with additional skin conditions like LS or LP will find relief

from the VVS but not necessarily from the LS or LP. For me the pain of my

VVS was worse than the LS which was fairly mild so the surgery was a big

success for me even though I still have the LS.

I think it also makes a huge difference in who preforms the surgery. Most

of the horror stories I hear are women who had Desthetic Vulvodyina or

Pudential Neurologia as their primary pain condition or who saw a surgeon who

did not specialize in the vulvar vestibulectomy. The surgeon I saw

only preformed vestibulectomies and have done several hundered of them with

only a 5% failure rate. I was also able to talk to other women who had

done the procedure with that surgeon. That made a huge difference in my

decision making process.

" Without rabbits a rabbits foot would be nothing but a disembodied hand full of unidentified toes. "

-Pogo

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