cranio tech before neurosurgeon??

[Guest guest]

Hi, I am very new at this, my daughter is 3 months old and I know she

has mild-mod plagio (I hope that's all, haven't seen the specialist

yet). Anyway, I am waiting for the referral to go through. I was

wondering if it's possible to have the consultation at craniotech

before the neuro app. I am just anticipating it will be a long wait

for her appointment, and would it be helpful to have a report from

cranio with me for the dr. visit? Maybe I am totally wrong, please

let me know what you think? Also, I think cranio's assessment early

on would be a great baseline for the repositioning process. Does

cranio typically have a long wait??

Also, does anyone know of a good way to buy memory foam for

repositioning?

Typically, how long have most of you waited for your neuro

appoinment? At what point should I put my foot down and beg for a

sooner one?? She's 3 months, and I asked how long the wait is and

they said June (if it's not urgent). My pedi didn't even think a

referral was necessary--she's one of those who say " she'll grow out

of it " ! So I know my pedi will make it seem non-urgent.....any

thoughts???

Last thing, my pedi doesn't think xrays are necessary. It sounds

like most of your little ones had xrays right away. Should I wait

and ask the neurosurgeon, or ask my pedi again?? She thinks I'm over-

reacting, and our chemistry isn't very good right now. I have

started repositioning so we'll see..... Sorry for all of the

questions, I just have so much to figure out, and I'd be lost without

all of you!!!!! Thanks,

Maggie

[Guest guest]

Hi there. We were referred to a neurosurgeon when my son was 2

months old and couldn't get an appointment for 2 months. We didn't

have any xrays. I'm not sure they give a complete picture for what

they need to tell if the sutures are fusing prematurely, and our ped

said she wasn't qualified to know for sure anyway, so we just went

to the neuro. Once we made the appt with the neuro, he referred us

for a CT scan, which my son had at 3 months old. But we didn't get

the results until the appt at 4 months old. Very stressful! But the

good news was that his sutures were normal and it was " just " plagio.

Don't be surprised if the neuro tells you not to band. Most tend to

be anti-banding. The one we saw said not to, so I trusted that it

would " work itself out, " but it didn't. The one ped we saw a few

times was also anti-banding. I ended up seeing another ped and a

craniofacial surgeon who finally wrote the presription for me.

An evaluation at Cranial Tech is free, and they do a great job of

taking photos and measurements and it would be a great baseline for

judging the success of repositioning. I have heard that a second

evaluation (if you repo for a couple of months and want to chart

your progress) costs $100 or a $150, I can't remember exactly which.

But that might be worth it if you can avoid a band altogether. At 3

months old, I think there is time to wait for the appointment with

the neuro (I wouldn't wait longer than 2 months though) and try repo

in the meantime.

Good luck and keep us posted!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> Hi, I am very new at this, my daughter is 3 months old and I know

she

> has mild-mod plagio (I hope that's all, haven't seen the

specialist

> yet). Anyway, I am waiting for the referral to go through. I was

> wondering if it's possible to have the consultation at craniotech

> before the neuro app. I am just anticipating it will be a long

wait

> for her appointment, and would it be helpful to have a report from

> cranio with me for the dr. visit? Maybe I am totally wrong,

please

> let me know what you think? Also, I think cranio's assessment

early

> on would be a great baseline for the repositioning process. Does

> cranio typically have a long wait??

>

> Also, does anyone know of a good way to buy memory foam for

> repositioning?

>

>

> Typically, how long have most of you waited for your neuro

> appoinment? At what point should I put my foot down and beg for a

> sooner one?? She's 3 months, and I asked how long the wait is and

> they said June (if it's not urgent). My pedi didn't even think a

> referral was necessary--she's one of those who say " she'll grow

out

> of it " ! So I know my pedi will make it seem non-urgent.....any

> thoughts???

