Perception by others that sensitivity is *your* fault, rather than just biochemistry?

[Guest guest]

One of the things I've noticed over and over again in my life is

the tendancy of people to ascribe sensitivites to noise, " sharp "

sounds, and other sensitivies as being *my* fault with no though

whatsoever that it might be becuse of somethin biochemically *wrong*

with my system (like low cortisol). This leads to the usual response

of, " just get over it! " Which is fine if you have enough cortisol to

do so, and really sort of the only thing they can say/think in a way.

You'd NEVER hear someone say the same thing about high blood sugar

and insulin in a Type 1 diabetes (I hope - although I've heard that

some people consider insulin " the last straw " - even caregivers of

type 1's <eyes get real big>!). You do hear it in Type 2 with

reference to insulin, from that patients no less - I think because

insulin as a first-line or medium-line, as opposed to absolute last

resort treatment for T2.

To take another (controversial) example, you'd never hear about

NOT treating ADHD with medication - especially in cases where it is

OBVIOUS that treatment is needed. Not just " borderline cases " like

where the male child is figiting in kindergarten while the girls are

perfectly still, not because he has ADHD, but because his nervous

system's inhibitory system just isn't developing as fast - which is

normal. Of course, a lot of ADHD cases (even the " obvious " ones) are

probably hypoT or arenal something (Durant-Peatfield has a vignette

of this strange maifestration of childhood hypoT in his book Your

Thyroid and How to Keep It Healthy) And ADHD hasn't even been around

that long as a " disease " (meaning something that can be treated with

drugs) - although there has been a very large amount of advirtising

surrounding it.

Have other poeple experienced this, either with low-cortisol-

induced stress sensitivity, depression, or with the fatigue in the

various fatigue autoimmune (and other) conditions? I've gotten it

with depression too (and it's been " known about " for at least 20

years now - perhaps my parents are just out of date I suppose it

can sort of be excuse because adrenal insufficiency isn't a " real

disease " (as far as the mass public is concerned, depite 's

book), and so many people are " used to being healthy " (or what they

think is healthy) that they don't consider the possiblity that things

*might* be chemically/ " disease-wise " amiss with someone who, in many

other ways, " looks healthy " - except for a strange reaction to stress.

Jim

[Guest guest]

Well, as bad as it is for adrenal fatigued people imagine how bad it is for

autistic folks who are labeled as " bad tempered " or " disruptive " when in

fact they are so overstimulated that it creates an actual physical pain.

They had a good program on Nightline last night about how girls are

underdiagnosed and why, and some of the challenges they face.

Most people in the US are not healthy in my opinion. You see so many with

low energy and low vitality but think this is what healthy is because they

might have been that way their entire lives. People would look at me and

think I was so healthy when I knew I was feeling horrible most of the time.

If you smile a lot, people think you are healthy, lol. Plus with women, we

can cover a lot up with make-up like dark circles under our eyes.

Really, you just have to shut people out if they don't get it because it

causes emotional stress for you.

Cheri

-----Original Message-----

One of the things I've noticed over and over again in my life is

the tendancy of people to ascribe sensitivites to noise, " sharp "

sounds, and other sensitivies as being *my* fault with no though

whatsoever that it might be becuse of somethin biochemically *wrong*

with my system (like low cortisol). This leads to the usual response

of, " just get over it! " Which is fine if you have enough cortisol to

do so, and really sort of the only thing they can say/think in a way.

Jim

.

