Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Hi , Sorry to hear that you are having some problems with maintenance and willpower. I am sure you will find a few old timers here that are having very similar woes to you. I have gone beyond the same problems and have had my band removed in order to have further surgery to no avail. It is always hard to get some weight loss and then go no where fast with any more. I know I had got to my goal staring at an additional 20 kilos. I hope you find some inspiration here. Cath (Brissy) > Obviously you are both in the early stages of your band... you will adjust > to it and it will become part of your everyday life. > Anyone out there who has had their band put in for at least two years - > having trouble maintaining weight loss and willpower. > SOS - need support !!!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 : Zion Lutheran Church, where we hold our Ferndale meetings, also has a food pantry. I am not sure how it works or if you have to belong to the church or what, but you can call Jackie at for more info. Debbie: We are very happy to hear your good news. What a relief. I don't think we realize the stress our bodies are under while we await going for testing or waiting for the results until after it is all over and that ton of bricks comes falling off our shoulders. Lynn Debbi Ringle wrote: Dear , Hi ,my name is Debbi Ringle, I am not new to the group ,but haven't posted much lately due to my teen girls end of yesr activities and son 's changing summer scheduale.If you need food/urgent necessities you should contact local churches.Many have food pantries for just this purpose.I know that our church, Peace Lutheran of Shelby Twp. has a active and full pantry.I don't think it is for members only, I believe it is for community outreach.Also, you might call the Samaritan House in Washington Twp., it is a community outreach program that most area churches donate to.Hope this helps, sorry such a late response. Hope this helps. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Question: Once you have plateued and slowed on the Pfeifer and or PCA programs, do the children loose the great gains they initially received? Thanks! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Some PPI Programs start at early as 18 months. I know that Ferndales does. Ellen has some barly 2 year olds in her room this upcomming school year Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 If your child is only two, however, he wil be in the Early Intervention system.... My school district didn't have it's own Early Intervention program that could meet my son's needs so he was sent off to a center- based program in Bloomfield Hills. At age three, he was appropriate for PPI, but there is also the choice for AI placements as well. PPI is more of a generic place for kids with all different disabilities. We turned down PPI because I didn't feel it met my son's needs and ended up placing him privately in Bmnt's Communication Station preschool program which was just awesome for him. (This was before the HOPE program was started. ) Re: help> Hi Dawn.,> Thanks so much for your email.>> Do you find that a combo of ABA & Play work best?>> Also, what is PPI?>> Have you ever used chelation?>> Kim>>> Support Everyday Miracles by shopping online at IGIVE.COM, where a portionof every purchase is donated to this support network. Proceeds received willbe used for a variety of functions, such as educational activities, therapy,famiy outings, etc. http://www.igive.com/EDM>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 THANKS!, BUT NOW I HAVE TO ASK..... IF THEY LOOSE THE GAINS MADE INITIALLY BY CHELATION/PCA, WHY BOTHER TO CHELATE IN THE FIRST PLACE? IT SEEMS REDUNDANT IF THE PROBABILITY IS THAT THEY WILL JUST LOOSE THE GAINS THEY MADE LATER, IT SEEMS ALMOST LIKE TORTURE TO THE PARENT. (LOOSING THEIR CHILD AGAIN) THANKS. KIM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Pfeiffer is around $1000, and Dr. Hicks is $375 for the inital visit (which lasts an hour). I'm going to go with Dr. Hicks because it would be difficult for me to travel to Chicago with Kami, and I've been to the Bloomfield Library to see Dr. Hicks. Angelia ---- Original Message ---- From: sharlan@... To: EverydayMiraclesAutism Subject: Re: help Date: Fri, 8 Aug 2003 13:48:26 -0400 >I'm glad things are working out with Dr Hicks- did you know that he >and Betsy Prohaska will eb speaking this Saturday at a fundraiser in >Hines Park? I'm going to try to attend this event/for the whole >family... >anyways, Pfeiffer does not cost $3-4,000 by any means. Yes, it is >costly to buy the vitamins and do the initial consult and the >followup, but certainly not this much. I'd have to add it all up, but >I'm sure it's not that much. The most money is in the beginning, >going to the initial consult, getting all the