Charlotte, NC

[Guest guest]

Go check out the Pittman oxidative therapy center in Raleigh.

Dr. Bormann

**************

jsyme@... wrote:

> I'm a reporter and oxygen-therapies user who is seeking oxygen-

> knowledgeable contacts in the Charlotte, NC, area for my own personal

> acquaintance and/or help putting together an oxygen-related health

> article for my job. Anybody out there? Also, where do I turn to get

> help measuring ambient oxygen content in various locations for my

> story?

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

[Guest guest]

Dear jsyme,

See Dr. Pittman in Raleigh for a good interview.

For measuring oxygen in air, you need an oximeter. They vary in price from

$1200 and up.

Best of Health!

Dr. Saul Pressman, DCh

Charlotte, NC

> I'm a reporter and oxygen-therapies user who is seeking oxygen-

> knowledgeable contacts in the Charlotte, NC, area for my own personal

> acquaintance and/or help putting together an oxygen-related health

> article for my job. Anybody out there? Also, where do I turn to get

> help measuring ambient oxygen content in various locations for my

> story?

>

>

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and

other alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here

are for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of

the message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

[Guest guest]

Dear Reporter,

I have written one op ed piece which was published in 2 newspapers dealing

with my wife's stroke 2 and1/2 years ago; and my efforts to persuade doctors

in the Northern Virginia area to give her HBO therapy. Now I have set up our

own clinic and she gets HBO 5 days each week. Her mobility and cognitive

strength show almost daily improvements, better use of her fingers on the

arm and hand which were flaccid for over a year, while not talking as yet,

she does respond with some words and can communicate through eyes, hand

gestures, such as taking a smoking pot off the burner or grabbing my arm and

pointing quickly with much attention getting chatter when an interesting boat

or flight of birds appears on the lake She wanted to hear the Bush speech

last night and understood he had won the election, But my point to you is

that HBO does help brain-damaged individuals. Dr. Harch in New Orleans has

had success with CP children. Gordon Editor of MUMs Newsletter can

tell you of many CP responses to HBO UTMB conducted a study with stroke

people about 2 years ago and reported about 20% inprovement. Dr. Neubauer

knows of numerous and dramatic cases His book on Hyperbaric Oxygen excellent

.. Dr. Teller, H-bomb developer uses HBO 3or 4 days each week and has

a chamber in his living room at Stanford Univ.; Contact Ken Locklear, Editor

of HBOMEDTODAY a new HBO magazine with much useful infor and should help you

do a series. Good Luck. A. Manson Naval Historian WW2 and Sea War In

Korea Co-author

[Guest guest]

I brought this protocol up with my regular MD, who is also a microbiologist, at

my

last appointment. He immediately responded that " this would be fabulous " for

me.

When I asked if he would be willing to learn and administer it for me, he

replied that

he couldn't because, as an MD, it's not " standards of care. " He highly

recommended

that I either go to the source (my plan) or find an alt practioner who could do

it (your

plan).

Anyway, I'm so looking forward to this AND I will definitely report back to the

group.

Trish

> > Hi ,

> >

> > Yes, I will be doing Dr. Kane's protocol at Dr. Speight's (her co-

> author's) office in NC.

> > I had a phone consult with him last week and am very much looking

> forward to the

> > treatment.

> >

> > Trish

> >

> > P.S. In case you're wondering, I could just have easily gone to

> Dr. Kane's office except

> > the wait to get in was longer, plus it would overlap the Christmas

> holidays so there

> > would be more " lost days " without treatment sitting in a hotel room

> all by myself...

[Guest guest]

P.S. I also have the driest skin on the planet, total loss of libido, and

something else

I'll remember the minute I post this.

> Hi Jill,

>

> My diagnosis is CFS. Like most CFSers, I have chronic infections which we're

treating.

> Just this past year, I've also started having some usual " liver numbers " which

> apparently happens well along the CFS road (I've been sick since 1976).

Symptoms

> include headaches, exhaustion, brain fog, short-term memory problems,

occasional

> vertigo, OI hypotension... and the lower right side of my chest gets tenderer

and

> tenderer as the years pass.

>

> Thanks for the warning about blood clots and coag issues. I'm well aware of

them

> after having tried UVBI, but it never hurts to be reminded.

>

> Trish

[Guest guest]

Hi Trish...I'm only going to do the oral phoschol. I'll probably

start slow, too (not 9 capsules a day). Two IVs a day and 2

glutathione flushes is quite intensive and I'll be eager to learn how

it helps you. I suppose the oral is not as intensive by any means

BUT 90% is supposedly absorbed. It's easy enough to get the oral,

and when the doctor orders it the price is more reasonable. I always

like to start cautiously with any intervention.

[Guest guest]

Hi Trish,

I read the Detoxx book and it mentions that they do the lipid

exchange twice a week- that seems to be the initial recommended

dosage as per the book. Have they changed the protocol?

I also talked to Dr.Speight's nurse and she never mentioned to me

that they do 2X a day.

Good Luck for the program.

take care,

Gayathri.

> Hi ,

>

> I'll be in NC initially for 2-3 weeks receiving PhosChol &

Glutathione IV's 2x daily.

> They'll also totally revise my diet and run a number of tests,

including the all

> important Fatty Acid Profile (which takes 8 weeks for results).

>

> Upon return home, I'm suppose to be able to continue the IV's

(though not at the rate

> of 2x daily) via home nursing, which Dr. Speight says they've had

success helping

> other patients organize. Alternatively, since my state (AZ)

doesn't yet have any MDs

> familiar with the protocol, I might also be able to get two ND's I

see who already

> administer the Glutathione IV's to add the PhosChol IV's to their

regimen.

>

> Then, once the Fatty Acid results are in, I return again to NC for

further tweaking of

> my diet, fat ratios/intake, etc. as suggested by the profile.

>

> Trish

>

[Guest guest]

Hi Gayathri,

During my phone consultation w/ Dr. Speight he mentioned that, since I'm not

local,

the plan would be to do the treatments twice daily, 4 days per week. I had no

idea

that the " normal " protocol calls for the exchange only twice a week. Wow,

that's kind

of exciting news, and may explain why he said that I may be feeling improvement

before I leave for home. Cool, I could be feeling pretty good by Christmas.

Very

exciting!

Thanks for your encouragement, and good luck to you too!!

Trish

> >

> > I'll be in NC initially for 2-3 weeks receiving PhosChol &

> Glutathione IV's 2x daily.

> > They'll also totally revise my diet and run a number of tests,

> including the all

> > important Fatty Acid Profile (which takes 8 weeks for results).

[Guest guest]

Jumping in on the diet aspect, I queried both offices and they both said that

the diet

would be crucial/pretty crucial (again I can't remember exact wording) in **my**

improvement. Then again, I've been sick for 27 years, so others' mileage may

vary. I

can also expect to stay on this diet for life to sustain whatever improvement I

get

(which takes at least 3 months in order to fully change out the phospholipids).

Perhaps the diet, type of dosing (oral vs. IV), quantity and frequency of dosing

are

functions of the amount/type of liver damage? Just speculating but I hope to

know

more soon.

Oh, and I just remembered that I asked about how long this protocol had been

around. I don't remember now who told me, but I do remember being told that

it's

been done in Germany for 30? years. Perhaps there's someone on this list who

can

find and translate any studies published in German?

> Here is what she says: " Phospholipid Exchange is feasible with oral

> PhosChol alone. Use 8 cpaulses daily taken with the evening

> meal...Once PC levels are determiend to be sufficient, a miantenance

> ose of 4 caps aily is suggested. "

>

> However, in another place she says, " Oral dosing alone, especially as

> a Liver Flush, may be sufficient for patients with recent onset of

> neurotoxocity but patients with chronic syndromes usually required PC

> for a duration of 20-40 infusions. "

>

> What, however, is this based on? She has a very few clinical case

> studies in teh back of her book. One person who didnt' change his

> diet but did her therapy had no improvement. One might imagine all

> kinds of clinical trials that would give us good info that we'll

> never get: a study on people just adopting her diet for 3 mos; a

> study on people doing her diet plus oral PC; a study on people doing

> the whole 9 yards with IV, etc. I don't know her overall rate of

> success and nobody is monitoring that.

[Guest guest]

I think alcohol is poisonous in small amts, esp on a longterm basis. Maybe

differs with individuals, but generally true. This is my intuition. I have had

plenty of interior fermentation in the past. Better, now.

Adrienne

What I don't know is if fermentationin the gut can produce enough

acetaldehyde and alcohol to produce the above effects.

I've learned to adop ta watch and wait attitude and start things

slowly. I will be very interested in additional reports of people

who get the IV therapy. She is very intelligent, understands what

lipids do, and her theory makes good sense.

[Guest guest]

To start with, I was COMPLETELY off of sugar, corn syrup, honey, etc for

several years; no catsup, no canned fruits or veggies, no sweetened breads, no

sandwhich meats, read all labels. No frozen or canned OJ. (Was able to tolerate

rice syrup Dream Bars.) Also was off of wheat and all glutinous grains for a

period of years, too. The wheat and sugar were the main problems.

I am trying to remember what else. I think more rest. less stress made a

difference. