Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I just took the Adrenal Stress Saliva test and the results showed that my cortisol for all 4 points were so high that it was not even on the graph. My DHEA was also off the charts. Here's the thing...I am taking DHEA supplements and COrtef and Isocort. My doctor told me to continue taking it as normal during the test. He says that he can interpert the test results given the amount of meds I am taking. He says I am in a very dangerous spot and I need to reduce cortisol. So I have, and I feel muscle weakness and shakiness. Not sure if my adrenals are really OK or not now. What do you think? Now I am so confused. I've been on HC and Isocort for 9 months. My thyroid meds are messed up now too because my doc took me off Armour and in the conversion gave me 110mcg too much 4 months ago. I just now found out that the conversion amount was wrong. I am a mess and totally discouraged. Thanks for your thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 >>My doctor told me to continue taking it as normal during the test. He says that he can interpert the test results given the amount of meds I am taking.<< Well he is better than I am then as I have loo,ed at a coupel hundred of these tests and I can;t make ANY rhyme or reason out of the ones when people are on HC. Here is a small group I collected for proof: http://f1.grp.yahoofs.com/v1/QJGbR4DbgqalwDGlLepOufdv-ksMhuehkIwjlMsJCLJdpFUZYOB\ -FLPsxxldZUdMMnFC1IuIhi-qGNKpLkwoyg/salivaOnHc.html -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Thsi doctor sounds leike he si causing you more problems than helping. You can tell what is goign on a bit with BP taking first sitting then standing. Ids your BP high? Are you having symptoms of HIGH cortiosl such as large belly or Puffy face? You can also graph your temps per www.drrind.com to knwo if you are on enough cortio so you could lower till temps start fluctuating then raise back up a tad to find your correct HC dosing. As fo rthe thyroid, what thyroid are you on? -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Thanks, . I had thought that I had read that you couldn't test cortisol while on HC, but I was hoping my doctor knew something I didn't. I was on Armour and a different dr switched me to Levoxyl/Cytomel. I immediately had hyper syptoms not knowing then that the conversion was 110 mcg over what I was taking in armour. We have reduced it 6 times now over the last 5 months to where I am on 175 of Levoxyl only. The reductions have been because of the developement of symptoms that she says are hyper without ever admitting to the over prescribed amt by 110mcg. She thinks I am still having hyper sympotms which I am not sure if it is actual hyper or adrenals because I now have some hypo symptoms reappearing. She thinks I have too much cortisol because of puffiness, leg swelling, irritablilty, hot flashes and weight gain. These all started 5 weeks ago. I am so confused I do not know what is hyper or hypo or adrenals anymore. I thought I use to know...now I can't tell anymore. The Dr. that gave me the saliva tests thinks that it is all insulin related and that I may now be pre-diabetic. Kind of a mess I think now??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 WELL being a Diabetic myself I can tell you it is not the end of the world, just another DAMNED hormone to juggle! It is a MAJOR PIA to eat properly with even pre-Diabetes to prevent damage. I would recommend gettign a glucose meter, first off, make your own judgement and I cna help you interpret the readings. This can also help adjust cortils so it is not too high. The puffiness cna be from HYPO as well as high cortils. With you not getting any T3 I suspect it is at least pqrt of the problem. I would try to get updated thyroid labs, then you cna know where that stands first, then as I said you can do the temp graphign as you SLOWLY lower HC toill it starts fluctuating then go back up to where it stops and thta is your correct HC dosing. It takes some time when you have gotten them all mixed up but it can be sorted out agian. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 The one dr did have me do a home meter test and it varies from 107 to 117 fasting. My other dr had me do the blood test at the lab and it is normal. So I'm not sure what to think. Both drs told me that the other method was not reliable??? I will get back to measuring my temps so that I can get the hc right. I did feel better before I lowered it this last time. She had me lower it by 7.5mg. I guess its time to find a new dr again and get labs done and get back on the right thyroid meds. Thanks for your help and for being here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Home glucose meters are VERY accurate. Diabetics on insulin depoend onthese for their very lives! SO whatever doc that says they are not accurate is full of BULL. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 We can't help you on this list when you test while on adrenal support. We can only help with test results that are from not being on anything for 2 weeks. DHEA, Cortef and Isocort all throw your results off. More than likely that is why all show high on the tests. You can trust your doctor (which I would not) OR you can go off all of them for 2 weeks prior to testing and retest. My instincts? That your doctor is full of it, gave you bad advice and that you are really low in cortisol which is why you feel shaky going off. Your doctor is also messing with your thyroid. Ask you doctor who s/he can figure out your adrenal levels when even the tests say that supplementing throws off results? Call Diagnos tech or wherever you got them done. They will confirm that it will throw off the results being on supplementation. Then get a new doctor. Cheri -----Original Message----- I just took the Adrenal Stress Saliva test and the results showed that my cortisol for all 4 points were so high that it was not even on the graph. My DHEA was also off the charts. Here's the thing...I am taking DHEA supplements and COrtef and Isocort. My doctor told me to continue taking it as normal during the test. He says that he can interpert the test results given the amount of meds I am taking. He says I am in a very dangerous spot and I need to reduce cortisol. So I have, and I feel muscle weakness and shakiness. Not sure if my adrenals are really OK or not now. What do you think? Now I am so confused. I've been on HC and Isocort for 9 months. My thyroid meds are messed up now too because my doc took me off Armour and in the conversion gave me 110mcg too much 4 months ago. I just now found out that the conversion amount was wrong. I am a mess and totally discouraged. Thanks for your thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I think you have low cortisol causing the thyroid not to get into the cells resulting in hypothyroid symptoms like the weight gain, irritability, leg swelling, puffiness (which can also be low cortisol). Cheri -----Original Message----- I was on Armour and a different dr switched me to Levoxyl/Cytomel. I immediately had hyper syptoms not knowing then that the conversion was 110 mcg over what I was taking in armour. We have reduced it 6 times now over the last 5 months to where I am on 175 of Levoxyl only. The reductions have been because of the developement of symptoms that she says are hyper without ever admitting to the over prescribed amt by 110mcg. She thinks I am still having hyper sympotms which I am not sure if it is actual hyper or adrenals because I now have some hypo symptoms reappearing. She thinks I have too much cortisol because of puffiness, leg swelling, irritablilty, hot flashes and weight gain. These all started 5 weeks ago. I am so confused I do not know what is hyper or hypo or adrenals anymore. I thought I use to know...now I can't tell anymore. The Dr. that gave me the saliva tests thinks that it is all insulin related and that I may now be pre-diabetic. Kind of a mess I think now??? . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Quite true Val. In our experience the home meters have been much more accurate than the ones used at the doctor's office or the hospital. The last time my daughter was hospitalized the meter they were using was downright archaic. Linn > > Home glucose meters are VERY accurate. Diabetics on insulin depoend > onthese for their very lives! SO whatever doc that says they are not > accurate is full of BULL. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 >>My average bp is 97/66 and my glucose at home is usually between 100 and 117 fasting. << Your BP is not showing high cortisl but I would be concerned with a glucose over 110. What I would suggest is taking a fasting glucose when you first get out of bed then agian in an hour withotu eating anything. You may be catching your Dawn rise with the 117's but if you are nbot you should start eating alow carb high fat and protein diet to help lower it. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Well, a better way to tell if you were on too much cortisol would be to track temps. The swelling, puffiness, etc. was more than likely thyroid related (maybe it not getting into the cells and/or getting high in the blood). Labs showing " hyper " is because docs don't understand the thyroid adrenal connection. I know people with TSH at zero who are still hypo. Your doctor needs to know how to read everything properly, understand RT3, high T3 from low cortisol and cellular resistance, and the role of adrenals with thyroid...and it sounds like she doesn't. I still think you need more HC. I didn't start to feel better until I got to 30-35 mg and I went completely off the Isocort. Only taking a 10 mg, 10 mg HC is not a good rhythm. You should space doses 3-4 hours apart and you do still need it at least 3 times a day because your baseline was extremely low. Check the ramping schedule in the files. The other thing is Isocort is an adrenal glandular so it has more in it than just cortisol. That is why I would go to only HC, especially before bed if you do take any. Cheri -----Original Message----- I was still having lots of symptoms and added the HC in June 2007. I had been on 20mg HC and 5 Isocort until about 2 weeks ago when she had me reduce to 2 Isocort and keeping HC at 20. I felt good on the original dose, but because of the swelling, puffiness, hot flashes, and anxiousness she said it was too much cortisol. Plus my thyroid labs showed hyper so they weren't hypo symptoms according to her.I now take 10mg HC with 2 Isocort in am and then 10mg at noon. I use to also take 1 Isocort before bed and she had me cut that out. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Well, a better way to tell if you were on too much cortisol would be to track temps. The swelling, puffiness, etc. was more than likely thyroid related (maybe it not getting into the cells and/or getting high in the blood). Labs showing " hyper " is because docs don't understand the thyroid adrenal connection. I know people with TSH at zero who are still hypo. Your doctor needs to know how to read everything properly, understand RT3, high T3 from low cortisol and cellular resistance, and the role of adrenals with thyroid...and it sounds like she doesn't. I still think you need more HC. I didn't start to feel better until I got to 30-35 mg and I went completely off the Isocort. Only taking a 10 mg, 10 mg HC is not a good rhythm. You should space doses 3-4 hours apart and you do still need it at least 3 times a day because your baseline was extremely low. Check the ramping schedule in the files. The other thing is Isocort is an adrenal glandular so it has more in it than just cortisol. That is why I would go to only HC, especially before bed if you do take any. Cheri -----Original Message----- I was still having lots of symptoms and added the HC in June 2007. I had been on 20mg HC and 5 Isocort until about 2 weeks ago when she had me reduce to 2 Isocort and keeping HC at 20. I felt good on the original dose, but because of the swelling, puffiness, hot flashes, and anxiousness she said it was too much cortisol. Plus my thyroid labs showed hyper so they weren't hypo symptoms according to her.I now take 10mg HC with 2 Isocort in am and then 10mg at noon. I use to also take 1 Isocort before bed and she had me cut that out. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 You can test while taking HC, but it requires that you put the HC in a capsule to be swallowed, so that it doesn't affect the saliva. It won't give you a perfect picture, as testing without it would, but some people use it as a gauge. Linn > > I haven't heard of them before, but Val has been trying for some time to > find a way to make sense out of tests taken while on HC and hasn't had any > luck. From everything I've gathered you can tell pretty easily if you are on > the correct dose by graphing your temps and doing the blood pressure thing. > Plus it doesn't cost anything! Otherwise, the only reason i see to retest > would be to see how much if any your adrenal glands have healed and how they > produce on their own without supplementation. And there is no way to do that > without going off of all HC and adreanl support supplements. :-) > > Cherie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 >>You can test while taking HC, but it requires that you put the HC in a capsule to be swallowed, so that it doesn't affect the saliva. It won't give you a perfect picture, as testing without it would, but some people use it as a gauge. << So says Dr who is not a doctor but a PHD, BUT honestly I have not seen this work either. My last saliva labs, which I am questioning anywasy as they were 12 days old when they got them, btu my AM saliva came in at 1.. Now if that was true (oit was before ANY HC that day) would I not be exhausted in the mornings? Then my noon came in at 31... after 5MG HC taken three four hours before the saliva draw. Now how can you tell ANYTHING from that? -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 >>You can test while taking HC, but it requires that you put the HC in a capsule to be swallowed, so that it doesn't affect the saliva. It won't give you a perfect picture, as testing without it would, but some people use it as a gauge. << So says Dr who is not a doctor but a PHD, BUT honestly I have not seen this work either. My last saliva labs, which I am questioning anywasy as they were 12 days old