Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 I've had a very tough day. I visited the specialist at Hanger today, who said that my daughter 's assemetry was 15 mm. The Hanger specialist didn't want to say severe or moderate, just that she would qualify for a helmet. As I've been visiting the site, someone said that 15+mm was considered severe. However, before this appointment, when I went to see the referring physician, he acted like she was a non-issue and he said she was considered a mild case. Being someone that is wishy-washy, I am completely torn about what to do. I don't know whether to hold more weight to an actual physician, or a helmet specialist. Who's evaluation do I put more weight on? I feel like I'm getting conflicting information and it's very frustrating! Is there anyone out there who did not band their child and then regretted it, or felt the decision was ok? I worry about little things, like her being able to wear a ponytail in her hair and not feel awkward about it. I just want to make the best decision for her now, and don't know how big of an impact it will be on her later. Thanks for letting me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 My son was 15mm also and was considered moderate. I think it not only depends on the measurements but on the amount of asymmetry in the face and ears. When I look at my son, I don't think he is severe because I've looked at pictures on line of what severe cases look like however it is enough that I went with the DOC band. I am happy I made the decision and he gets fitted on Monday. The casting process wasn't that bad and I know I will be happy know I am doing everything I can to make sure his head is as "normal" as possible. I mean no one is perfect and I don't expect perfection but if improvement can be made, why not try. That's my take on it. Good luck with your decision. Oh yeah, my pediatrician didn't think it was a big deal until he saw the measurements and pictures and then he had no problem writing the script. Pediatricians are great but they are not experts in everything so sometimes you have to go with the experts and most importantly with what you think is right. If you have any doubt that she may be uncomfortable in the future with her head why not try to correct it. It's hard enough being a kid. Sorry I'm so opinionated but I just went through this decision making process which was not in the least bit easy for me and these are all the rationales I used to convince myself and others that I am making the right decision. Sybilmcdahlin <mcdahlin@...> wrote: I've had a very tough day. I visited the specialist at Hanger today, who said that my daughter 's assemetry was 15 mm. The Hanger specialist didn't want to say severe or moderate, just that she would qualify for a helmet. As I've been visiting the site, someone said that 15+mm was considered severe. However, before this appointment, when I went to see the referring physician, he acted like she was a non-issue and he said she was considered a mild case. Being someone that is wishy-washy, I am completely torn about what to do. I don't know whether to hold more weight to an actual physician, or a helmet specialist. Who's evaluation do I put more weight on? I feel like I'm getting conflicting information and it's very frustrating! Is there anyone out there who did not band their child and then regretted it, or felt the decision was ok? I worry about little things, like her being able to wear a ponytail in her hair and not feel awkward about it. I just want to make the best decision for her now, and don't know how big of an impact it will be on her later. Thanks for letting me vent. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hi, We just went to CIRS Palo Alto and found out that our son's asymmetry is 8.1. So the ortho told us that he is on the boarder line. We will do aggressive repo for a month and go back next month for another scan to see if he gets any better or worse. So, according to the ortho, 0-6 is good, 6-10 is mild, he would recommend banding if it's >10. Hope this help! Sue --- mcdahlin <mcdahlin@...> wrote: > I've had a very tough day. I visited the specialist > at Hanger today, who said that my daughter > 's assemetry was 15 mm. The Hanger specialist > didn't want to say severe or moderate, > just that she would qualify for a helmet. As I've > been visiting the site, someone said that > 15+mm was considered severe. However, before this > appointment, when I went to see the > referring physician, he acted like she was a > non-issue and he said she was considered a mild > case. Being someone that is wishy-washy, I am > completely torn about what to do. I don't > know whether to hold more weight to an actual > physician, or a helmet specialist. Who's > evaluation do I put more weight on? I feel like I'm > getting conflicting information and it's very > frustrating! Is there anyone out there who did not > band their child and then regretted it, or > felt the decision was ok? I worry about little > things, like her being able to wear a ponytail in > her hair and not feel awkward about it. I just want > to make the best decision for her now, and > don't know how big of an impact it will be on her > later. Thanks for letting me vent. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 we just went to the ortho yesterday and my sons assymetry is 17.6mm. He said that was moderate but borderline with severe. We are getting the helmet in 2 weeks. I think I will regret it if I don't band my son. Even my pedi said to go ahead with it " in case he wants a crew cut someday. " I know that sounds vain but it is how the world is today and I don't want to give him any reason to feel self conscious someday. I figure he will not remember wearing the helmet, since he is only 4 1/2 months old. Plus the facial assymetry bothers me. Go with your gut. From: mcdahlin <mcdahlin@...> Date: 2008/03/14 Fri PM 01:14:38 CDT Plagiocephaly Subject: Torn on Decision I've had a very tough day. I visited the specialist at Hanger today, who said that my daughter 's assemetry was 15 mm. The Hanger specialist didn't want to say severe or moderate, just that she would qualify for a helmet. As I've been visiting the site, someone said that 15+mm was considered severe. However, before this appointment, when I went to see the referring physician, he acted like she was a non-issue and he said she was considered a mild case. Being someone that is wishy-washy, I am completely torn about what to do. I don't know whether to hold more weight to an actual physician, or a helmet specialist. Who's evaluation do I put more weight on? I feel like I'm getting conflicting information and it's very frustrating! Is there anyone out there who did not band their child and then regretted it, or felt the decision was ok? I worry about little things, like her being able to wear a ponytail in her hair and not feel awkward about it. I just want to make the best decision for her now, and don't know how big of an impact it will be on her later. Thanks for letting me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Are you happy with the head shape? If no or not sure, then I would definitely consider banding. It is something non-invasive that you can do now but if you wait then the window will be closed. > > we just went to the ortho yesterday and my sons assymetry is 17.6mm. He said that was moderate but borderline with severe. We are getting the helmet in 2 weeks. I think I will regret it if I don't band my son. Even my pedi said to go ahead with it " in case he wants a crew cut someday. " I know that sounds vain but it is how the world is today and I don't want to give him any reason to feel self conscious someday. I figure he will not remember wearing the helmet, since he is only 4 1/2 months old. Plus the facial assymetry bothers me. Go with your gut. > > > > > From: mcdahlin <mcdahlin@...> > Date: 2008/03/14 Fri PM 01:14:38 CDT > Plagiocephaly > Subject: Torn on Decision > > > I've had a very tough day. I visited the specialist at Hanger today, who said that my daughter > 's assemetry was 15 mm. The Hanger specialist didn't want to say severe or moderate, > just that she would qualify for a helmet. As I've been visiting the site, someone said that > 15+mm was considered severe. However, before this appointment, when I went to see the > referring physician, he acted like she was a non-issue and he said she was considered a mild > case. Being someone that is wishy-washy, I am completely torn about what to do. I don't > know whether to hold more weight to an actual physician, or a helmet specialist. Who's > evaluation do I put more weight on? I feel like I'm getting conflicting information and it's very > frustrating! Is there anyone out there who did not band their child and then regretted it, or > felt the decision was ok? I worry about little things, like her being able to wear a ponytail in > her hair and not feel awkward about it. I just want to make the best decision for her now, and > don't know how big of an impact it will be on her later. Thanks for letting me vent. > Quote Link to comment Share on other sites More sharing options...
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