[Guest guest]

I am having great problems about this.last year there was some noise in my

apartment and it was horrifying time for me. I was getting well but went

downhill because of not being able to tolerate noise. I was going crazy. tried

to move but could not manage it. I had to move to hotel rooms many nights which

was also very difficult for me . This depleted me.Even more painful than this

was that none of my friends understood what I was going through and I am just

about to loose my very valuable energy therapist and my last best friend because

of this. We had lots of good work with my energy healer but when it came to my

noise sensitivity she insisted telling me that I was unconsciously jealous of

other happy people around me(my neighbors were talking loudly until very

late).my best friend kept telling me that my healer could be correct and this

could be psychological. Going through this horrible period and not being able to

be understood with my healer and my best friend put me in depression for couple

of months. All other people around me were already thinking I was nuts.Since

last couple of months I am in pain of loosing these two last valuable person and

this also effected my life adversely. Finally after starting to increase my

isocort dosage my sound and light sensitivity issues are getting better but pain

of loosing last two person from my life is still going on.In these days I

started to think that I am probably moving into totally alone period of my life

and I am forcing myself to accept this and getting ready for that.

bw

Nil

Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

One of the things I've noticed over and over again in my life is

the tendancy of people to ascribe sensitivites to noise, " sharp "

sounds, and other sensitivies as being *my* fault with no though

whatsoever that it might be becuse of somethin biochemically *wrong*

with my system (like low cortisol). This leads to the usual response

of, " just get over it! " Which is fine if you have enough cortisol to

do so, and really sort of the only thing they can say/think in a way.

[Guest guest]

I will say my response to noise has gotten SO much better since on a good

dose of HC. My loud obnoxious neighbors are barely bothering me anymore.

Sometimes you have to lose people to get well. I had to make decisions and

could no longer extend myself to people who were not supportive. I figure

the ones who are real friends will always come back. The others weren't real

friends to begin with. This has proven true. People who are true will

support you in good and bad, no matter if they understand or not. I have

certainly been there for a lot of friends during problems in relationships

even if I thought they were making poor choices. I kept my lip zipped and

just listened, because that is what they needed. I don't think that it is

too much to expect some reciprocation, nor should you.

Oh, and maybe you are just jealous of cats like me. lol

Cheri

-----Original Message-----

We had lots of good work with my energy healer but when it came to my

noise sensitivity she insisted telling me that I was unconsciously jealous

of other happy people around me(my neighbors were talking loudly until very

late).my best friend kept telling me that my healer could be correct and

this could be psychological. Finally after starting to increase my isocort

dosage my sound and light sensitivity issues are getting better but pain of

loosing last two person from my life is still going on.

bw

Nil

.

[Guest guest]

>>The friends I could not rely on are no longer in my life. Sometimes we need

to clean house and that means ending relationships too. Yes, I do ask for

help and no, it is not too much to ask for. That is what friendship is. I

have done it for them a million times so a healthy relationship means it is

reciprocated when you need it too.<<

I couldn't have said this better! 6 years ago I did an emotional house cleaning.

I moved across country and left nehind 20 yeasr of toxic " friends " and all my

relative who were also very toxic t me. Life suckers is what I call them! While

I life a pretty solitary existance now with only the few local friends I have

made through my business, it is preferable to trying to exist wiht the emotional

strain of people thta onyl wanted things from me and not giving anything in

return.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

sounds like you put some of the principles of Mickel Therapy to work and didn't

even know you were doing it!!

LOL

Re: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

>>The friends I could not rely on are no longer in my life. Sometimes we need

to clean house and that means ending relationships too. Yes, I do ask for

help and no, it is not too much to ask for. That is what friendship is. I

have done it for them a million times so a healthy relationship means it is

reciprocated when you need it too.<<

I couldn't have said this better! 6 years ago I did an emotional house

cleaning. I moved across country and left nehind 20 yeasr of toxic " friends " and

all my relative who were also very toxic t me. Life suckers is what I call them!

While I life a pretty solitary existance now with only the few local friends I

have made through my business, it is preferable to trying to exist wiht the

emotional strain of people thta onyl wanted things from me and not giving

anything in return.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

So, true. Even being alone is better than being with toxic people. I think a

lot of people are so afraid to be alone they allow unhealthy people into

their lives but that is worse. I know that was part of my issue in the past,

even though I was a very independent person. I was very social and wanted to

be around a lot of people. Now I really treasure times both alone and with

real friends.

