Re: Plagio at 5 months age

[Guest guest]

We used a helmet called the DOC band at 4 months through 6 months and received excellent correction. Read past posts on this site. Many parents band both early and later. They all see excellent results. The results vary as to the experience of the orthotist(the person who cuts and measures your child while in the band). I am unsure of Belgium but in the USA we have Cranial Technologies and Starbands as the leading providers. Look at their websites for more info. Cranial Tech told me that they have customers who fly in from other countries for treatments. Tammy

From: lakoivan <lakoivan@...>Subject: Plagio at 5 months agePlagiocephaly Date: Monday, March 24, 2008, 9:53 AM

Hello, I am new to this group. Our daughter is 5 months old and has developed a positional plagio, mainly as a result of a left side torticollis (which has now been treated, but the plagio remains). I have consulted with my pediatrician and kinesitherapist, both of whom say that the case is mild and a few sessions with an ostheopathe will help. (My first osteo visit is on April 7th). However, everything I read on medial site on the internet says that no matter what the degree of the plagio is - mild to excessive, the placing of a helmet is required if the infant is 5 months or older. Have any of you had to treat that in you children at 5 months and more, where no helmet was necessary, but only neck exercises and repositioning were enough? I am not particularly worried about having to place a helmet, but would rather like to avoid it if I can. Also, doctors here (in Belgium) tend to

say that "she will grow out ot it" once she starts crowling and sitting more, but I know a few cases, where it was not "grown out of" and different interventions were needed at 12-24 months of age - when it takes much longer to cure and it's more annoying for the childMany thanks in advance for any info that you can share. Kind regards, ivanka

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Hello Ivanka,

My son is 6 mths and at 41/2 mths were tried physical therapy and repositioning, after 6 weeks the torticollis was corrected, however the mild plagio remained. The neurosurgeon and orthotist felt like using the helmet/band would only benefit his head shape. Since he is a boy and most likely wear his hair short, we decided to move forward with the band/helmet. We get it this week! Anyhow, the younger they are the quicker the shaping. However, you can correct at anytime, I know there are women who have shared stories of 12 mth - 15 mth kidos who got real nice correction. So if your not ready to make a decision, put a time frame on how long you will wait, and then make a decision, again the younger they are the quicker the head will shape, since the skull is so soft. And yes with mobility your daughter wont spend so

much time on her back and head.

Just some things to think about.

Good luck!

Plagio at 5 months age

Hello, I am new to this group. Our daughter is 5 months old and has developed a positional plagio, mainly as a result of a left side torticollis (which has now been treated, but the plagio remains). I have consulted with my pediatrician and kinesitherapist, both of whom say that the case is mild and a few sessions with an ostheopathe will help. (My first osteo visit is on April 7th). However, everything I read on medial site on the internet says that no matter what the degree of the plagio is - mild to excessive, the placing of a helmet is required if the infant is 5 months or older. Have any of you had to treat that in you children at 5 months and more, where no helmet was necessary, but only neck exercises and repositioning were enough? I am not particularly worried about having to place a helmet, but would rather like to avoid it if I can. Also, doctors here (in Belgium) tend to

say that "she will grow out ot it" once she starts crowling and sitting more, but I know a few cases, where it was not "grown out of" and different interventions were needed at 12-24 months of age - when it takes much longer to cure and it's more annoying for the childMany thanks in advance for any info that you can share. Kind regards, ivanka

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Ivanka,

You may want to post a few pictures of

your daughter’s head on the photo board of this group’s

website. I suggest this because in my experience the definition of “mild”

plagio and “normal” head shape that “will look better as the

child grows older and starts crawling, etc.” varies widely by

pediatrician and also throughout the world. Several doctors in Australia defined my son’s plagio and

brachy as “mild” yet now that I have seen different doctors in the US it

is clear that my son began as a high moderate to severe case. If you post

pictures here, you can at least get some feedback from other parents of kids

with plagio – their opinions as to whether or not they would band.

It isn’t a professional opinion, and I think the majority of us on this

site are in favor of banding (because we have seen success with it), but it may

be helpful to have some feedback from other parents that have struggled with

the same issue.

I think professional opinions vary on the

age at which a child’s head shape will no longer “round out”

significantly on its own – I have read it is at 6-7 months. In my

case, I did all the repositioning I could do until my son was about 5 months

old at which point he moved around so much it was no longer feasible to

reposition him. He was banded in Australia

from 6-9 months and is now in a second band in the US (a DOC band from Cranial

Technologies) since 9.5 months, he is still in the band at 11 months and I

expect him to wear it for another month. It has been a long time but as I

look through the pictures from where he started, he has improved so much it is

all worth it. His head will never be perfectly round, but he is looking

better every day! (And I do believe this would have been a much faster

process had he been banded younger and if we had begun in the US with a DOC

band)

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of lakoivan

Sent: Monday, March 24, 2008 8:53

PM

Plagiocephaly

Subject: Plagio at 5

months age

Hello,

I am new to this group. Our daughter is 5 months old and has

developed a positional plagio, mainly as a result of a left side

torticollis (which has now been treated, but the plagio remains). I

have consulted with my pediatrician and kinesitherapist, both of whom

say that the case is mild and a few sessions with an ostheopathe will

help. (My first osteo visit is on April 7th).