>

> Last thing, my pedi doesn't think xrays are necessary. It sounds

> like most of your little ones had xrays right away. Should I wait

> and ask the neurosurgeon, or ask my pedi again?? She thinks I'm

over-

> reacting, and our chemistry isn't very good right now. I have

> started repositioning so we'll see..... Sorry for all of the

> questions, I just have so much to figure out, and I'd be lost

without

> all of you!!!!! Thanks,

> Maggie

>

[Guest guest]

I just wanted to add that we didnt see a neurosurgeon or have an x-ray or anything like that. We asked both the people at Cranial Tech and also our pediatrician if there was any chance it was craniosynostosis, and both said no... that it looked like classic plagio, and that no further evaluations of the sutures were needed. I think some insurance companies might want the prescription to come from a neurosurgeon, but for us, we just went straight from pediatrician to band, and that worked for us

[Guest guest]

Thanks Pam, for everything. Like I said, I wouldn't know where to

begin without this group of knowledgable parents. With the memory

foam there are so many to choose from, do remember which thickness

you bought?? I really appreciated the links you posted. I am so

glad you are seeing great progress with your little one! Best

wishes!!

-- In Plagiocephaly , " Pam Schraedley Desmond "

<pam@...> wrote:

>

> I just wanted to add that we didnt see a neurosurgeon or have an x-

ray or

> anything like that. We asked both the people at Cranial Tech and

also our

> pediatrician if there was any chance it was craniosynostosis, and

both said

> no... that it looked like classic plagio, and that no further

evaluations of

> the sutures were needed. I think some insurance companies might

want the

> prescription to come from a neurosurgeon, but for us, we just went

straight

> from pediatrician to band, and that worked for us.

>

> We didn't use memory foam for repositioning. We used it after he

got the

> band to help him sleep in it. We got a king-sized one from

> overstock.comand cut it down to crib size. All sizes are the same

> price, which is why we

> got the king, so we could make spares for the pack-n-play etc. We

did use a

> wedge system for repositioning. Like this one:

> http://www.toysrus.com/product/index.jsp?productId=2585661 We just

used the

> velcro wedges on his sheet saver, and they stuck to that. It

worked for a

> while until he got too mobile and wiggly in his sleep.

>

> As for being proactive with your baby (which you clearly are since

you are

> on top of it so early!), I think it's fine to fight for what you

feel is

> right for her. Our pedi was also pooh-poohing the problem, but

it's not her

> kid! We fought for what we wanted, and banded early. Now 6 weeks

later,

> his head looks great and we'll probably be done in just 2 more

weeks, so I

> am so glad we fought to get it taken care of early.

>

> Good luck with your sweetie!

>

> -Pam

>

>

>

> On 3/11/08, maggiestutz <maggiestutz@...> wrote:

> >

> > Hi, I am very new at this, my daughter is 3 months old and I

know she

> > has mild-mod plagio (I hope that's all, haven't seen the

specialist

> > yet). Anyway, I am waiting for the referral to go through. I was

> > wondering if it's possible to have the consultation at craniotech

> > before the neuro app. I am just anticipating it will be a long

wait

> > for her appointment, and would it be helpful to have a report from

> > cranio with me for the dr. visit? Maybe I am totally wrong, please

> > let me know what you think? Also, I think cranio's assessment

early

> > on would be a great baseline for the repositioning process. Does

> > cranio typically have a long wait??

> >

> > Also, does anyone know of a good way to buy memory foam for

> > repositioning?

> >

> > Typically, how long have most of you waited for your neuro

> > appoinment? At what point should I put my foot down and beg for a

> > sooner one?? She's 3 months, and I asked how long the wait is and

> > they said June (if it's not urgent). My pedi didn't even think a

> > referral was necessary--she's one of those who say " she'll grow

out

> > of it " ! So I know my pedi will make it seem non-urgent.....any

> > thoughts???