Cheri

-----Original Message-----

I couldn't have said this better! 6 years ago I did an emotional house

cleaning. I moved across country and left nehind 20 yeasr of toxic " friends "

and all my relative who were also very toxic t me. Life suckers is what I

call them! While I life a pretty solitary existance now with only the few

local friends I have made through my business, it is preferable to trying to

exist wiht the emotional strain of people thta onyl wanted things from me

and not giving anything in return.

--

.

[Guest guest]

I have a funny story on assertiveness. I had a close friend in college who

was strikingly beautiful. Probably the most beautiful person I have ever

seen. Anyway, she was also very sweet, kind, and generous and people preyed

on her because of her kindness and beauty...especially men. When we would go

out together I would act as her body guard fighting people off who would

intrude on her comfort zone in not so nice ways. Anyway, she was not a

person who ever raised her voice or swore. She was the most even tempered

person I knew.

There was this guy who was very manipulative. She didn't realize it at first

and she had problems with boundaries and assertiveness. She thought he was a

friend. He started to want more, she didn't. He had a tendency to guilt trip

her and make her feel badly about herself. She started to avoid him because

she didn't know how to deal with him but didn't want to offend him either.

One day she got a letter from him that was horrible saying just mean

horrible things to and about her. She let me read it. Anyway, I basically

told her he was a jerk and just to keep ignoring him. She felt guilty about

ignoring him and always tried to work out anything with everyone...feeling

it was somehow her fault.

A few days later I found out that she did something that totally shocked me.

I couldn't believe it was the same person doing this. Rather than respond to

his numerous accusations (of which were that she must be mentally unstable

since she didn't reciprocate his romantic feelings toward her), she took the

letter he sent her, took a big thick black magic marker and wrote just two

words across it and sent it back to him. She never heard from him again.

What did she write?

F@## YOU!

I never laughed so hard in my entire life, especially coming from this sweet

and passive woman . I still laugh when I think about that. I was always more

assertive than her and even I had never said that to anyone, lol.

Cheri

----- Original Message -----

I couldn't have said this better! 6 years ago I did an emotional house

cleaning. I moved across country and left nehind 20 yeasr of toxic " friends "

and all my relative who were also very toxic t me. Life suckers is what I

call them! While I life a pretty solitary existance now with only the few

local friends I have made through my business, it is preferable to trying to

exist wiht the emotional strain of people thta onyl wanted things from me

and not giving anything in return.

--

.

[Guest guest]

HMM wish I could say I have never said that to anyone, but truth is I

ahve said tit to several.. And meant it. LOL Let's see a certain Endo

comes to mind along with a few family members and several x-boyfriends!

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

hi all

would you think certain personalities are more prone to adrenal exhaustion. I

have a friend who is narcissistic and who thinks she has adrenal exhaustion. I

have difficulty to accept that seeing her narcissistic traits. most adrenal

exhausted people I have seen are sensitive,giving,perfectionist types..

what do you think ?

Nil

RE: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

I have a funny story on assertiveness. I had a close friend in college who

was strikingly beautiful. Probably the most beautiful person I have ever

seen.

[Guest guest]

Perfectionist is definitely first in line and also a symptom! But I do

nto think it is exclusive...

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

Well,

Rind's profile has adrenal people as more intuitive but as far as

sensitivity to others I think it is both extremes. Either very sensitive or

very insensitive to others.

Cheri -

----Original Message-----

hi all

would you think certain personalities are more prone to adrenal

exhaustion. I have a friend who is narcissistic and who thinks she has

adrenal exhaustion. I have difficulty to accept that seeing her narcissistic

traits. most adrenal exhausted people I have seen are

sensitive,giving,perfectionist types..

what do you think ?

Nil

.