However, everything I read on medial site on the internet says that

no matter what the degree of the plagio is - mild to excessive, the

placing of a helmet is required if the infant is 5 months or older.

Have any of you had to treat that in you children at 5 months and

more, where no helmet was necessary, but only neck exercises and

repositioning were enough? I am not particularly worried about having

to place a helmet, but would rather like to avoid it if I can.

Also, doctors here (in Belgium) tend to say that " she will grow out

ot it " once she starts crowling and sitting more, but I know a few

cases, where it was not " grown out of " and different interventions

were needed at 12-24 months of age - when it takes much longer to

cure and it's more annoying for the child

Many thanks in advance for any info that you can share.

Kind regards,

ivanka

[Guest guest]

Ivanka, Welcome to the group. I've heard that after 6 months repositioning doesn't work and that using a helmet is the only way to treat the head shape. My doctor also told me that my son's head would round out over time but after using repositioning for 4 months, I was still not happy with the shape of my son's head and decided to get the DOCband. My son is 7.5 months old and has had the helmet for 1 week now and has adjusted great to wearing it. He doesn't even know it is on his head which I find amazing. What I did was I said to myself that if by 6.5 months I don't see the results I want in my son's head than I am going to get a helmet for him. Your daughter is only 5 months old so you have time to decide but I would set some sort of time limit for yourself and then reevaluate your daughters head and see what you want to do. Helmet or not. Good luck with your decision. I believe that

starband has facilities in europe. I' m not sure if Cranial Technologies has any facilities in europe. Good luck, Sybillakoivan <lakoivan@...> wrote: Hello, I am new to this group. Our daughter is 5 months old and has developed a positional plagio, mainly as a result of a left side torticollis (which has now been treated, but the plagio remains). I have consulted with my pediatrician and kinesitherapist, both of whom say that the case is mild and a few sessions with an

ostheopathe will help. (My first osteo visit is on April 7th). However, everything I read on medial site on the internet says that no matter what the degree of the plagio is - mild to excessive, the placing of a helmet is required if the infant is 5 months or older. Have any of you had to treat that in you children at 5 months and more, where no helmet was necessary, but only neck exercises and repositioning were enough? I am not particularly worried about having to place a helmet, but would rather like to avoid it if I can. Also, doctors here (in Belgium) tend to say that "she will grow out ot it" once she starts crowling and sitting more, but I know a few cases, where it was not "grown out of" and different interventions were needed at 12-24 months of age - when it takes much longer to cure and it's more annoying for the childMany thanks in advance for any info that you can share. Kind regards,

ivanka

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Many thanks, Sybil and ,

for your info and for having looked at pics.

I have written to both CT and Starband Re: facilities in Europe and

am waiting for an answer.

In fact, the more I think of it, the more I realise I am more afraid

to hear that she won't need to wear a helmet, than that she would. As

I have heard now three times the " she'll grow it out " version, and

that her case is very mild. And somehow I am not convinced. Without

being paranoid. Moreover, in Europe, awareness of and treatment of

plagio is not at all as advanced as it is in the US (what I realise

after consultation of all the info available in this great group and

the sites of CT and Starband).

So, I have a meeting with a neuropaediatrician on 3rd April, I will

listen carefully to what he has to say and see where that takes me.

When you have a minute, could you please have a look at Klara's

pics - I will upload some top view ones (Album name is Klara-Belgium-

5mtns old) and let me know what you think

I am glad you are so happy with the results the banding has had on

your kids.

Thanks again. With best wishes

Ivanka

> Hello,

> I am new to this group. Our daughter is 5 months old and has

> developed a positional plagio, mainly as a result of a left side

> torticollis (which has now been treated, but the plagio remains). I

> have consulted with my pediatrician and kinesitherapist, both of

whom

> say that the case is mild and a few sessions with an ostheopathe

will

> help. (My first osteo visit is on April 7th).

>

> However, everything I read on medial site on the internet says that

> no matter what the degree of the plagio is - mild to excessive, the

> placing of a helmet is required if the infant is 5 months or older.

>

> Have any of you had to treat that in you children at 5 months and

> more, where no helmet was necessary, but only neck exercises and

> repositioning were enough? I am not particularly worried about

having

> to place a helmet, but would rather like to avoid it if I can.

>

> Also, doctors here (in Belgium) tend to say that " she will grow out

> ot it " once she starts crowling and sitting more, but I know a few

> cases, where it was not " grown out of " and different interventions

> were needed at 12-24 months of age - when it takes much longer to

> cure and it's more annoying for the child

>

> Many thanks in advance for any info that you can share.

