Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 I am very sick. I have Lyme. The tic was found by a sleep tech in my earlobe during a sleep study last July. It was engorged. A few weeks later I developed flu-like symptoms. I went to my doctor and they tested me. The tests were negative. They NEVER put me on antibiotics prophylactically. I AM LIVID. As time went on by October I began having many debilitating symptoms that seemed to come in stages that I kept reporting here. I thought I was dealing with HypoT. My symptoms started as feeling weak, rundown, chills, then progressed to bad fatigue, muscle weakness, severe cognitive problems, slurred speech, then profound depression and then by Xmas I was having difficulty walking, breathing and went to the ER. They thought I was a hypochodriac. Went back into my doctor and tested again/POSITIVE. I am 6 months post-tic bite now and SCARED. I am praying I can still recover. Currently taking 200 mgs. Doxy 2x day. I called the endo about cortef. He says I DO NOT stress dose for Lyme. I don't believe any more doctors. Should I be stress dosing for Lyme? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 No oyu hsould not be stress dosing as that could be months. You do need to be on an adequate dose. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 I am sorry that you have Lyme but at least you now know what is wrong. Check out this group where many members have been cured of Lyme using sea salt and vit c http://health.groups.yahoo.com/group/lymestrategies/?yguid=251753348 Lynda I have Lyme >I am very sick. I have Lyme. The tic was found by a sleep tech in >my earlobe during a sleep study last July. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 , I wanted to let you know about another Lyme site, the owner is a Lyme victim. In The Garden yahoo group. This place is a place of peace, support, and information. I think that I have long standing Lyme, but it is not confirmed by testing. I relate to your symptoms. Frannie To: NaturalThyroidHormonesADRENALS@...: skg59@...: Sat, 2 Feb 2008 09:31:09 -0500Subject: I have Lyme I am very sick. I have Lyme. The tic was found by a sleep tech in my earlobe during a sleep study last July. It was engorged. A few weeks later I developed flu-like symptoms. I went to my doctor and they tested me. The tests were negative. They NEVER put me on antibiotics prophylactically. I AM LIVID. As time went on by October I began having many debilitating symptoms that seemed to come in stages that I kept reporting here. I thought I was dealing with HypoT. My symptoms started as feeling weak, rundown, chills, then progressed to bad fatigue, muscle weakness, severe cognitive problems, slurred speech, then profound depression and then by Xmas I was having difficulty walking, breathing and went to the ER. They thought I was a hypochodriac. Went back into my doctor and tested again/POSITIVE. I am 6 months post-tic bite now and SCARED. I am praying I can still recover. Currently taking 200 mgs. Doxy 2x day. I called the endo about cortef. He says I DO NOT stress dose for Lyme. I don't believe any more doctors. Should I be stress dosing for Lyme?[Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 Thanks Lynda, I got right on that and picked up the salt and C yesterday. I am doing it along with the antibiotics. I have Lyme >I am very sick. I have Lyme. The tic was found by a sleep tech in >my earlobe during a sleep study last July. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 I'm really sorry , I know if has been an odyssey trying to figure this out. At least now you know what you're dealing with. Cathy > > I am very sick. I have Lyme. The tic was found by a sleep tech in my earlobe during a sleep study last July. It was engorged. A few weeks later I developed flu-like symptoms. I went to my doctor and they tested me. The tests were negative. They NEVER put me on antibiotics prophylactically. I AM LIVID. As time went on by October I began having many debilitating symptoms that seemed to come in stages that I kept reporting here. I thought I was dealing with HypoT. My symptoms started as feeling weak, rundown, chills, then progressed to bad fatigue, muscle weakness, severe cognitive problems, slurred speech, then profound depression and then by Xmas I was having difficulty walking, breathing and went to the ER. They thought I was a hypochodriac. Went back into my doctor and tested again/POSITIVE. I am 6 months post-tic bite now and SCARED. I am praying I can still recover. Currently taking 200 mgs. Doxy 2x day. I called the endo about cortef. He says I DO NOT stress dose for Lyme. I don't believe any more doctors. Should I be stress dosing for Lyme? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 , Wow! This is unbelievable! You have been through so much. At least you know what direction to head into now. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 , After I recovered from CFS with MT, there was absolutely NOTHING wrong with me. I felt great. I was on 15 mgs. of Cortef (okay maybe could have used more) but I was back to work and school in the evenings and could do just about anything I wanted. I KNEW these new symptoms and how sick I became since November had nothing to do with CFS. I knew I was done with that and had remained well for over one year after MT. Thanks for your support. Re: I have Lyme , Wow! This is unbelievable! You have been through so much. At least you know what direction to head into now. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 This is scary that a doctor could be imcompetant as to not run a treatment when there is even a SUSPICION of a disease - they should KNOW the tests can be wrong, as they are based on antibodies I think. I am *so* glad that I caught the hypoT (and probably the AF as well) as early as I did, and am learning " not to trust doctors " (thanks Val LOL) and do my own homework.. You're in my prayers (as is the almost the entire allopathic medical profession..) Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 Thanks Jim, This is something I wouldn't wish on my worst enemy. Having had CFS, I can report that it's 100 times worse. I am pretty much bedbound and my beau is taking care of me right now as I go through some bad die-off from beginning the antibiotics. There are moments when I cannot even think no matter how hard I try. I have never been this scared about anything. Re: Re: I have Lyme This is scary that a doctor could be imcompetant as to not run a treatment when there is even a SUSPICION of a disease - they should KNOW the tests can be wrong, as they are based on antibodies I think. I am *so* glad that I caught the hypoT (and probably the AF as well) as early as I did, and am learning " not to trust doctors " (thanks Val LOL) and do my own homework.. You're in my prayers (as is the almost the entire allopathic medical profession..) Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 , I've been on email lists with several Lyme sufferers, and your experience is more typical than not, sadly. And a lot of people who do get correctly diagnosed right away are given far too short a course of antibiotics and end up with chronic Lyme. Keep on top of it! Easy to say, hard to do when you are very ill. sol > This is something I wouldn't wish on my worst enemy. Having had CFS, I can report that it's 100 times worse. > I am pretty much bedbound and my beau is taking care of me right now as I go through some bad die-off from beginning the antibiotics. There are moments when I cannot even think no matter how hard I try. I have never been this scared about anything. > > Quote Link to comment Share on other sites More sharing options...
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