[Guest guest]

Cheri and others,

Your friend sounds very much like my youngest daughter. She had a guy who

wanted to marry her, was stalking her.... Employer (both were working same

place) transferred him after 911 being called once too often because he was

curled up in a fetal position and would only go with paramedics if he could

see _________ (my daughter)

Should have gotten a restraining order but she kept trying to be " nice " he

ended up trying to commit suicide. His mom blames her... she gets severe

eating disorder, starts " medicating " her pain ending up in major legal

problems.

After about 4 years she's coming back to who she was, legal problems

ongoing but in control, eating again, and he's off married to someone

else.

Doesn't always pay to be nice, but for some of us, it's a part of who we

are, or part of our faith practice.

I've experienced in just over 2 years 7 deaths including 3 unexpected and

young people. 39 yo's don't usually go to bed with a headache and end up

dead 12 hours later. (interaction of prescribed meds, mostly psych)

Most recent, my brother, with still no cause of death. But he was toxic

to me, I had an order of protection. Still sent me into shock.

Dad passed from cancer. I dropped 40 some pounds in about 6 weeks.

Have an excellent therapist now, and since I LISTENED to the advice here

and got my Cortisol testing done before doing anything drastic.... I'm

handling stuff better.

My best friends now are horses. I volunteer with a Therapeutic riding

Organization and with a friend just south of my city who has a horse rescue.

As great as meds and supplements are, never underestimate the human/animal

connection for healing.

Only my thoughts and opinions and not necessarily those of the management of

this station...

Now I'm heading back to bed to watch an OLD Annette Funicello movie,

ahhhhhhhhhh I wanted to be a mouskateer..... yep, I'm well over 50.....

ROFL

kc in AZ

[Guest guest]

People who develop adrenal exhaustion are usually people pleasers,

perfectionists and sometimes obsessive compulsive types. Also, often people who

need to control and spend lots of energy on trying to control others and

situations instead of letting go and letting God. I spent endless amounts of

years in codependency (father was an alcoholic) and control issues. I have now

been forced to give this all up since I no longer have the energy to do it, and

my very low energy reserves no longer allow for these types of behaviors. I,

too, prefer to be alone now and enjoy peace and quiet and sometimes I don't even

know anymore if I even want to be in a relationship anymore at all.

RE: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

I have a funny story on assertiveness. I had a close friend in college who

was strikingly beautiful. Probably the most beautiful person I have ever

seen.

[Guest guest]

>>Now I'm heading back to bed to watch an OLD Annette Funicello movie,

ahhhhhhhhhh I wanted to be a mouskateer..... yep, I'm well over 50.....

ROFL<<

AH but THAT is some of the best therapy there is! I just rented Harry Potter's

latest and I still watch the old Disney animal movies o but only wiht a fresh

box of Kleenex! Then there is the Wizard of Oz.. One of my all time favorites!

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

Those all sure do sound a lot better than your ex-boyfriends.

LOL

Re: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

>>Now I'm heading back to bed to watch an OLD Annette Funicello movie,

ahhhhhhhhhh I wanted to be a mouskateer..... yep, I'm well over 50.....

ROFL<<

AH but THAT is some of the best therapy there is! I just rented Harry Potter's

latest and I still watch the old Disney animal movies o but only wiht a fresh

box of Kleenex! Then there is the Wizard of Oz.. One of my all time favorites!

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

One Flew Over the Cukoos nest is on now. I've never seen it, and I'm

having fun... downloading come Saturday Morning to my I-Pod....

I even have Annette Funicello singing " How Will I Know My Love "

Music and critters, what more is there to life... With the horses, our

own 3 dog rescues, (one even got me a brand new kitchen remodel thanks to

starting a fire and a good State Farm adjuster) and 5 feral cats who come

and go as they please.............

kc in az

ps, all dogs fine after fire.........................

[Guest guest]

and Nil,

My work in autism has certainly made me more inclined to think that a lot

of " personality disorders " are messed up chemistry, for the research group

I belong to sees huge and almost instant shifts in these children through

various therapies. For instance, I once accompanied a parent with a very

young son who had been having an all-morning meltdown and after an IV of

what was either glutathione or a chelator (I can't recall), he was

completely relaxed and happy and now was making eye contact..