> Kind regards,

> ivanka

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

Ivanka, Glad I could help. I can't look at pictures here at work but will check them out at home. I think a lot of people in this group got the "she'll grow it out" story but in the end it is how you feel about your child's head that is most important and is what you need to fight to correct if you believe it is just not right. That's how I felt. When you find out where the CT or Starband are in Europe, if it is close enough and you are still not satisfied with what the doctors have to say you can get a FREE consultation. I think all of them give free consultations. The attached website is from Starband. I believe it is in the UK. On the website I sent you below, go down to the question "Can I send pictures for you to assess," There is a person's email there that you can actually send pictures to and they will get back to you. I sent photos and they responded within a few days so that may be

helpful as well. Try to get photos when your daughters hair is wet from top, front, back and sides. http://www.ossur.co.uk/plagiocephaly/faqs This website also has some contact information on it you may want to check out since it is in Europe. Hope this is helpful. Sybillakoivan <lakova@...> wrote: Many thanks, Sybil and ,for your info and for having looked at pics. I have written to both CT and

Starband Re: facilities in Europe and am waiting for an answer. In fact, the more I think of it, the more I realise I am more afraid to hear that she won't need to wear a helmet, than that she would. As I have heard now three times the "she'll grow it out" version, and that her case is very mild. And somehow I am not convinced. Without being paranoid. Moreover, in Europe, awareness of and treatment of plagio is not at all as advanced as it is in the US (what I realise after consultation of all the info available in this great group and the sites of CT and Starband). So, I have a meeting with a neuropaediatrician on 3rd April, I will listen carefully to what he has to say and see where that takes me. When you have a minute, could you please have a look at Klara's pics - I will upload some top view ones (Album name is Klara-Belgium-5mtns old) and let me know what you thinkI am glad you are so happy with the

results the banding has had on your kids.Thanks again. With best wishesIvanka> Hello, > I am new to this group. Our daughter is 5 months old and has > developed a positional plagio, mainly as a result of a left side > torticollis (which has now been treated, but the plagio remains). I > have consulted with my pediatrician and kinesitherapist, both of whom > say that the case is mild and a few sessions with an ostheopathe will > help. (My first osteo visit is on April 7th). > > However, everything I read on medial site on the internet says

that > no matter what the degree of the plagio is - mild to excessive, the > placing of a helmet is required if the infant is 5 months or older. > > Have any of you had to treat that in you children at 5 months and > more, where no helmet was necessary, but only neck exercises and > repositioning were enough? I am not particularly worried about having > to place a helmet, but would rather like to avoid it if I can. > > Also, doctors here (in Belgium) tend to say that "she will grow out > ot it" once she starts crowling and sitting more, but I know a few > cases, where it was not "grown out of" and different interventions > were needed at 12-24 months of age - when it takes much longer to > cure and it's more annoying for the child> > Many thanks in advance for any info that you can share. > Kind regards, > ivanka> > > >

> > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.>

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

It was hard to tell the degree of plagio in the pictures (even

getting the right angles can sometimes be hard to tell!). I do

think she'd benefit from a band though. I know in times that I

emailed CT, I never got a response...you may want to call. We had a

great experience with CT and I would band again if I need to.

> > Hello,

> > I am new to this group. Our daughter is 5 months old and has

> > developed a positional plagio, mainly as a result of a left side

> > torticollis (which has now been treated, but the plagio

remains). I

> > have consulted with my pediatrician and kinesitherapist, both of

> whom

> > say that the case is mild and a few sessions with an ostheopathe

> will

> > help. (My first osteo visit is on April 7th).

> >

> > However, everything I read on medial site on the internet says

that

> > no matter what the degree of the plagio is - mild to excessive,

the

> > placing of a helmet is required if the infant is 5 months or

older.

> >

> > Have any of you had to treat that in you children at 5 months

and

> > more, where no helmet was necessary, but only neck exercises and

> > repositioning were enough? I am not particularly worried about

> having

> > to place a helmet, but would rather like to avoid it if I can.

> >

> > Also, doctors here (in Belgium) tend to say that " she will grow

out

> > ot it " once she starts crowling and sitting more, but I know a

few

> > cases, where it was not " grown out of " and different

interventions

> > were needed at 12-24 months of age - when it takes much longer

to

> > cure and it's more annoying for the child

> >

> > Many thanks in advance for any info that you can share.

> > Kind regards,

> > ivanka

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with

Mobile.

> Try it now.

> >

>

[Guest guest]

Hi ,

Thanks for taking time to look at pics and advice. I did hear from

CT, in fact, they only have facilities in Spain...I will need to find

an alternative. Not easy, in Europe, where plagio is not treated,

where the majority of pediatricians look at you like you are nuts

when asking about banding, and where kids are left to " grow out of

it " . As plagio is by and largely considered only an esthetical

issue...

