Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 hi - unfortunately, I'm no expert, so I can't specifically answer your questions. I got my info from another yahoo group called CFSProtocol - if you go to the group and look at his FWIW text, he describes the success he has had in treating family members with CFIDS. Initially it involves vitamin D and magnesium, and he recommends ALWAYS slowly ramping up to the desired dosage. I couldn't tell you 1. exactly what the supplements are meant to be killing off (and causing the herx reaction) or 2. how long that lasts. Sorry you're feeling so frustrated - I too hope you have one of those good days soon. (in UK) > > Didn't know that D caused herx reactions - what is it killing off? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 I'm still taking the high dose of D (ran it by my local doc who will get back to me tomorrow, but his nurse said that he'll treat with 50,000IU 3x/week sometimes but not for long) and I'm feeling real hypo, including more pain in my back and joints than I have felt in a long time - especially the back/vertebrae. I would have increased Armour already if my temps were stable, but they've been bouncing around a little which is what this thread was originally about. If they settle down today to where I think that they will be, I plan on increasing Armour tomorrow. It occurred to me that if we need vitamin D to help in the processing of thyroid hormone (I admit that I don't understand the role that D plays but I know that it does and that it plays a role in the immune system), and mine was very low (as it was) and I hit my body with a lot of it at once as I am, is it possible that, similar to what happens when we start taking HC and the T3 starts making it to the cells, that I'm becoming more hypo b/c my body is able to better use the puny amount of thyroid hormone that I'm giving it and that what I'm feeling is what I think it is - hypo symptoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Thank you for this note and thank you also Jim on vit D info you have given. I had been using vit D at 1000 I.u. for at least a year time and also trying to take some B12 which always made me worse. I have b12 deficiency anemia and also osteoporosis. So I was using vit D and b12 to correct these..Actually D helped my osteoporosis. I can feel that. I had also been going worse adrenal wise since a year time. this was especially observable after starting B12's. At this point I am not sure about effect of vit D but I think I am sure B12 makes me worse after reading below note.Thanks a lot.What shall we do if we have anemia and osteoporosis?Frustrating.. bw Nil Re: Possible that high dose of vit D causing spike in temp Yes, check out what this lady said from Real Thyroid (pasted below). So, I'm basically kicking the crap out of my adrenals, again, and with the help of doctors, by taking stuff that is supposed to help thyroid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Yes D is controversial. For all the negative info posted lately, I have read equal positives, also backed up with research references. I haven't had D levels tested. I take a low dose supplement of D2 daily, as I can't take fish oil D3 and havne't yet ordered the non-fish D3. For me, vit A and D supplements (both non-fish sourced) are lifesavers when I have an eczema allergy attack happening. But I don't take my A/D supp daily because I don't take anything daily, all the time.. I have to skip days here and there on everything. It seems like I can develop sensitivity or allergy to anything I take religiously day in day out without any breaks. My previous doctor was horrified that I take an A supplement and told me it was toxic and that no one should ever take a vit A supplement. She didn't even ask how much I take, which is well below toxic levels. Needless to say, since I had NO adverse effects from it, but DO have postiive effects, I ignored the hysteria. And too, the negative research simply does not account for the amount of vit D we make when we get adequate sun exposure, which is an astonishing amount. I find it hard to accept D has so many serious bad effects when the body makes so much of it naturally, given the chance. You'd think the human race would have died out several hundred thousand years ago at least, before clothes came in and migration to northern areas happened. This is not, of course, a refutation of the research results, just my puzzled wondering. sol scubjay wrote: > VItamin D is very controverisal still. There are tons of info saying > how 'good' it is for you and how much it can prevent, and there are > also a lot of info out there saying how 'bad' it is for you. > With something NEW and CONTROVERSIAL like this, use at your own > discression. > Anything you are about to try, research, and expect to read both good > and bad and weigh the options. > I have both hypothyroidism, and hypoadrenalism, and two top physicians > have given me vit D supplements, so Im not so sure about the supplement > causing this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 The darker your skin the more vitamin D supplements you have to take, because your are designed to prevent an overdose of vitamin D and a deficiency of folic acid, from your ancestors having lived in very sunny climates. The lighter your skin the more folic acid you have to take especially if pregnant to avoid neural tube defects and the less vitamin D you need to supplement with if you get even a few minutes of natural sunlight. I don't remember how but I do remember reading somehow dark skin prevents the body from needing quite so much folic acid. But lighter skin is designed to prevent our cold living ancestors from developing Vitamin D deficiencies. Please don't think my saying this makes me some kind of racist. I'm whiter than sour cream but would be dead without Drew and divorced and living in poverty without the civil rights movement. We really do all need each other. Hensley <>< 8-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 F. Holick, M.D. in his excellent book The UV Advantage, has a " Holick Safe Sun Table " to help determine how long a person needs sun exposure. The chart is based on factors such as skin color/type, latitude zone, plus the time of year, and time of day. " Expose 25% of your body's surface area to 25% of 1MED two to three times per week at all times of the year when you can make vitamin D in your skin..... " 1 MED is determined by estimating how long it would take to get a mild sunburn " (known as one minimal erythermal dose, or 1 MED). Then, without applying sunscreen, expose your hands, arms, and face tor 25 percent of that length of time (or your arms and legs if you want to minimize facial wrinkling). " He then instructs to apply sunscreen, if remaining in the sun. The book does discuss the difference between the vit D the body makes and vit D supplements. The safest vit D is what we make. But where I live people cannot make vit D from sun exposure between November and February. I am a type 3 skin (sometimes burn and gradually tan) and during March to May between 11 am and 3 pm. I would need to expose my arms and legs to the sun for 30 to 40 minutes 2 or 3 times a week (35-50 degrees latitude). A type 5-6 person would need 40 to 60 minutes at the same period. Very intersting book on all aspects of vit D, including cancer and other diseases. sol MsSquarepants wrote: > Oprah said she was now > taking Vitamin D. I know for a light skinned person 15 minutes in the sun a > day is supposed to be enough. > > I didn't know this about folic acid. > > So, I wonder how much someone whose skin tone is in between would need? My > community is predominately Hispanic and I guess it would be some where in > between if a person has a medium brown tone. > > Quote Link to comment Share on other sites More sharing options...
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