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Hi bafisher,

You don't mention what your daughter's BP is, so it is hard to say if you

should be concerned or not. Has her IgAN advanced? I am 5'6 " and 120 pounds

and yet I have very high blood pressure due to my IgAN being so advanced. As

Pierre explained, if it is kidney related, it has to do with the amount of

renin that your kidneys make. There are other causes of hypertension too

though, and my guess is that her doctor is trying to identify the root cause of

the increase in BP.

Please keep us posted on what her doctors find.

In a message dated 4/19/2005 12:24:07 P.M. Pacific Daylight Time,

bafisher@... writes:

My 21 year old daughter has IgAN (diagnosed about 5 years ago)prior to

having her tonsils removed. No blood in urine since and now she has

very high blood pressure. She is very petite, under 100 lbs about

5'2 " . She is beginning diuretics, doing another 24 hr. urine, having a

renal ultrasound and monitoring her heartbeat for 24 hours. Should we

be getting worried? Will see nephr doctor ASAP. These test have been

ordered by her family physican. She is pretty freaked out and I'd like

to reassure her if possible. Any input is greatly appreciated.

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Welcome to our group.

It's hard to answer your question about whether you should be worried, until

those various tests are done.

Blood pressure is a very variable thing. How high is high? It's common for

IgAN to eventually cause high blood pressure, but it's really impossible to

say anything at this point, so your family doctor is doing the right thing.

Size has really nothing to do with the high blood pressure that kidney

disease may cause. It's all about a certain hormone called renin that the

kidneys pump out in order to raise the blood pressure on purpose. Trust me,

I'm not that big myself. Never was. On the other hand, while my IgAN started

when I was about 23 or 24, I didn't need to start dialysis until I was 49.

So, even if your daughter's blood pressure is high now, it may be a

controllable factor. There are many good BP medications now that didn't even

exist when I started out with this.

Pierre

High Blood Pressure

>

>

> My 21 year old daughter has IgAN (diagnosed about 5 years ago)prior to

> having her tonsils removed. No blood in urine since and now she has

> very high blood pressure. She is very petite, under 100 lbs about

> 5'2 " . She is beginning diuretics, doing another 24 hr. urine, having a

> renal ultrasound and monitoring her heartbeat for 24 hours. Should we

> be getting worried? Will see nephr doctor ASAP. These test have been

> ordered by her family physican. She is pretty freaked out and I'd like

> to reassure her if possible. Any input is greatly appreciated.

>

>

>

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It's hard to say whether to worry or not. None of the things you mentioned are

red flags in and of themselves (although the results from them might be), but

I'm curious why the doc ordered them. When is she seeing the neph? My hunch

is that he will be able to provide the real information and come up with a

proper treatment plan for the BP.

Sorry I can't be more helpful. Sometimes, the most reassuring thing you can do

when things are uncertain is just be there for someone.

I wish you all the best. Please let us know how it works out.

Cy

barfish913 wrote:

My 21 year old daughter has IgAN (diagnosed about 5 years ago)prior to

having her tonsils removed. No blood in urine since and now she has

very high blood pressure. She is very petite, under 100 lbs about

5'2 " . She is beginning diuretics, doing another 24 hr. urine, having a

renal ultrasound and monitoring her heartbeat for 24 hours. Should we

be getting worried? Will see nephr doctor ASAP. These test have been

ordered by her family physican. She is pretty freaked out and I'd like

to reassure her if possible. Any input is greatly appreciated.

To edit your settings for the group, go to our Yahoo Group

home page:

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To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

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You are doing just fine Barbara! Please keep us posted on how your daughter

is doing after you get the lab tests back next week.

In a message dated 4/20/2005 8:10:56 A.M. Pacific Daylight Time,

bafisher@... writes:

Thanks to all who responded to my email. I've sent my daughter the

links to this message board. She will probaobly have more questions

than I do.

We should have more information next week after the test results are

back. I will do some research on renin. Thanks for the info.

Regards,

Barbara

PS I'm new to message boards.......if I make ridiculous mistakes

please correct me. THX.

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  • 2 years later...

You said possibly my hypertension could be related to something other than

cortisol when I gave my sitting, laying down and standing numbers. Last summer

when I requested a 24-hour urine test, the results were out of range cortisol,

calcium, of course, and creatinine. I think that's telling me I need help

there, so I don't know whether I should ask my doctor for a water pill or not,

since I cannot take BP Meds.

Thank's for whatever you can tell me about this, Val.