So all advice and info anyone can share is very welcome.

All the best

ivanka

> > > Hello,

> > > I am new to this group. Our daughter is 5 months old and has

> > > developed a positional plagio, mainly as a result of a left

side

> > > torticollis (which has now been treated, but the plagio

> remains). I

> > > have consulted with my pediatrician and kinesitherapist, both

of

> > whom

> > > say that the case is mild and a few sessions with an

ostheopathe

> > will

> > > help. (My first osteo visit is on April 7th).

> > >

> > > However, everything I read on medial site on the internet says

> that

> > > no matter what the degree of the plagio is - mild to excessive,

> the

> > > placing of a helmet is required if the infant is 5 months or

> older.

> > >

> > > Have any of you had to treat that in you children at 5 months

> and

> > > more, where no helmet was necessary, but only neck exercises

and

> > > repositioning were enough? I am not particularly worried about

> > having

> > > to place a helmet, but would rather like to avoid it if I can.

> > >

> > > Also, doctors here (in Belgium) tend to say that " she will grow

> out

> > > ot it " once she starts crowling and sitting more, but I know a

> few

> > > cases, where it was not " grown out of " and different

> interventions

> > > were needed at 12-24 months of age - when it takes much longer

> to

> > > cure and it's more annoying for the child

> > >

> > > Many thanks in advance for any info that you can share.

> > > Kind regards,

> > > ivanka

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Be a better friend, newshound, and know-it-all with

> Mobile.

> > Try it now.

> > >

> >

>

[Guest guest]

In addition to Spain, there are also numerous plagio treatment facilities in the UK. Just google it.lakoivan <lakova@...> wrote: Hi , Thanks for taking time to look at pics and advice. I did hear from CT, in fact, they only have facilities in Spain...I will need to find an alternative. Not easy, in Europe, where plagio is not treated, where the majority of pediatricians look at you like you are nuts when asking about banding, and where kids are left to "grow out of it". As plagio is by and largely considered

only an esthetical issue... So all advice and info anyone can share is very welcome. All the best ivanka > > > Hello, > > > I am new to this group. Our daughter is 5 months old and has > > > developed a positional plagio, mainly as a result of a left side > > > torticollis (which has now been treated, but the plagio > remains). I > > > have consulted with my pediatrician and kinesitherapist, both of > > whom > > > say that the case is mild and a few sessions with an ostheopathe > > will > > > help. (My first osteo visit is on April 7th). > > > > > > However, everything I read on medial site on the internet says > that > > > no matter what the

degree of the plagio is - mild to excessive, > the > > > placing of a helmet is required if the infant is 5 months or > older. > > > > > > Have any of you had to treat that in you children at 5 months > and > > > more, where no helmet was necessary, but only neck exercises and > > > repositioning were enough? I am not particularly worried about > > having > > > to place a helmet, but would rather like to avoid it if I can. > > > > > > Also, doctors here (in Belgium) tend to say that "she will grow > out > > > ot it" once she starts crowling and sitting more, but I know a > few > > > cases, where it was not "grown out of" and different > interventions > > > were needed at 12-24 months of age - when it takes much longer > to > > > cure and

it's more annoying for the child > > > > > > Many thanks in advance for any info that you can share. > > > Kind regards, > > > ivanka > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now. > > > > > >

[Guest guest]

Maybe check out the repositioning file. It is kind of overwhelming

but maybe some of the parents who repoed with sucess could help you

with a " plan of attack. " Good luck.

lisa

> > > > Hello,

> > > > I am new to this group. Our daughter is 5 months old and

has

> > > > developed a positional plagio, mainly as a result of a left

> side

> > > > torticollis (which has now been treated, but the plagio

> > remains). I

> > > > have consulted with my pediatrician and kinesitherapist,

both

> of

> > > whom

> > > > say that the case is mild and a few sessions with an

> ostheopathe

> > > will

> > > > help. (My first osteo visit is on April 7th).

> > > >

> > > > However, everything I read on medial site on the internet

says

> > that

> > > > no matter what the degree of the plagio is - mild to

excessive,

> > the

> > > > placing of a helmet is required if the infant is 5 months

or

> > older.

> > > >

> > > > Have any of you had to treat that in you children at 5

months

> > and

> > > > more, where no helmet was necessary, but only neck

exercises

> and

> > > > repositioning were enough? I am not particularly worried

about

> > > having

> > > > to place a helmet, but would rather like to avoid it if I

can.

> > > >

> > > > Also, doctors here (in Belgium) tend to say that " she will

grow

> > out

> > > > ot it " once she starts crowling and sitting more, but I

know a

> > few

> > > > cases, where it was not " grown out of " and different

> > interventions

> > > > were needed at 12-24 months of age - when it takes much

longer

> > to

> > > > cure and it's more annoying for the child

> > > >

> > > > Many thanks in advance for any info that you can share.

