Re: app went not as expected!!

[Guest guest]

I'm sorry you had a bad expereince with your doc. Is he/she younger?

I've found that the younger docs are more against banding. We've gone

to a few specialists. And if I've learned anything from this

experience it's the fact that there are good doctors and bad doctors.

I'd get another opinion from another doc and see what they say. I've

never heard of the band being harmful. Our cranio/facial doc highly

recommended it. He's a doc at CHOP in Philly, which is the best

hospital in the country. Don't think they'd recommend it if it was bad.

[Guest guest]

I've never heard of there being risks with the band UNLESS you have an

inexperienced ortho. My son is 22 months and wore a doc band from 7.5-

9.5 months and is fine developmentally. Go check out CT for a free

eval.

[Guest guest]

I have seen 5 doctors and 3 orthotists prior to getting my son's

helmet and not one of them said the band was bad for brain growth.

Two of them said the band was a crock, but not even they said it

could be harmful. I would definitely get another opinion.

Jake-19m (tort resolved/rt plagio/DOCBand 8 weeks)

Jordan-4

>

> Hello all - Havnt been in here in a bit!. I had taken my daughter

to

> see the pead at hospital and he did everything in his power to

please

> me with answers altho i was not all taken in by this!. When i

asked

> about the helmet for my daughter he said there was no point in

even

> bringing it up into the conversation as i am here i will tell you

now

> NEVER get a helmet for your child because at the rate the skull

grows

> is diff in each and every child and the helmet could restrics

normal

> growth aswell as abnormal growth causing in swelling of the brain -

Did

> anyone else hear this from a paed or child specialist?. Now my

daughter

> is 9months old and nothing was said or done till now i went and

> demanded she was checkd and now i have to take her to the heath

> visitors once a week for her head 2 be measured ALSO once every

two

> weeks to our local gp for her head to be measured - GP measured it

at

> 47cm where the pead at the hospital measured 40cm the week before

that

> it was 41cm. at this moment in time i have sereous issues about

how

> much these specialists and gp's also the health visitors actualy

know

> about ANYTHING!!!

>

[Guest guest]

What an awful experience If you can you really need to seek a 2nd

oppinion.

>

> Hello all - Havnt been in here in a bit!. I had taken my daughter

to

> see the pead at hospital and he did everything in his power to

please

> me with answers altho i was not all taken in by this!. When i

asked

> about the helmet for my daughter he said there was no point in even

> bringing it up into the conversation as i am here i will tell you

now

> NEVER get a helmet for your child because at the rate the skull

grows

> is diff in each and every child and the helmet could restrics

normal

> growth aswell as abnormal growth causing in swelling of the brain -

Did

> anyone else hear this from a paed or child specialist?. Now my

daughter

> is 9months old and nothing was said or done till now i went and

> demanded she was checkd and now i have to take her to the heath

> visitors once a week for her head 2 be measured ALSO once every two

> weeks to our local gp for her head to be measured - GP measured it

at

> 47cm where the pead at the hospital measured 40cm the week before

that

> it was 41cm. at this moment in time i have sereous issues about how

> much these specialists and gp's also the health visitors actualy

know

> about ANYTHING!!!

>

[Guest guest]

The whole reason bands are FDA approved is to ensure that they do not

interfere with brain growth. If the brain does grow very quickly, the

head grows too and the band will become tight, you'll see red spots

etc - so you know you have to go in for an adjustment. Many times my

daughter had to go in before her next appointment was due, and they

always fit us in. Its not like you just keep them in a too small

helmet and torture them. I would switch peds if mine said that a

treatment was never appropriate - it just seems too close minded.

-christine

sydney 2 yrs starband grad

>

> Hello all - Havnt been in here in a bit!. I had taken my daughter to

> see the pead at hospital and he did everything in his power to please

> me with answers altho i was not all taken in by this!. When i asked

> about the helmet for my daughter he said there was no point in even

> bringing it up into the conversation as i am here i will tell you now

> NEVER get a helmet for your child because at the rate the skull grows

> is diff in each and every child and the helmet could restrics normal

> growth aswell as abnormal growth causing in swelling of the brain - Did

> anyone else hear this from a paed or child specialist?. Now my daughter

> is 9months old and nothing was said or done till now i went and

> demanded she was checkd and now i have to take her to the heath

> visitors once a week for her head 2 be measured ALSO once every two

> weeks to our local gp for her head to be measured - GP measured it at

> 47cm where the pead at the hospital measured 40cm the week before that

> it was 41cm. at this moment in time i have sereous issues about how

> much these specialists and gp's also the health visitors actualy know

> about ANYTHING!!!

>

[Guest guest]

Wow I can't believe the ped told you that! My son had 3 helmets in

5 months because he had so much head growth. You would definitely

know if the helmet is getting too tight, like the poster before this

said, you would see red marks that did not go away quickly. Plus if

I had not had a helmet for my son he really would have been

deformed. He had severe Plagio which made his forehead boss, ears,

eyes and even his cheeks were really misaligned. My daughter now

has a helmet and hers was not quite as bad but you can look at her

and tell one eye is open more widely and one cheek is much rounder

(on the flat side). Her ears are pretty misaligned as well. I

personally would seek help from someone else, do you have anyone in

your area that specializes in this sort of thing? We went to a

pediatric plastic surgeon and they were so great about everything,

very knowledgeable.

> >

> > Hello all - Havnt been in here in a bit!. I had taken my

daughter to

> > see the pead at hospital and he did everything in his power to

please

> > me with answers altho i was not all taken in by this!. When i

asked

> > about the helmet for my daughter he said there was no point in

even

> > bringing it up into the conversation as i am here i will tell

you now

> > NEVER get a helmet for your child because at the rate the skull

grows

> > is diff in each and every child and the helmet could restrics

normal

> > growth aswell as abnormal growth causing in swelling of the

brain - Did

> > anyone else hear this from a paed or child specialist?. Now my

daughter

> > is 9months old and nothing was said or done till now i went and

> > demanded she was checkd and now i have to take her to the heath

> > visitors once a week for her head 2 be measured ALSO once every

two

> > weeks to our local gp for her head to be measured - GP measured

it at

> > 47cm where the pead at the hospital measured 40cm the week

before that

> > it was 41cm. at this moment in time i have sereous issues about

how

> > much these specialists and gp's also the health visitors actualy

know

> > about ANYTHING!!!

> >

>