RE: A question for - update and LP/LS?

[Guest guest]

There is Dr Lori Boardman who I am going to, but it is the same

thing with the paperwork and a three month wait.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Wednesday, February 20, 2008 10:29 PM

To: VulvarDisorders

Subject: Re: A question for - update and LP/LS?

Well, today hasn't been a very good day.....I

went up

to see Dr. Quesada (pain mgmt doc) and we looked at

our options. We could change my medications, try a

compounding cream to target the dorsal clitoral nerve

topically, or try a dorsal clitoral nerve block. I

decided that the actual block makes me a little

nervous because it's so close to the pain so we are

going to try the compounding cream which is made up of

a few things like neurontin, lidocaine, and

anti-inflamatory and an agent that makes it " soak "

(can't think of a better word) deep into the tissue.

He said if it's going to help at all then i should

notice a change within a week or so.

However, I've been thinking more and more about the

possibility of having a type of lichen under the

clitoral hood and have been trying to set up an

appointment with Dr. in Boston, but they lost

the paperwork the first time I sent it back and this

time they are still waiting to get my records and

letter of diagnosis from my doc. Well I decided to

examine the area tonight and I honestly don't know if

I'm going crazy or not, but I feel like my tissues are

starting to change a bit. It seems like my hood is

getting a little longer and that one of the sides of

the hood is getting " smoother " if that makes any

sense. I am truly concerned that I have it under the

hood and it would kind of make sense as to why nerve

blocks and nerve meds haven't helped and why I don't

get shocking pains but instead a burning ache. I feel

like a lot of my pain is coming from the very

beginning of the underside of the hood (sorry if

that's too much info). But, I am petrified that I

won't be able to get in to see Dr. until it's

too late and fusing and/or atrophy occurs (if it is

lichen). I know how hard it is to get in and see her

and I also know how fact lichen can cause

fusing/atrophy and i'm just really upset and worried

right now. I'm going to call around tomorrow to see

if I can get in anywhere else sooner than with her,

but I am afraid that i'll get someone who only knows

the very typical white plaque patches that I don't

have and they'll just brush me off.

Does anyone know of another person in the New England

area besides , that is easier to get in with

but knows their stuff about LP/LS?????? If I can't

get in with anyone, is there a medicine that I can try

to get from a current doctor that they give you for

LP/LS until I can see her so at least if it is I can

prevent fusing/atrophy?

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