> > > > Kind regards,

> > > > ivanka

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Be a better friend, newshound, and know-it-all with

> > Mobile.

> > > Try it now.

> > > >

> > >

> >

>

[Guest guest]

Hi Sybil,

we see the neuropediatrician on Thursday afternoon. I am looking

forward to what he'll have to say, but am decided to ask him for a

prescription for banding, even if he tells me it's not needed at that

stage. I will let you know when back. Thanks a lot for caring and

great to hear your son's had such an improvement in just two weeks.

How long will he wear it?

all the best

ivanka

> > Hello,

> > I am new to this group. Our daughter is 5 months old and has

> > developed a positional plagio, mainly as a result of a left side

> > torticollis (which has now been treated, but the plagio remains).

I

> > have consulted with my pediatrician and kinesitherapist, both of

> whom

> > say that the case is mild and a few sessions with an ostheopathe

> will

> > help. (My first osteo visit is on April 7th).

> >

> > However, everything I read on medial site on the internet says

that

> > no matter what the degree of the plagio is - mild to excessive,

the

> > placing of a helmet is required if the infant is 5 months or

older.

> >

> > Have any of you had to treat that in you children at 5 months and

> > more, where no helmet was necessary, but only neck exercises and

> > repositioning were enough? I am not particularly worried about

> having

> > to place a helmet, but would rather like to avoid it if I can.

> >

> > Also, doctors here (in Belgium) tend to say that " she will grow

out

> > ot it " once she starts crowling and sitting more, but I know a

few

> > cases, where it was not " grown out of " and different

interventions

> > were needed at 12-24 months of age - when it takes much longer to

> > cure and it's more annoying for the child

> >

> > Many thanks in advance for any info that you can share.

> > Kind regards,

> > ivanka

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with

Mobile.

> Try it now.

> >

>

>

>

>

>

>

> ---------------------------------

> OMG, Sweet deal for users/friends: Get A Month of

Blockbuster Total Access, No Cost. W00t

>

[Guest guest]

ivanka, He is supposed to wear it for 2.5 to 3 months total. They don't measure his head at every appointment so I don't know how much he has really improved but I can definitely see changes which is a great comfort because I really didn't know what to expect. I know by the time he is done, his head will look really good! Good luck on Thursday, I hope everything goes well. Definitely let me know how everything goes. sybillakoivan <lakova@...> wrote:

Hi Sybil, we see the neuropediatrician on Thursday afternoon. I am looking forward to what he'll have to say, but am decided to ask him for a prescription for banding, even if he tells me it's not needed at that stage. I will let you know when back. Thanks a lot for caring and great to hear your son's had such an improvement in just two weeks. How long will he wear it? all the bestivanka > > Hello, > > I am new to this group. Our daughter is 5 months old and has > > developed a positional plagio, mainly as a result of a

left side > > torticollis (which has now been treated, but the plagio remains). I > > have consulted with my pediatrician and kinesitherapist, both of > whom > > say that the case is mild and a few sessions with an ostheopathe > will > > help. (My first osteo visit is on April 7th). > > > > However, everything I read on medial site on the internet says that > > no matter what the degree of the plagio is - mild to excessive, the > > placing of a helmet is required if the infant is 5 months or older. > > > > Have any of you had to treat that in you children at 5 months and > > more, where no helmet was necessary, but only neck exercises and > > repositioning were enough? I am not particularly worried about > having > > to place a helmet, but would rather like to avoid it if I can. > > > >

Also, doctors here (in Belgium) tend to say that "she will grow out > > ot it" once she starts crowling and sitting more, but I know a few > > cases, where it was not "grown out of" and different interventions > > were needed at 12-24 months of age - when it takes much longer to > > cure and it's more annoying for the child> > > > Many thanks in advance for any info that you can share. > > Kind regards, > > ivanka> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total Access, No

Cost. W00t>

OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total Access, No Cost. W00t

[Guest guest]

Hi Sybil,

and sorry for late post, but in the meantime Klara started creche,

and logistically that entails a bit of hasle.

The disagnosis we got on THU was s mild to severe plagio and that it

is not merely positional, but that it is a part of a broader

syndrome. The syndrome is called " functional assymetry with plagio

and tort " . I.e. Klara has a preference to use her left side (hand and

arm) for active and passive movements. And that is occasioned by the

tord she had (which is now treated), but the propensity to use more

the left side has remained, which has also reinforced the plagio.

So we were advised not to band (as the neuropediatrician said that

the band would only treat the effect, but not the cause for the

plagio). instead, she prescribed 20 sessions of PT for getting rid of

the functional assymetry. And she also said that it is the harmonious

development of the brain (left and right lobes developing at the same

pace and intensity) that would round out the head, not vice-versa. So

we'll start the PT and see how that develops. We have an appointment

with the neuropediatrician again in two months time, to see what the

results are.