tests orderered and >then getting the vitamins and supplements, but then after that it's >not so bad. I have no idea how much Dr. Hicks prices are, but I >imagine the tests he sends away are all about the same price?? Well, >good luck with whichever way you choose...there are many differnet >roads to success. > > > Re: help > > > Thank you for your email Stepanie. > > We made an appt. for Pfeifer, but cancelled it because they told us >we would > have to commit to a min. of $3-$4K per year for the rest of our >sons > life....it sounded so absolute. We are working with a Dr. Hicks >from Pathways right > now and are awaiting test results to see if he is eligible for >chelation, but in > the meantime, I found the PCA on a website. If you know of anyone >using it, > please give them my email. I would be most interested. > > Thanks again and I hope I can pencil in a support group soon! > > Kim McMillan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I know Pfeiffer's price includes all the initial tests, blood, urine, hair and stool. It is hard to travel but it was nice that they did all the work at one place and then compound the supplements for you specifically for your child's needs. The price of the initial visit ($1,000) also includes the Primer that they start the kids out on, getting them ready for the MTP and nutrients. Regarding the cost throughout the year, it cost us $290 for 120 day supply of supplements and MTPII, so that is $290 every 4 months, and if you do that 3 times a year, that is under $1,200 for the year. It is much less expenisve if you do not compound your pills. Then you have a second visit about 6 months after the first, that costs around $450, and includes blood and urine. Stool is additional $250 - $400 depending on the details you desire. After your second visit, you only go back every year. The price of each visit also includes a nurse consult over the phone once your test results are in. Just thought I'd provide as much info as I could. Lynn bertreed@... wrote: Pfeiffer is around $1000, and Dr. Hicks is $375 for the inital visit (which lasts an hour). I'm going to go with Dr. Hicks because it would be difficult for me to travel to Chicago with Kami, and I've been to the Bloomfield Library to see Dr. Hicks. Angelia ---- Original Message ---- From: sharlan@... To: EverydayMiraclesAutism Subject: Re: help Date: Fri, 8 Aug 2003 13:48:26 -0400 >I'm glad things are working out with Dr Hicks- did you know that he >and Betsy Prohaska will eb speaking this Saturday at a fundraiser in >Hines Park? I'm going to try to attend this event/for the whole >family... >anyways, Pfeiffer does not cost $3-4,000 by any means. Yes, it is >costly to buy the vitamins and do the initial consult and the >followup, but certainly not this much. I'd have to add it all up, but >I'm sure it's not that much. The most money is in the beginning, >going to the initial consult, getting all the tests orderered and >then getting the vitamins and supplements, but then after that it's >not so bad. I have no idea how much Dr. Hicks prices are, but I >imagine the tests he sends away are all about the same price?? Well, >good luck with whichever way you choose...there are many differnet >roads to success. > > > Re: help > > > Thank you for your email Stepanie. > > We made an appt. for Pfeifer, but cancelled it because they told us >we would > have to commit to a min. of $3-$4K per year for the rest of our >sons > life....it sounded so absolute. We are working with a Dr. Hicks >from Pathways right > now and are awaiting test results to see if he is eligible for >chelation, but in > the meantime, I found the PCA on a website. If you know of anyone >using it, > please give them my email. I would be most interested. > > Thanks again and I hope I can pencil in a support group soon! > > Kim McMillan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 In a message dated 8/8/03 7:20:57 PM Eastern Daylight Time, lynnmgeorge@... writes: << >> Thanks Lynn. I will get started on chelation immediately. You have been so helpful. Gold Bless, Kim Mc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Chelation is a VERY dangerous procedure.I know that most autistic adults on the spectrum are very against it. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 the morning PPI class is all young kids, 3 is as old as it normally gets. Abby started out in that when she was 2. Then as she got older she switched to the afternoon. Ellen chooses to do the little kids in the morning because by the time they are done they are ready for a nap! LOL Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 The answer is " yes " but it's not as easy as that. Dawn has just watched her regress to where he was 8 months ago. Alyssa regresses before a big burst in development, so I'm guessing Dawn and Rich will see take a big leap in development soon. But, the gains " stick " as long as the child's body can continue to " right " itself on it's own. If it accumulates metals instead of detoxing, then you may see the return of some old behaviors. Now that I've said that, I believe that you really need more than biomedical, Kim. There are so many pieces that play a role in the development of neural pathways. Speech therapy, OT, PT, " whole brain " learning, movement ( " Smart Moves " by Carla Hannaford PhD), and intense one-on-one time engaging the child is extremely important and assists the biomedical side of the puzzle. At a biomedical conference in Pontiac in 2002, I asked the panel of experts if a behavioral intervention could stimulate the body to begin to function on it's own. Could the neural pathway development of an intense ABA or Floortime program be enough to heal the gut, or re-start sulfation, or rid the body of yeast and bad bacteria? ( Maurice in " Let Me Hear Your Voice, " did not do any biomedical with either of her children.) And the answer from Owens, the sulfation expert (you can chat with her on the Sulphurstories list and on the Autism-Mercury list), and from Dr. Hicks, a DAN! doctor, was an EMPHATIC " YES " . *sigh* The hard part is figuring out the individual pieces of your own child's puzzle. Good luck, Penny > Question: > > Once you have plateued and slowed on the Pfeifer and or PCA programs, do the > children loose the great gains they initially received? > > Thanks! > > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 The thousand for Pfeiffer covers all the labwork. Hicks will prescribe all that same pricey labwork, and your insurance may not pay for it all. I heard recently that he is charging something like $40 per KIT as a handling fee. So you have to pay $150 or more just to get the kits to take to Qwest Labs for the draw. Then you have to send money in to the lab to have the blood, stool, urine, hair, saliva, etc processed. Pfeiffer also has a HOPE scholarship to lower expenses for those who can't afford their fees. > Pfeiffer is around $1000, and Dr. Hicks is $375 for the inital visit > (which lasts an hour). I'm going to go with Dr. Hicks because it > would be difficult for me to travel to Chicago with Kami, and I've > been to the Bloomfield Library to see Dr. Hicks. > Angelia > > ---- Original Message ---- > From: sharlan@c... > To: EverydayMiraclesAutism > Subject: Re: help > Date: Fri, 8 Aug 2003 13:48:26 -0400 > > >I'm glad things are working out with Dr Hicks- did you know that he > >and Betsy Prohaska will eb speaking this Saturday at a fundraiser in > >Hines Park? I'm going to try to attend this event/for the whole > >family... > >anyways, Pfeiffer does not cost $3-4,000 by any means. Yes, it is > >costly to buy the vitamins and do the initial consult and the > >followup, but certainly not this much. I'd have to add it all up, but > >I'm sure it's not that much. The most money is in the beginning, > >going to the initial consult, getting all the tests orderered and > >then getting the vitamins and supplements, but then after that it's > >not so bad. I have no idea how much Dr. Hicks prices are, but I > >imagine the tests he sends away are all about the same price?? Well, > >good luck with whichever way you choose...there are many differnet > >roads to success. > > > > > > Re: help > > > > > > Thank you for your email Stepanie. > > > > We made an appt. for Pfeifer, but cancelled it because they told us > >we would > > have to commit to a min. of $3-$4K per year for the rest of our > >sons > > life....it sounded so absolute. We are working with a Dr. Hicks > >from Pathways right > > now and are awaiting test results to see if he is eligible for > >chelation, but in > > the meantime, I found the PCA on a website. If you know of anyone > >using it, > > please give them my email. I would be most interested. > > > > Thanks again and I hope I can pencil in a support group soon! > > > > Kim McMillan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Because when they come out of their regression they still remember the things they learned prior to regressing. Example: All last week I knew Jagger was regressing, he wouldn't do or say any of the things he was saying the week before. I know that he knows how to open the door, I have seen it, but the bad week he wouldn't do it. Today, his trainer was done at 12:00 and they both walked into the kitchen to put his glass in the sink and he turned around, took her hand, put it on the door and said Bye Bye. Yes, I was embarrassed, but he had enough, she was here 2 hours and really drilling him because her supervisor also came to assess/evaluate/observe. He said Jagger is ready for harder stuff, everything has become too easy and he is not being challenged. I have also heard/read that regression happens when the body is ridding itself of toxins, so their body and mind are busy working on something else and everything else sort of has to wait until its finished. Please get started with whatever programs you want to do right away, the sooner the better. And, yes, some of it can be torture but the gains are so much worth it. I can't even imagine raising a typical child, it just seems that it would have to be so boring *lol* and when we cheer for all the little things one of these little guysgals does, it is really so great that you feel that you have to call everyone and tell them...or at least go out for a nice dinner. Lynn kimbamac@... wrote: > > THANKS!, BUT NOW I HAVE TO ASK..... > > IF THEY LOOSE THE GAINS MADE INITIALLY BY CHELATION/PCA, WHY BOTHER TO > CHELATE IN THE FIRST PLACE? > > IT SEEMS REDUNDANT IF THE PROBABILITY IS THAT THEY WILL JUST LOOSE THE > GAINS > THEY MADE LATER, IT SEEMS ALMOST LIKE TORTURE TO THE PARENT. (LOOSING > THEIR > CHILD AGAIN) > > THANKS. KIM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 They don't lose what they have gained. The progress becomes slower. This doesn't mean that maybe in five more months some other great gains may not pop up. It just happens to be that right now, being on it almost 1 year, we have seen as much as we have seen and I am not sure if we will see more or absolutely no more. It is hard to say what will happen next. One way to tell is to stop all clathrating and see what happens. Which is something we may do in the near future, or switch to something other than Pfeiffer. Keep in mind Pfeiffer has done a lot, a lot for Jagger already. I mean how much should we expect? Should we expect a cure? I think we should expect that supplements, clathrating agents, are only going to do so much and a lot of it has to come from parents, teachers, therapists, programs, etc. The supplements and clathrating agents have gotten him to a point where he is able to focus on what we are all trying to teach him. Lynn kimbamac@... wrote: Question: Once you have plateued and slowed on the Pfeifer and or PCA programs, do the children loose the great gains they initially received? Thanks! Kim Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 With all due respect Stepahie Autism is part of what makes who he is. It isnt all negative. Contrary to what many think people with autism dont think of themselves as disabled. They are like Kassiane said "A culture". She also said that she isnt "anti-progress" only anti-cure. She is NOT the only one that feels that way. We all want the best for our children, and we all do the best that we and they are capable of. I will not disagree with Kassiane. I dont think that any of us have a right to either. She is a adult that LIVES autism each and every day. It is not our place to tell her that she is wrong. I will tell you one thing for sure, she is a VERY HAPPY person and she loves who she is, autism and all. I will say what Kassiane said best, "Autism is a culture. It's as much a part of me as my freckles, my Slavic ancestry, my tumbling obsession, and my whacky sense of humor. It makes me differant, but is has shaped who I am, and who many of my friends are, and I wouldnt have it any other way". Just because our children may not grow up to have the sterotypical life that we all dream for our children doesnt mean that they arent happy. What NT people view as happiness alot of auties view as annoying or bothersome. I know that Abby will always be a little quirky and I am ok with that. She can function in society and can hold friendships. Sometimes she comes across as a little strange but I would NEVER try to change that, it is who she is and I wouldnt trade her for anything. We all say that we accept our children for who they are, and in most ways we do, but if our goal is to make them as NT as possible then we have lost sight of who our child is. I hope that one day Kassiane or my friend Sondra (both adults on the spectrum-both on differant ends I might add) will be able to come to EDM one day and prove to everyone here that they DONT WANT TO BE CURED, THEY WANT ACCEPTANCE, THEY WANT TO BE WHO THEY ARE AND NOT BEING TOLD THAT THEY NEED TO CHANGE TO ACCOMIDATE NT PEOPLE! They are people who have feelings just like you and me, rather they can express them or not. As Kassiane said in the newsletter the auties want to be more like the deaf. The deaf are a family, a culture, they do not view themselves as disabled and get very offended when others view them that way. It is the same for Autism, I am not saying that I am against early intervention-as I think that is crutial to teaching skills that are much needed in life, all I am saying is that we all have to accept that autism is part of our kids, like it or not-its there. Just like a diabetic-the disease is managed by insulin and diet, but take away those things the diabeties is still there. The same with autism, take away GF/CF, PLAY, Chelation, PPI, and all the other therapys, and you guessed it the autism is still there. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 What I meant to start on immediately is the intervention, like PLAY and ABA, maybe speech if your child was speaking and then stopped. Before you start chelating, you want to have tests run to see what toxins are in his system. I also had a food allergy test run, that was very helpful, found out he is allergic to many foods he was eating....so it is very good to have. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Pennie, does Ferndale not have an Early Intervention program available? I wonder why they don't send the babies somewhere else. Putting an 18 month old in with the 5 year olds doesn't seem quite right...are they seperated in different rooms or something? -- > Some PPI Programs start at early as 18 months. I know that Ferndales does. > Ellen has some barly 2 year olds in her room this upcomming school year > > > Pennie > Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I certainly wasent saying that you dont care about , I am sorry if that came across to be that way. I wouldnt want Abby to be ill either. With the seizures and all that Abby has gone threw over the last 6 years of her life I sympathize with you. Those comments were said not nessasarily to you. I just so sick of kids being forced to become NT. I love my daughter with all my heart and I can never force her to be something that she is not. When Kassiane was here I was so comforted by the way she spoke and carried herself. Although she is quirky I think she is one of the nicest people that I have ever met in my life. I am grateful for her input, it is nice to be able to get input from someone who lives sensory issues and autism everyday. She helps me get in Abby's head and for that I will always be indebited to her. By the way-its been a "full moon" week at my job to. I am bummed about the whole Marjorie thing, but perhaps in 3 years she will have her. We are trying to mainstream before then but if Abby is not ready by then she will be with Marjorie-she is a great lady. How do you know her again? Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Pennie, with all due respect, chelation is not always dangerous. I know that your friend Kassie voiced her concerns about it and apparently other autistic adults also, but I personally am hoping that my son will not be considered an autistic adult. I plan to have this as a thing of his past. Yes, part of who he is, part of what has made him who he is today, but I will not rest until I am sure I have done all that I can do to help him reach his full potential. And the fact of the matter is that he has a huge amount of poison in his body right now that should not be there. And this is evidenced by his hair tests, his blood work and his GI problems from the past. I could not live with myself if I knew that he was poisoned and I did nothing about it. I believe that a lot of autism does NOT involve mercury poisoning, a lot of it is genetic/ chromosomal/whatever. A lot of adults with autism today probably fall into that category and chelation would not be appropriate for them. However, that being said, of course I do not want to put my son through anything dangerous, and I thoroughly research everything before I do it. I have chosen the Pfeiffer method because it IS one of the safest, and one of the most natural. It helps the body to detox itself in the way that it is supposed to, and Pfeiffer supplements the children's bodies with the necessary vitamins they are usually lacking. was diagnosed with malabsorption, elevated heavy metals (antimony, arsenic, mercury, lead, aluminum, etc etc), zinc deficiency, elevated copper; yeast problems, bacteria problems....he looks healthy but his body is sick. How would the autistic adults argue with the need to help this? -- Expect a miracle! > Chelation is a VERY dangerous procedure.I know that most autistic adults on > the spectrum are very against it. > > Pennie > Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Pennie, I tried replying to you privately but couldn't do so for some reason (AOL wouldn't accept it?) so I will respond via the group post. I hope you didn't mis-understand me...my intent of my message was not that I don't accept the way he is, or that I want to change him or make him someone who he is not. I accept him, quirks and all and want to change only one thing about him....his medical ILLNESS. I do not want him to be sick, Surely you would agree with that. I love his odd sense of humor, his whacky questions, his beautiful way of looking at the world so differently...but I do not love the poisons that ravage his body and make him sick. I respect your ability to disagree with me, we all have strong personalities here, but I really think that there are different kinds