> >

> > Last thing, my pedi doesn't think xrays are necessary. It sounds

> > like most of your little ones had xrays right away. Should I wait

> > and ask the neurosurgeon, or ask my pedi again?? She thinks I'm

over-

> > reacting, and our chemistry isn't very good right now. I have

> > started repositioning so we'll see..... Sorry for all of the

> > questions, I just have so much to figure out, and I'd be lost

without

> > all of you!!!!! Thanks,

> > Maggie

> >

> >

> >

>

[Guest guest]

We got 1 inch foam. I was afraid that getting much thicker could be a SIDS issue. As far as I know, there is no SIDS risk with memory foam, but I know firm mattresses are considered safer, so I wanted to be conservative. And when he started flipping onto his stomach to sleep, I took out the foam. Even the 1 inch did seem to help a bit. I think others have used 1.5 inch also.

-Pam

On 3/11/08, maggiestutz <maggiestutz@...> wrote:

Thanks Pam, for everything. Like I said, I wouldn't know where to begin without this group of knowledgable parents. With the memory foam there are so many to choose from, do remember which thickness you bought?? I really appreciated the links you posted. I am so

glad you are seeing great progress with your little one! Best wishes!!-- In Plagiocephaly , " Pam Schraedley Desmond "

<pam@...> wrote:>> I just wanted to add that we didnt see a neurosurgeon or have an x-ray or> anything like that. We asked both the people at Cranial Tech and also our

> pediatrician if there was any chance it was craniosynostosis, and both said> no... that it looked like classic plagio, and that no further evaluations of> the sutures were needed. I think some insurance companies might

want the> prescription to come from a neurosurgeon, but for us, we just went straight> from pediatrician to band, and that worked for us.> > We didn't use memory foam for repositioning. We used it after he

got the> band to help him sleep in it. We got a king-sized one from> overstock.comand cut it down to crib size. All sizes are the same> price, which is why we> got the king, so we could make spares for the pack-n-play etc. We

did use a> wedge system for repositioning. Like this one:> http://www.toysrus.com/product/index.jsp?productId=2585661 We just

used the> velcro wedges on his sheet saver, and they stuck to that. It worked for a> while until he got too mobile and wiggly in his sleep.> > As for being proactive with your baby (which you clearly are since

you are> on top of it so early!), I think it's fine to fight for what you feel is> right for her. Our pedi was also pooh-poohing the problem, but it's not her> kid! We fought for what we wanted, and banded early. Now 6 weeks

later,> his head looks great and we'll probably be done in just 2 more weeks, so I> am so glad we fought to get it taken care of early.> > Good luck with your sweetie!> > -Pam

> > >

> On 3/11/08, maggiestutz <maggiestutz@...> wrote:> >> > Hi, I am very new at this, my daughter is 3 months old and I know she> > has mild-mod plagio (I hope that's all, haven't seen the

specialist> > yet). Anyway, I am waiting for the referral to go through. I was> > wondering if it's possible to have the consultation at craniotech> > before the neuro app. I am just anticipating it will be a long

wait> > for her appointment, and would it be helpful to have a report from> > cranio with me for the dr. visit? Maybe I am totally wrong, please> > let me know what you think? Also, I think cranio's assessment

early> > on would be a great baseline for the repositioning process. Does> > cranio typically have a long wait??> >> > Also, does anyone know of a good way to buy memory foam for

> > repositioning?> >> > Typically, how long have most of you waited for your neuro> > appoinment? At what point should I put my foot down and beg for a> > sooner one?? She's 3 months, and I asked how long the wait is and

> > they said June (if it's not urgent). My pedi didn't even think a> > referral was necessary--she's one of those who say " she'll grow out> > of it " ! So I know my pedi will make it seem non-urgent.....any

> > thoughts???> >> > Last thing, my pedi doesn't think xrays are necessary. It sounds> > like most of your little ones had xrays right away. Should I wait> > and ask the neurosurgeon, or ask my pedi again?? She thinks I'm

over-> > reacting, and our chemistry isn't very good right now. I have> > started repositioning so we'll see..... Sorry for all of the> > questions, I just have so much to figure out, and I'd be lost

without> > all of you!!!!! Thanks,> > Maggie> >> > > >>