when they got them, btu my AM saliva came in at 1.. Now if that was true (oit was before ANY HC that day) would I not be exhausted in the mornings? Then my noon came in at 31... after 5MG HC taken three four hours before the saliva draw. Now how can you tell ANYTHING from that? -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 It will still affect saliva though in all doses after the morning reading because the morning dose will get into the cells in 30 minutes maximum and al the saliva readings after that will show the prior capsule doses. It will also affect the first reading if you have been on it 2 weeks prior because it impacts the communication link from the pituitary to the adrenals via the HPA. That is why we say get a baseline done before going on cortisol which includes glandulars. That said, I have been on glandulars and HC on my saliva tests (but when my blood showed low I was on nothing) because I can't go off without risking an ian crisis. I still showed super low and stage 7 so I guess when you are so bad it will still show stage 7, lol. I must not be producing nearly anything for it to still show stage 7 with supplementation, though when I increased my dose the last one showed stage 5. So the cortisol must be doing something. Cheri -----Original Message----- You can test while taking HC, but it requires that you put the HC in a capsule to be swallowed, so that it doesn't affect the saliva. It won't give you a perfect picture, as testing without it would, but some people use it as a gauge. Linn . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 I will get back to tracking me temps again. My doc was counting the isocort towards my total HC amount. Is that right? So she said I was on 32.5 mg of HC which was made up of 20mg cortef and 5 pellets of Isocort. So does that mean I was already at the 30-35 mg range of HC? Since I am only on 2 isocort now, can I just stop it completly now and add cortef instead. I did feel better also when I was doing the bedtime hc dose. I will start that back up again. Thanks for your thoughts...it does help so much. I feel better already as things are starting to make so much more sense now. > > Well, a better way to tell if you were on too much cortisol would be to > track temps. The swelling, puffiness, etc. was more than likely thyroid > related (maybe it not getting into the cells and/or getting high in the > blood). Labs showing " hyper " is because docs don't understand the thyroid > adrenal connection. I know people with TSH at zero who are still hypo. Your > doctor needs to know how to read everything properly, understand RT3, high > T3 from low cortisol and cellular resistance, and the role of adrenals with > thyroid...and it sounds like she doesn't. > > I still think you need more HC. I didn't start to feel better until I got to > 30-35 mg and I went completely off the Isocort. > > Only taking a 10 mg, 10 mg HC is not a good rhythm. You should space doses > 3-4 hours apart and you do still need it at least 3 times a day because your > baseline was extremely low. Check the ramping schedule in the files. > > The other thing is Isocort is an adrenal glandular so it has more in it than > just cortisol. That is why I would go to only HC, especially before bed if > you do take any. > > Cheri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Isocort is said to have 2.45mg cortisol in it, but we only have the manufacturers word on that and with people going directly from 8 pellets Isocirt to 20mg HC I have seen thyroid dumps regularly as the HC is MUCH strogner, so I would not count 5 pellets as 12.5mg HC. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Yes, she is counting right, however, 5 mg of HC is stronger than 5 mg of Isocort so keep that in mind. If you do a combo you might be more like 27.5 mg of cortisol when you are taking 32.5 mg combo. I was on 35 mg Isocort and still no where near enough. When I went to 25 mg HC cream I was getting better results than 35 mg Isocort. on 35 mg of HC cream compared to 35 mg of Isocort there was a HUGE difference. Cheri -----Original Message----- I will get back to tracking me temps again. My doc was counting the isocort towards my total HC amount. Is that right? So she said I was on 32.5 mg of HC which was made up of 20mg cortef and 5 pellets of Isocort. So does that mean I was already at the 30-35 mg range of HC? Since I am only on 2 isocort now, can I just stop it completly now and add cortef instead. I did feel better also when I was doing the bedtime hc dose. I will start that back up again. Thanks for your thoughts...it does help so much. I feel better already as things are starting to make so much more sense now. . Quote Link to comment Share on other sites More sharing options...
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