I don't know if you saw my post about my daughter now taking oxytocin, but

I wonder if that might help when there are issues of social and relational

consequences. I was looking around the internet the other day and it looks

like oxytocin is sold without a presciption, though I don't know about the

quality of the product sold that way. What we got for my daughter was by

prescription and it works in obvious ways for her. It would be interesting

to know if oxytocin tends to be " off " at the same time as adrenal fatigue

and thyroid issues.

One much easier thing I've seen change people quite suddenly for the better

behaviorally is a bath in epsom salts, which is magnesium sulfate.

(Typically, after ramping the quantity up, the typical bath has about a cup

of epsom salts in it.) I think the baths might actually help in the

production of oxytocin because of an effect in sulfating cholecystokinin,

which has to happen for nerves that make oxytocin to do their thing.

I have three tales to tell of what epsom salts accomplished in three

different family members.

I remember when my daughter was about five probably, that I was late on

dinner and I think she might have had low blood sugar, but she sat down to

her plate at dinner and caused a huge ruckus complaining that I hadn't

sliced her sandwich the direction she wanted...She was being very obsessive

and demanding and very NOT like her normal self. Because I had seen epsom

salts baths change this sort of thing for her, and realizing this meltdown

was not likely to quit, I sent her to the tub immediately for a ten minute

soak in an epsom salts bath, and she dried off and dressed and came to the

table about fifteen minutes later, sat down to the very SAME plate of food

that had caused this controversy, and then said with the sweetest

expression, " Oh, mommy,.....you fixed my favorite food! "

My father (now deceased) had dementia, and we had borrowed some autism

therapies that ended up really helping him, including epsom salts. Through

a staffing error, unknown to me, the service that gave him baths in the

morning stopped applying epsom salts to his skin after the bath, and in one

month, he plummetted so badly that I thought we would have to put him in

the nursing home. He had become violent, uncooperative, extremely sensory

defensive for touch, sound, and light, and had started mixing up his

grammar...he was just a complete mess. When I found out they had stopped

the epsom salts, I called and told the new aide how to put the solution on

his skin and within minutes of her doing this he lost all the negatives we

had seen increase and was back to being a happy, gracious and contented

Southern gentleman. We learned at that point if we skipped even one day,

he would go back to being the violent and miserable mess he was without them.

For me. I'll never forget the day I went to the gym to swim and I felt SO

mad at the world and internalized and still felt that way after

swimming. I took a shower and let a handful of epsom salts " melt " into my

skin as I got out and dried off. In a few minutes, as I left, I just

wanted to hug everyone I saw, and the change in my outlook shocked me.

Was this a change in producing endogenous oxtyocin? I don't know.

I also don't know how this issue mixes with the other hormonal issues on

this list, but it certainly seems to be relevant to my daughter as these

baths still help her tremendously.

At 08:17 AM 1/28/2008, you wrote:

>thanks all who have answered.

>

>sandra,

>People who develop adrenal exhaustion are usually people pleasers,

>perfectionists and sometimes obsessive compulsive types.

>

>thanks.. that was what i thought and i think many of those are abused

>during childhood.have just opened a poll about this.

>

>Also, often people who need to control and spend lots of energy on trying

>to control others and situations instead of letting go and letting God.

>

>is this mainly narcissisim? i mean trying to control others.. or is this

>present at other personality disorders,too?

>

>I spent endless amounts of years in codependency (father was an alcoholic)

>and control issues. I have now been forced to give this all up since I no

>longer have the energy to do it, and my very low energy reserves no longer

>allow for these types of behaviors. I, too, prefer to be alone now and

>enjoy peace and quiet and sometimes I don't even know anymore if I even

>want to be in a relationship anymore at all.

>

>

>

>

>

[Guest guest]

Hi Cherie

Also you might wish to check for B12 deficiency.Some anesthesia wipes out huge

amounts of b12. If person is already deficient this may cause dementia like

symptoms.

