Re: Question for those with Older Children

[Guest guest]

Hi,

I know how you feel. My son has severe brachy too. After 11 weeks in

band, it correct from 96.2 to 93.6 only. I really am suprised by the

measurement this morning at CT, husband and I both thought that his

head look good.

Anyway, time will does quite a bit of correction, I think. My friend's

son has severe brachy too(CI = 101). But they choose not to band. The

boy is 3.5 year old now. To me, his head seem fine, a bit lengthen,

and a bit wide, but definitely look less severe than my son now.

Unfortunately, they does not go for measurement after the first

dignosed when the boy was 4 month old. So, I have no idea what his

measurement is now. Besides feeling good about our son head shape,

this boy's head shape help us to make the decision not to do second band.

From what I manage to learn from her (my friend), they only just try

their best to make sure that the boy will not rest his head flat on

the back. That is not always what they can do, as you know how mobile

a kid can be. Plus, massage the boy head for about 5mins every morning

and evening.

Hope this help.

>

> My DS started off at like 13mm cranial vault assymetery and 96.4

> brachy. After 3 helmets he was down to 5mm assymetry and unfortunately

> the brachy only got to 89.7. He looks pretty good however I think he

> looks a tiny bit square up top around the pareital bones. Just

> wondering if this look softened after time. He has only had his helmet

> off for like 2.5 weeks and we are doing CST so I do think he has

> softened a bit just wondering what other's experience has been.

>

[Guest guest]

My daughter had severe brachy and went from around 98% to 86%. she

graduated at age 10 mo with some flat area at the top, and slight

" corners " . At 14 mo we went for a follow up and her measurements were

about the same. Her head had grown, but not improved (growth was

distributed, rather in the back, so numbers didn't improve). Now at 2

yrs 3 mo I would say her head is about the same. I don't have any

measurments, but I still the imperfections when I shampoo her head.

-christine

sydney 2 yrs starband grad

> >

> > My DS started off at like 13mm cranial vault assymetery and 96.4

> > brachy. After 3 helmets he was down to 5mm assymetry and

unfortunately

> > the brachy only got to 89.7. He looks pretty good however I think he

> > looks a tiny bit square up top around the pareital bones. Just

> > wondering if this look softened after time. He has only had his

helmet

> > off for like 2.5 weeks and we are doing CST so I do think he has

> > softened a bit just wondering what other's experience has been.

> >

>