Have you or have you heard of anyone else having had this syndrome?

And how successfully was it treated with PT alone?

In the US, what is the opinion, in the medical community, of

ostheopats? Not very good here.

I will leave you here.

All the best, take care.

ivanka

> > > Hello,

> > > I am new to this group. Our daughter is 5 months old and has

> > > developed a positional plagio, mainly as a result of a left

side

> > > torticollis (which has now been treated, but the plagio

remains).

> I

> > > have consulted with my pediatrician and kinesitherapist, both

of

> > whom

> > > say that the case is mild and a few sessions with an

ostheopathe

> > will

> > > help. (My first osteo visit is on April 7th).

> > >

> > > However, everything I read on medial site on the internet says

> that

> > > no matter what the degree of the plagio is - mild to excessive,

> the

> > > placing of a helmet is required if the infant is 5 months or

> older.

> > >

> > > Have any of you had to treat that in you children at 5 months

and

> > > more, where no helmet was necessary, but only neck exercises

and

> > > repositioning were enough? I am not particularly worried about

> > having

> > > to place a helmet, but would rather like to avoid it if I can.

> > >

> > > Also, doctors here (in Belgium) tend to say that " she will grow

> out

> > > ot it " once she starts crowling and sitting more, but I know a

> few

> > > cases, where it was not " grown out of " and different

> interventions

> > > were needed at 12-24 months of age - when it takes much longer

to

> > > cure and it's more annoying for the child

> > >

> > > Many thanks in advance for any info that you can share.

> > > Kind regards,

> > > ivanka

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Be a better friend, newshound, and know-it-all with

> Mobile.

> > Try it now.

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > OMG, Sweet deal for users/friends: Get A Month of

> Blockbuster Total Access, No Cost. W00t

> >

>

>

>

>

>

>

> ---------------------------------

> OMG, Sweet deal for users/friends: Get A Month of

Blockbuster Total Access, No Cost. W00t

>

[Guest guest]

Ivanka:It really doesn't matter if it was "positional" or not -- if the head is mishapen, it is mishapen. While the preference to use one side contributed to this, depending on the age of your child, the PT alone may help, or it may not. It depends a lot on how often you reposition and encourage the other side to be used. This can happen without a molding device, but again, depending on the age of the child, improvement varies.As for the name of the "syndrome" "functional assymetry with plagio and tort"-- it's not really a syndrome -- a syndrome is a several characteristics that point to a specific (or not so specific) disorder. While the "functional assymetry with plagio and tort" are a group of characteristics, they are not a syndrome, at least not as presented. I googled "functional assymetry with plagiocephaly and tort syndrome", and didn't get a hit on anything specific--- which doesn't mean much if i

t is a new thing.So, the question to the neuro is "I understand these characteristics, what syndrome do they represent?" Granted, I am NOT a doctor -- but I have extensively been involved in learning about characteristics and syndromes as my son was diagnosed last year with Ehlers-Danlos Syndrome (classical), which is a disorder of various connective tissue. This is a good wiki on the definitions http://en.wikipedia.org/wiki/Syndromeand this is a good page on the various types of syndromes http://en.wikipedia.org/wiki/Category:Syndromes As far as I know, molding therapy will not get in the way of any PT that you are doing to correct the problem. But my son didn't get PT when he was in his helmet, so others who have children in PT/OT would be better off to speak to that. If your child is youmg, d

oing the PT first, and seeing how the head improves with repositioning and then assessing in a few months would probably be fine. Kind regards,mom to Quinn, born 11/99, DOCband grad 10/00 for scaphocephalic (long and narrow) headshape which occurred in-utero.>------- Original Message ------->From : lakoivan[mailto:lakova@...]>Sent : 4/12/2008 4:34:59 AM>To : Plagiocephaly >Cc : >Subject : RE: Re: Plagio at 5 months age>>Hi Sybil, and sorry for late post, but in the meantime Klara started creche, and logistically that entails a bit of hasle. The disagnosis we got on THU was s mild to severe plagio and that it is not merely positional, but that it is a part of a broader syndrome. The syndrome is called "functional assymetry with plagio and tor

t". I.e. Klara has a preference to use her left side (hand and arm) for active and passive movements. And that is occasioned by the tord she had (which is now treated), but the propensity to use more the left side has remained, which has also reinforced the plagio.So we were advised not to band (as the neuropediatrician said that the band would only treat the effect, but not the cause for the plagio). instead, she prescribed 20 sessions of PT for getting rid of the functional assymetry. And she also said that it is the harmonious development of the brain (left and right lobes developing at the same pace and intensity) that would round out the head, not vice-versa. So we'll start the PT and see how that develops. We have an appointment with the neuropediatrician again in two months time, to see what the results are. Have you or have you heard of anyone else having had this syndrome? And how successfully was it tr

eated with PT alone? In the US, what is the opinion, in the medical community, of ostheopats? Not very good here.I will leave you here. All the best, take care.ivanka &g

t; > > Hello, > > > I am new to this group. Our daughter is 5 months old and has > > > developed a positional plagio, mainly as a result of a left side > > > torticollis (which has now been treated, but the plagio remains). > I > > > have consulted with my pediatrician and kinesitherapist, both of > > whom > > > say that the case is mild and a few sessions with an ostheopathe > > will > > > help. (My first osteo visit is on April 7th). > > > > > > However, everything I read on medial site on the internet says > that > > > no matter what the degree of the plagio is - mild to excessive, > the > > > placing of a helmet is required if the infant is 5 months or > older. > > > > > > Have any of you had to treat that in you children at 5 months and &gt