Give him some absorbable B12. Injectable form might be better.

Bw

Nil

RE: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

,

How did you apply the epsom salt with your father? I'm wondering if it might

help my mother. She was in a car accident back in Augest that caused

bleeding on her brain. She eventually had to have it drained off and spent a

total of 3 months in the hospital and nursing home. I was able to bring her

home a bit over a month ago and it is still like a roller coaster. Before

the accident she was mentally sound, only had a bit of problem with

remembering some short term things like if she had taken her meds. Now she

has almost no short term memory and has spells where she doesn't know who I

am or thinks everyone is trying to poison her. She can't take meds to help

calm her down because she reacts VERY negatively to them. I'm afraid to even

try a new one beacuse the reaction lasts at least 2 weeks. So I'm hoping

that maybe the salt thing would be helpful. Thanks!

Cherie

A positive attitude may not solve all your problems, but it will annoy

enough people to make it worth the effort. Herm Albright

>

> My father (now deceased) had dementia, and we had borrowed some autism

> therapies that ended up really helping him, including epsom

> salts. Through

> a staffing error, unknown to me, the service that gave him baths in the

> morning stopped applying epsom salts to his skin after the bath,

> and in one

> month, he plummetted so badly that I thought we would have to put him in

> the nursing home. He had become violent, uncooperative,

> extremely sensory

> defensive for touch, sound, and light, and had started mixing up his

> grammar...he was just a complete mess. When I found out they had stopped

> the epsom salts, I called and told the new aide how to put the

> solution on

> his skin and within minutes of her doing this he lost all the

> negatives we

> had seen increase and was back to being a happy, gracious and contented

> Southern gentleman. We learned at that point if we skipped even one day,

> he would go back to being the violent and miserable mess he was

> without them.

>

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.15/1249 - Release Date: 1/29/2008

9:51 AM

[Guest guest]

Thanks Nil,

I've been giving her B-12 sublingually but I'm not sure how much it has

helped.

Cherie

A positive attitude may not solve all your problems, but it will annoy

enough people to make it worth the effort. Herm Albright

>

> Hi Cherie

>

> Also you might wish to check for B12 deficiency.Some anesthesia

> wipes out huge amounts of b12. If person is already deficient

> this may cause dementia like symptoms.

> Give him some absorbable B12. Injectable form might be better.

>

> Bw

> Nil

> RE: Perception by others that

> " sensitivity " is *your* fault, rather than " just " biochemistry?

>

>

> ,

>

> How did you apply the epsom salt with your father? I'm

> wondering if it might

> help my mother. She was in a car accident back in Augest that caused

> bleeding on her brain. She eventually had to have it drained

> off and spent a

> total of 3 months in the hospital and nursing home. I was able

> to bring her

> home a bit over a month ago and it is still like a roller

> coaster. Before

> the accident she was mentally sound, only had a bit of problem with

> remembering some short term things like if she had taken her

> meds. Now she

> has almost no short term memory and has spells where she

> doesn't know who I

> am or thinks everyone is trying to poison her. She can't take

> meds to help

> calm her down because she reacts VERY negatively to them. I'm

> afraid to even

> try a new one beacuse the reaction lasts at least 2 weeks. So I'm hoping

> that maybe the salt thing would be helpful. Thanks!

>

> Cherie

>

> A positive attitude may not solve all your problems, but it will annoy

> enough people to make it worth the effort. Herm Albright

>

>

>

> >

> > My father (now deceased) had dementia, and we had borrowed some autism

> > therapies that ended up really helping him, including epsom

> > salts. Through

> > a staffing error, unknown to me, the service that gave him

> baths in the

> > morning stopped applying epsom salts to his skin after the bath,

> > and in one

> > month, he plummetted so badly that I thought we would have to

> put him in

> > the nursing home. He had become violent, uncooperative,

> > extremely sensory

> > defensive for touch, sound, and light, and had started mixing up his

> > grammar...he was just a complete mess. When I found out they

> had stopped

> > the epsom salts, I called and told the new aide how to put the

> > solution on

> > his skin and within minutes of her doing this he lost all the

> > negatives we

> > had seen increase and was back to being a happy, gracious and

> contented

> > Southern gentleman. We learned at that point if we skipped

> even one day,

> > he would go back to being the violent and miserable mess he was

> > without them.