of autism. And perhaps Kassaine and the other adults you are referring to, and perhaps your daughter even, do not suffer from heavy metal poisoning. Perhaps this is the way they are always going to be...and that is fine. I agree we need to accept our children unconditionally, but as the saying goes " change the things you can change, accept the things that you can't and have the wisdom to know the difference " .... I have already started talking to about autism, he is reading books about it, I want him to know that this is what is going on with him/no secrets/no embarrassment. I want him to know that this is part of who he is. Just like he also knows that he can't eat gluten or bananas or 'cow's milk' because he has " allergies " - this is also part of who he is. But just because that is part of who he is doesn't make it okay for him to eat gluten when he will feel sick..!? and just because he has autism doesn't mean we should stop trying to rid the poisons from his body that keep him unwell!? When I said I want autism to be part of his past, I never meant I was going to hide it from him and pretend it didn't exist; but I really believe he will not need to identify himself as an autistic adult either; he will just be , quirks, allergies and all, but healthy, free of toxins/yeast/fungus and leaky gut, and able to live a happy life. Sorry to all for the long soliloquy; I am tired at work tonight...it's been a full moon night here!! ps Penny- that is funny about all the s in Abbey's life, sorry she didn't get a Marjorie! -- Expect a miracle! > With all due respect Stepahie Autism is part of what makes who he is. > It isnt all negative. Contrary to what many think people with autism dont > think of themselves as disabled. They are like Kassiane said " A culture " . She > also > said that she isnt " anti-progress " only anti-cure. She is NOT the only one > that feels that way. We all want the best for our children, and we all do the > best that we and they are capable of. I will not disagree with Kassiane. I > dont think that any of us have a right to either. She is a adult that LIVES > autism each and every day. It is not our place to tell her that she is wrong. I > will tell you one thing for sure, she is a VERY HAPPY person and she loves who > she is, autism and all. I will say what Kassiane said best, " Autism is a > culture. It's as much a part of me as my freckles, my Slavic ancestry, my > tumbling > obsession, and my whacky sense of humor. It makes me differant, but is has > shaped who I am, and who many of my friends are, and I wouldnt have it any other > way " . Just because our children may not grow up to have the sterotypical life > that we all dream for our children doesnt mean that they arent happy. What NT > people view as happiness alot of auties view as annoying or bothersome. I know > that Abby will always be a little quirky and I am ok with that. She can > function in society and can hold friendships. Sometimes she comes across as a > little > strange but I would NEVER try to change that, it is who she is and I wouldnt > trade her for anything. We all say that we accept our children for who they > are, and in most ways we do, but if our goal is to make them as NT as possible > then we have lost sight of who our child is. I hope that one day Kassiane or my > friend Sondra (both adults on the spectrum-both on differant ends I might add) > will be able to come to EDM one day and prove to everyone here that they DONT > WANT TO BE CURED, THEY WANT ACCEPTANCE, THEY WANT TO BE WHO THEY ARE AND NOT > BEING TOLD THAT THEY NEED TO CHANGE TO ACCOMIDATE NT PEOPLE! They are people > who have feelings just like you and me, rather they can express them or not. As > Kassiane said in the newsletter the auties want to be more like the deaf. The > deaf are a family, a culture, they do not view themselves as disabled and get > very offended when others view them that way. It is the same for Autism, I am > not saying that I am against early intervention-as I think that is crutial to > teaching skills that are much needed in life, all I am saying is that we all > have to accept that autism is part of our kids, like it or not-its there. Just > like a diabetic-the disease is managed by insulin and diet, but take away > those things the diabeties is still there. The same with autism, take away > GF/CF, > PLAY, Chelation, PPI, and all the other therapys, and you guessed it the > autism is still there. > > Pennie > Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Is the scholarship based on the ability to pay? ---- Original Message ---- From: bubbetta@... To: EverydayMiraclesAutism Subject: Re: help Date: Fri, 08 Aug 2003 22:19:24 -0000 > > > > >The thousand for Pfeiffer covers all the labwork. Hicks will > >prescribe all that same pricey labwork, and your insurance may not > >pay for it all. I heard