; > > more, where no helmet was necessary, but only neck exercises and > > > repositioning were enough? I am not particularly worried about > > having > > > to place a helmet, but would rather like to avoid it if I can. > > > > > > Also, doctors here (in Belgium) tend to say that "she will grow > out > > > ot it" once she starts crowling and sitting more, but I know a > few > > > cases, where it was not "grown out of" and different > interventions > > > were needed at 12-24 months of age - when it takes much longer to > > > cure and it's more annoying for the child> > > > > > Many thanks in advance for any info that you can share. > > > Kind regards, > > > ivanka> > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > ---------------------------------> > OMG, Sweet deal for users/friends: Get A Month of > Blockbuster Total Access, No Cost. W00t> >> > > > > > > ---------------------------------> OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total Access, No Cost. W00t>------------------------------------For more plagio info

[Guest guest]

Many thanks,

I will see what effect the PT and osteopat sessions have and will see

what we do from there on. Problem is also that in Europe, banding

facilities do not exist (apart from an equivalent of CT in Spain) and

it is impossible to seek a second opinion from such a place.

I have already been to the osteo once and see that the flattened side

has started bulging, if I may say so, and hope it will continue to.

Thanks again for your time and for caring

Best,

ivanka

> > > > Hello,

> > > > I am new to this group. Our daughter is 5 months old and has

> > > > developed a positional plagio, mainly as a result of a left

> side

> > > > torticollis (which has now been treated, but the plagio

> remains).

> > I

> > > > have consulted with my pediatrician and kinesitherapist, both

> of

> > > whom

> > > > say that the case is mild and a few sessions with an

> ostheopathe

> > > will

> > > > help. (My first osteo visit is on April 7th).

> > > >

> > > > However, everything I read on medial site on the internet

says

> > that

> > > > no matter what the degree of the plagio is - mild to

excessive,

> > the

> > > > placing of a helmet is required if the infant is 5 months or

> > older.

> > > >

> > > > Have any of you had to treat that in you children at 5 months

> and

> > > > more, where no helmet was necessary, but only neck exercises

> and

> > > > repositioning were enough? I am not particularly worried

about

> > > having

> > > > to place a helmet, but would rather like to avoid it if I

can.

> > > >

> > > > Also, doctors here (in Belgium) tend to say that " she will

grow

> > out

> > > > ot it " once she starts crowling and sitting more, but I know

a

> > few

> > > > cases, where it was not " grown out of " and different

> > interventions

> > > > were needed at 12-24 months of age - when it takes much

longer

> to

> > > > cure and it's more annoying for the child

> > > >

> > > > Many thanks in advance for any info that you can share.

> > > > Kind regards,

> > > > ivanka

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Be a better friend, newshound, and know-it-all with

> > Mobile.

> > > Try it now.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > OMG, Sweet deal for users/friends: Get A Month of

> > Blockbuster Total Access, No Cost. W00t

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > OMG, Sweet deal for users/friends: Get A Month of

> Blockbuster Total Access, No Cost. W00t

> >

>

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

Ivanka,

Sorry it took so long to reply, I've been so busy and haven't been checking this site as often as I would like.

I have heard of the tort and plagio but not the functional asymmetry but it does make sense. I'm sure the PT will definitley help resolve that problem but I still don't understand how it will help the plagio. Even if both sides of the brain grew at the same rate from here on out, wouldn't she still have the plagio? Also, you said she was diagnosed with mild to severe. Is it mild? or severe? There is a big difference. What was her asymmetry? Adam's was 15mm which is considered moderate plagio.

I'm not sure about ostheopats but I'm sure if you posted it on this website that someone would have some input.

Well, I hope that everything is going well with the PT. I would keep an eye on her head and if it doesn't make improvements over time I would reconsider the band. I have to say that I am having good results with Adam's plagio and am glad I got the band for him.

Take care and let me know how you are doing as time goes by.