> >

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.19.15/1249 - Release

> Date: 1/29/2008

> 9:51 AM

>

>

>

>

>

[Guest guest]

Thanks ! We'll probably start off with foot baths because we do those

already. That way I can see how she reacts. While she was in the hospital,

we were very vigilant about them adding medicine. They were really tired of

me at the nursing home when she finally left. They kept trying to put her on

an anti-depressant, but she always reacts weirdly to them. Nothing that you

would notice unless you already knew her really well though. She was already

on several meds for heart issues and so on. Plus she has very bad reactions

to any benzos, demoral, haldol, the list goes on. Basically, we just tell

them if they want to add anything new, they need to call us and get

permission. We did try ambien for a bit and didn't really see that it helped

her sleeping much. We also have tried seroquel (yes, I know but desperate

times and all that) with mixed sucess. Right now I'm still giving her that

but I'm only giving her 12.5mg every other day or two. Anyway, I figure the

epsom salts is worth a shot. I'm working on getting her doctor/s to do

different tests now that I'm learning more about all this stuff. I don't

have any doubt in my mind though that much of the damage from the bleeding

is permanent. Every doctor who saw her was amazed that she could talk and

respond after they saw her CAT scan results. We had to fight to get her into

rehab because they were so bad and because she's 90yo.

Cherie

A positive attitude may not solve all your problems, but it will annoy

enough people to make it worth the effort. Herm Albright

>

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9:51 AM

[Guest guest]

> It would be interesting to know if oxytocin tends to be " off " at

> the same time as adrenal fatigue

> and thyroid issues.

>

Yet another really interesting researach question that will probably

never get answered. I wrote to a SJS (-s Syndrome)

support thing (I don't have it, and hope to never do), asking if it

was considred autoimmune, then asking if there was any possiblity is

was connected to CD3 activation ofn T-cells. Humanized anti-CD3

monoclonal antibody (induces immune tolerance to the beta cells)

seems to cause the side effect of skin peeling. So I wondered if the

same thing was happening in SJS/TEN. The repsonse I got: " Yes.. " I

emailed an immunologist last year asking about the difference between

CD4+ and CD8+ regulatory T-cells (CD8 is formed by CD3 mAb therapy

alone, CD4 is formed when antigen stimulation is added, or when

regulatory cells are formed in vivo due to sub-immunologic antigen

presentation). No reponse.. But maybe it got chucked in his spam

folder.

ARRGH!! I need a damn biochem Ph.D.!

Jim

[Guest guest]

Yes,. I agree. Thanks for pointing that out.

bw

Nil

Re: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

Nil,

I will add to what you are saying that Cherie, you might want to avoid

cyanocobalamin because the body has to remove the cyano part before the

[Guest guest]

surprises. Some people also like foot baths, but personally, I think they

are a lot of trouble.

Hi susan

why do you think foot baths might be a problem?

My daughter also invented a more portable method of

using a stamp moistener bottle and putting the solution in there to use

when you feel you need more help for your detox system. When she was

little, she was super sensitive to everything, and it came in handy.

That is such a good idea..

I'm sure you know from being on this list that even a good thing given in

too high a quantity at first, can be a negative. That's why it makes sense

to go " low and slow " .

best wishes

nil

[Guest guest]

If it is Pergue brand,i am sure it is very absorbable.

good luck.

Nil

RE: Perception by others that " sensitivity " is *your*

fault, rather than " just " biochemistry?

Thanks Nil,

I've been giving her B-12 sublingually but I'm not sure how much it has

helped.