recently that he is charging something >like >$40 per KIT as a handling fee. So you have to pay $150 or more >just >to get the kits to take to Qwest Labs for the draw. Then you >have to >send money in to the lab to have the blood, stool, urine, hair, >saliva, etc processed. > >Pfeiffer also has a HOPE scholarship to lower expenses for those who > >can't afford their fees. > > >> Pfeiffer is around $1000, and Dr. Hicks is $375 for the inital >visit >> (which lasts an hour). I'm going to go with Dr. Hicks >because it >> would be difficult for me to travel to Chicago with Kami, and >I've >> been to the Bloomfield Library to see Dr. Hicks. >> Angelia >> >> ---- Original Message ---- >> From: sharlan@c... >> To: EverydayMiraclesAutism >> Subject: Re: help >> Date: Fri, 8 Aug 2003 13:48:26 -0400 >> >> >I'm glad things are working out with Dr Hicks- did you know >that he >> >and Betsy Prohaska will eb speaking this Saturday at a >fundraiser >in >> >Hines Park? I'm going to try to attend this event/for the >whole >> >family... >> >anyways, Pfeiffer does not cost $3-4,000 by any means. Yes, >it is >> >costly to buy the vitamins and do the initial consult and >the >> >followup, but certainly not this much. I'd have to add it >all up, >but >> >I'm sure it's not that much. The most money is in the >beginning, >> >going to the initial consult, getting all the tests >orderered and >> >then getting the vitamins and supplements, but then after >that it's >> >not so bad. I have no idea how much Dr. Hicks prices are, >but I >> >imagine the tests he sends away are all about the same >price?? >Well, >> >good luck with whichever way you choose...there are many >differnet >> >roads to success. >> > >> > >> > Re: help >> > >> > >> > Thank you for your email Stepanie. >> > >> > We made an appt. for Pfeifer, but cancelled it >because they told >us >> >we would >> > have to commit to a min. of $3-$4K per year for the >rest of our >> >sons >> > life....it sounded so absolute. We are working >with a Dr. Hicks >> >from Pathways right >> > now and are awaiting test results to see if he is >eligible for >> >chelation, but in >> > the meantime, I found the PCA on a website. If >you know of >anyone >> >using it, >> > please give them my email. I would be most >interested. >> > >> > Thanks again and I hope I can pencil in a support >group soon! >> > >> > Kim McMillan >> > >> >       Yahoo! Groups >Sponsor >> >>           >;  ADVERTISEMENT >> >>           >; >> >      >> >      >> > >> > Support Everyday Miracles by shopping online at >IGIVE.COM, where >a >> >portion of every purchase is donated to this support >network. >> >Proceeds received will be used for a variety of functions, >such as >> >educational activities, therapy, famiy outings, etc. >> >href= " http://www.igive.com/EDMhttp://www.igive.com/EDM >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 This is from the Pfeiffer website that I sent earlier... Who qualifies for Hope? There are many factors that are considered in the application for financial assistance. Some of the criteria looked at are: Annual income Insurance Primary reason for visit History of treatment compliance Commitment to program Financial capability to afford the nutrient program that is prescribed. -- Expect a miracle! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Thanks . ---- Original Message ---- From: sharlan@... To: EverydayMiraclesAutism Subject: Re: help Date: Sat, 09 Aug 2003 03:55:59 +0000 > > > > > >This is from the Pfeiffer website that I sent earlier... > >Who qualifies for Hope? > >There are many factors that are considered in the application for >financial >assistance. Some of the criteria looked at are: > >Annual income >Insurance >Primary reason for visit >History of treatment compliance >Commitment to program >Financial capability to afford the nutrient program that is >prescribed. > >-- >Expect a miracle! > > > > > > > > > >Yahoo! Groups >Sponsor > > >cellspacing=0> size=-2>ADVERTISEMENThref= " http://rd.yahoo.com/M=244522.3656190.4921519.1261774/D=egroupwe >b/S=1705061616:HM/A=1595053/R=0/SIG=124mh1h7k/*http://ashnin.com/clk/ >muryutaitakenattogyo?YH=3656190&yhad=1595053 " alt= " " >src= " http://us.a1.yimg.com/us.yimg.com/a/qu/quinstreet/300x250_uofp_g >reen-arrows2.gif " alt= " Click Here! " width= " 300 " height= " 250 " >border= " 0 " > > >src= " http://us.adserver.yahoo.com/l?M=244522.3656190.4921519.1261774/ >D=egroupmail/S=:HM/A=1595053/rand=292123233 " > > > > > > > > >Support Everyday Miracles by shopping online at IGIVE.COM, where a >portion of every purchase is donated to this support network. >Proceeds received will be used for a variety of functions, such as >educational activities, therapy, famiy outings, etc. href= " http://www.igive.com/EDMhttp://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
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