Sybil

From: lakoivan <lakova@...>Subject: Re: Plagio at 5 months agePlagiocephaly Date: Saturday, April 12, 2008, 8:34 AM

Hi Sybil, and sorry for late post, but in the meantime Klara started creche, and logistically that entails a bit of hasle. The disagnosis we got on THU was s mild to severe plagio and that it is not merely positional, but that it is a part of a broader syndrome. The syndrome is called "functional assymetry with plagio and tort". I.e. Klara has a preference to use her left side (hand and arm) for active and passive movements. And that is occasioned by the tord she had (which is now treated), but the propensity to use more the left side has remained, which has also reinforced the plagio.So we were advised not to band (as the neuropediatrician said that the band would only treat the effect, but not the cause for the plagio). instead, she prescribed 20 sessions of PT for getting rid of the functional assymetry. And she also said that it is the harmonious development of the brain (left and

right lobes developing at the same pace and intensity) that would round out the head, not vice-versa. So we'll start the PT and see how that develops. We have an appointment with the neuropediatrician again in two months time, to see what the results are. Have you or have you heard of anyone else having had this syndrome? And how successfully was it treated with PT alone? In the US, what is the opinion, in the medical community, of ostheopats? Not very good here.I will leave you here. All the best, take care.ivanka > > > Hello, > > > I am new to this group. Our daughter is 5 months old and has > > > developed a positional plagio, mainly as a result of a left side > > > torticollis

(which has now been treated, but the plagio remains). > I > > > have consulted with my pediatrician and kinesitherapist, both of > > whom > > > say that the case is mild and a few sessions with an ostheopathe > > will > > > help. (My first osteo visit is on April 7th). > > > > > > However, everything I read on medial site on the internet says > that > > > no matter what the degree of the plagio is - mild to excessive, > the > > > placing of a helmet is required if the infant is 5 months or > older. > > > > > > Have any of you had to treat that in you children at 5 months and > > > more, where no helmet was necessary, but only neck exercises and > > > repositioning were enough? I am not particularly worried about > > having > >

> to place a helmet, but would rather like to avoid it if I can. > > > > > > Also, doctors here (in Belgium) tend to say that "she will grow > out > > > ot it" once she starts crowling and sitting more, but I know a > few > > > cases, where it was not "grown out of" and different > interventions > > > were needed at 12-24 months of age - when it takes much longer to > > > cure and it's more annoying for the child> > > > > > Many thanks in advance for any info that you can share. > > > Kind regards, > > > ivanka> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it

now.> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > OMG, Sweet deal for users/friends: Get A Month of > Blockbuster Total Access, No Cost. W00t> >> > > > > > > ------------ --------- --------- ---> OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total Access, No Cost. W00t>

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Ivanka,

I was wondering if you have good pics of you childs head " before " (or

now) and maybe you can take some more when he/she is done. Since

you've already decided not to band (at least for now), I would be

interested in the amount of correction you get with the PT and osteo.

Also are you doing aggressive repositioning (working very hard to keep

her off the flat side)?

I've been on this site almost 2 years now, and some people do swear by

CST/osteopath etc, but it seems there isn't that much real information

out there.

If you have time it would be great.

thanks. -christine

sydney 2 yrs starband grad

> > > > > Hello,

> > > > > I am new to this group. Our daughter is 5 months old and has

> > > > > developed a positional plagio, mainly as a result of a left

> > side

> > > > > torticollis (which has now been treated, but the plagio

> > remains).

> > > I

> > > > > have consulted with my pediatrician and kinesitherapist, both

> > of

> > > > whom

> > > > > say that the case is mild and a few sessions with an

> > ostheopathe

> > > > will

> > > > > help. (My first osteo visit is on April 7th).

> > > > >

> > > > > However, everything I read on medial site on the internet

> says

> > > that

> > > > > no matter what the degree of the plagio is - mild to

> excessive,

> > > the

> > > > > placing of a helmet is required if the infant is 5 months or

> > > older.

> > > > >

> > > > > Have any of you had to treat that in you children at 5 months

> > and

> > > > > more, where no helmet was necessary, but only neck exercises

> > and

> > > > > repositioning were enough? I am not particularly worried

> about

> > > > having

> > > > > to place a helmet, but would rather like to avoid it if I

> can.

> > > > >

> > > > > Also, doctors here (in Belgium) tend to say that " she will

> grow

> > > out

> > > > > ot it " once she starts crowling and sitting more, but I know

> a

> > > few

> > > > > cases, where it was not " grown out of " and different

> > > interventions

> > > > > were needed at 12-24 months of age - when it takes much

> longer

> > to

> > > > > cure and it's more annoying for the child

> > > > >

> > > > > Many thanks in advance for any info that you can share.

> > > > > Kind regards,

> > > > > ivanka

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Be a better friend, newshound, and know-it-all with

> > > Mobile.

> > > > Try it now.

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > OMG, Sweet deal for users/friends: Get A Month of

> > > Blockbuster Total Access, No Cost. W00t

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > OMG, Sweet deal for users/friends: Get A Month of

> > Blockbuster Total Access, No Cost. W00t

> > >

> >

> >

> >

> > ------------------------------------

> >

> > For more plagio info