Re: scaphocephaly???

[Guest guest]

Hi.Welcome to the board. I'm a long-time member, who lurks a lot, but my son had a scaphocephalic shape, and used the DOCband to gain width and slope. This was in 2000, and Cranial Technologies, Inc. was the only company at the time which offered a molding device for that head shape. Their device is probably different from the one you are using.I know there are several other companies which now offer a molding device for scaphocephalic head shape. I hope things go well for you. My son has a brief bio and pix at the Craniosynostosis and Positional Plagiocephaly Support website, as scaphocephalic shape is pretty rare without a fused suture. My son was breech, and big, and so it happened in-utero (he was also a C-section). His bio can be found at http://www.cappskids.org/CAPPSPlagioKidQuinn.htmGood luck to you. If you have any questions feel free to write here or at tnt@...Kind regards.mom to Quinn, born 11/99, DOCband grad 10/00>------- Original Message ------->From : mrsmitch24[mailto:mrsmitch24@...]>Sent : 4/25/2008 2:03:17 PM>To : Plagiocephaly >Cc : >Subject : RE: scaphocephaly???>>hi every body im new heremy little boy starts with his starlight Bivalved on the 6th of may forhis scaphocephaly, im really looking forward to it, yet i am a littlenervous has anybody else had the same style helmet when were in leedsthey showed me one but it was clear plastic alfies will be made out ofthe same stuff as the starband so not really sure what it will looklike has anybody else had the same helmet ?and could offer any advice----------------------

--------------For more plagio info

[Guest guest]

thanks so much for your reply i was starting to feel alone in this ,i

have found lots of info on plagio but nothing for scaph ,the clinic

im using has hardly ever seeen a head shape like alfies ,it feels so

nice not to be the only one .

my little boy dosnt have fused suture either , i lost my water early

in my pregnancy the delivered him breach at 27 weeks so he had all

the risk factors for scaph he spent many weeks in the neonatal unit

and he was placed on his front due to servere reflux ,this ment his

head was on one of other side all the time

-- In Plagiocephaly , " " <tnt@...> wrote:

>

> Hi.

> Welcome to the board. I'm a long-time member, who lurks a lot, but

my son had a scaphocephalic shape, and used the DOCband to gain width

and slope. This was in 2000, and Cranial Technologies, Inc. was the

only company at the time which offered a molding device for that head

shape. Their device is probably different from the one you are using.

>

> I know there are several other companies which now offer a molding

device for scaphocephalic head shape. I hope things go well for

you.

>

> My son has a brief bio and pix at the Craniosynostosis and

Positional Plagiocephaly Support website, as scaphocephalic shape is

pretty rare without a fused suture. My son was breech, and big, and

so it happened in-utero (he was also a C-section). His bio can be

found at http://www.cappskids.org/CAPPSPlagioKidQuinn.htm

>

> Good luck to you. If you have any questions feel free to write

here or at tnt@...

>

> Kind regards.

>

> mom to Quinn, born 11/99, DOCband grad 10/00

>

>

>

> >------- Original Message -------

> >From : mrsmitch24[mailto:mrsmitch24@...]

> >Sent : 4/25/2008 2:03:17 PM

> >To : Plagiocephaly

> >Cc :

> >Subject : RE: scaphocephaly???

> >

> >hi every body im new here

> my little boy starts with his starlight Bivalved on the 6th of may

for

> his scaphocephaly, im really looking forward to it, yet i am a

little

> nervous has anybody else had the same style helmet when were in

leeds

> they showed me one but it was clear plastic alfies will be made out

of

> the same stuff as the starband so not really sure what it will look

> like has anybody else had the same helmet ?and could offer any

advice

>

>

>

>

>

> ------------------------------------

>

> For more plagio info