Patl.

Re: more HC today

AT one point I needed 60mg daily but it was only a short period of time,

2 weeks was the max I stayed on that dose. Then my belly fat started

growing fastr than i could just about watch it grow, so I cut back but

It took about 2 months to go back to 30MG wher I stayed for months after

that.

--

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http://www.stopthethyroidmadness.com/

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Thank's so much,Val, You say to check to be certain I need HC. It may be the

culprit, but I have almost eliminated that inner shakiness and afternoon

depression, especially when I swapped one dose of Isocort for cream.

Here are saliva labs from

October:

Estradiol 0.7 0.5-1.7

Progest 34 l2 - 100

Ratio 49L opptimal 100-500

Testos 49 16-55 age dependent

Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

But, BP did start increasing on HC, as much as I hate to admit that.

Pat

Out of range cortisol? HIGH? High cortisl can definitely cause high

blood pressure. I would check to be certain you need HC.

--

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http://www.stopthethyroidmadness.com/

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Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

Is that 172 for Am Cortiosl? That is definitely high enough to causse high BP.

Were you stressed the AM of that test? I would suggest 500-1000MG Phosphatidyl

Serine in the evenigns say around 8PM And I would look for a cause for that high

AM level. I would also be tapering OFF HC. I do not see the need wiht these

labs.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

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Lol, Pat. I saw the 172 and was afraid to respond so I figured Val would

because that is scary high. Glad it is only 17.2. Insomnia can cause

elevated morning labs. Mine did back in May. My Dec. ones showed low

cortisol (which was more in line with how I feel) and that was with using

cortisol.

Cheri

Glad you noticed that, I didn't notice the decimal point missing. Morning

cortisol is 17.2. Maybe it isn't so bad after all. It sure causes a a lot of

shakiness or anxiety - but nothing like it had been for about 1 1/2 years.

It should all go away again once I'm able to take thyroid.

Thank's again,

Pat

.

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OK, I dropped 1 pellet today. Might be coincidental, but latest reading is

l49/89 - haven't seen that in a while. Sure felt better on the HC. Do you think

I will slide emotionally? Anxiety isn't fun as you all know, nor is depression.

Help me know what to expect other than better blood pressure. I really

appreciate the input.

Pat

I htink you should slowly wean down.

>>I will do the seriphos I have - the non-soy phosphatidylserene. Should I

definitely begin weaning HC?

Thank's again,

Pat

Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

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Yes, Cheri it could be sleep issues. They're getting better, but still only

about 6 hrs.

Pat

Lol, Pat. I saw the 172 and was afraid to respond so I figured Val would

because that is scary high. Glad it is only 17.2. Insomnia can cause

elevated morning labs. Mine did back in May. My Dec. ones showed low

cortisol (which was more in line with how I feel) and that was with using

cortisol.

Cheri

Glad you noticed that, I didn't notice the decimal point missing. Morning

cortisol is 17.2. Maybe it isn't so bad after all. It sure causes a a lot of

shakiness or anxiety - but nothing like it had been for about 1 1/2 years.

It should all go away again once I'm able to take thyroid.

Thank's again,

Pat

.

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Well, I will have to get my DHEA tested later when I do salivas. My family

practice doctor at the lab I go to agreed to do ferritin and RT3, so felt

fortunate. She said DHEA would only be tested if there were a fertility or

facial hair issue. She's nice, and I like her, but I can't really talk to her.

She asked if saliva labs are FDA approved and said adrenals are on a different

loop than thyroid. Told her that they do work together and that's the reason

the thyroid and BP med makes me toxic. Don't think I convinced her. I'd feel

very much alone if I didn't have this group to get straight answers.

Pat

V

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

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Hello Val and Friends:

I have the results from Monday's blood draw at Quest Lab. I'm puzzled why the

Free T3 I asked for isn't shown. Maybe I threw my doctor off asking for

ferritin and RT3.

Ferritin 38 20-288 ng/ml

T-4 Free 1.2 0.8-1.8

TSH, 3rdGen 3.39 0.40-4.50 mIU/L

Reverse T3 23 11-32 ng/dl

Do you see any of this causing high blood pressure, and being unable to

tolerate thyroid or BP med?

Thank's,

Pat

I htink you should slowly wean down.

>>I will do the seriphos I have - the non-soy phosphatidylserene. Should I

definitely begin weaning HC?

Thank's again,

Pat

Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

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Hello Val and Friends:

I have the results from Monday's blood draw at Quest Lab. I'm puzzled why the

Free T3 I asked for isn't shown. Maybe I threw my doctor off asking for

ferritin and RT3.

Ferritin 38 20-288 ng/ml

T-4 Free 1.2 0.8-1.8

TSH, 3rdGen 3.39 0.40-4.50 mIU/L

Reverse T3 23 11-32 ng/dl

Do you see any of this causing high blood pressure, and being unable to

tolerate thyroid or BP med?

Thank's,

Pat

I htink you should slowly wean down.

>>I will do the seriphos I have - the non-soy phosphatidylserene. Should I

definitely begin weaning HC?

Thank's again,

Pat

Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

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Hello Val and Friends:

I have the results from Monday's blood draw at Quest Lab. I'm puzzled why the

Free T3 I asked for isn't shown. Maybe I threw my doctor off asking for

ferritin and RT3.

Ferritin 38 20-288 ng/ml

T-4 Free 1.2 0.8-1.8

TSH, 3rdGen 3.39 0.40-4.50 mIU/L

Reverse T3 23 11-32 ng/dl

Do you see any of this causing high blood pressure, and being unable to

tolerate thyroid or BP med?

Thank's,

Pat

I htink you should slowly wean down.

>>I will do the seriphos I have - the non-soy phosphatidylserene. Should I

definitely begin weaning HC?

Thank's again,

Pat

Cortisol M 172H 3.7-9.5

Cortisol N 1.7 l.2-3.0

Cortisol E 1.6 0.6-1.9

Cortisol N 0.5 0.4-1.-0

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

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We need your Free T3 to know if your RT3 is too high as it is the ratio

odf the two that matters. but your FERRITIN is too low and THAT can

cause intolerance ot thyroid meds. It should be between 70-90 for best

health. I would say 150mg daily of elemental iron would be helpful and

should bring it up in a few months.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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Re: High Blood Pressure

We need your Free T3 to know if your RT3 is too high as it is the ratio

odf the two that matters. but your FERRITIN is too low and THAT can

cause intolerance ot thyroid meds. It should be between 70-90 for best

health. I would say 150mg daily of elemental iron would be helpful and

should bring it up in a few months.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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Re: High Blood Pressure

We need your Free T3 to know if your RT3 is too high as it is the ratio

odf the two that matters. but your FERRITIN is too low and THAT can

cause intolerance ot thyroid meds. It should be between 70-90 for best

health. I would say 150mg daily of elemental iron would be helpful and

should bring it up in a few months.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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I'm back, Val, with the Free T3 - glad the lab still had my blood. I'd better

list it all again:

RT3 23 11-32 ng/dl

Free T3 279 230-420 pg/dl

Free T4 1.2 0.8-1.8 ng/dl

TSH 3rd Gen. 3.39 0.40-4.50 mIU/L

Ferritin 38 20-288 ng/mL

I have been off all thyroid since October l,and now off HC, as I was getting

dangerously high BP. Thank's for helping me.

Pat

We need your Free T3 to know if your RT3 is too high as it is the ratio

odf the two that matters. but your FERRITIN is too low and THAT can

cause intolerance ot thyroid meds. It should be between 70-90 for best

health. I would say 150mg daily of elemental iron would be helpful and

should bring it up in a few months.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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Val - can you please tell me where you got this info so I can print it

out for my doc. I just can't get him to understand that it's fT3 not

total T3 that needs to be used in the ratio. He insists that the RT3

is not free but rather bound. Thanks.

>

> Thsi is all I have:

>

> NOTE: The 'normal' FT3/RT3 ratio = greater than (>) 0.020

> if both are measured in pg/mL --- and 'normal' = greater than

> (>) 19 if FT3 is measured in pg/mL , and RT3 is in ng/mL .

>

>

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This came from Holtorf's ionformati9n, you might search his website for

it. Bill Kingsbury poisted this to the list and I have found ti to be

quite accurate.

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Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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  • 2 weeks later...

Hello, everyone: Has anyone ever experienced die-off symptoms (Herxi

reactions when ramping up on T3? I'm not positive that's causing the slight

nausea and generally depressed feelings that I've experienced before when using

anti-yeast remedies, but am mighty suspicious

Thank's

Pat

We need your Free T3 to know if your RT3 is too high as it is the ratio

odf the two that matters. but your FERRITIN is too low and THAT can

cause intolerance ot thyroid meds. It should be between 70-90 for best

health. I would say 150mg daily of elemental iron would be helpful and

should bring it up in a few months.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

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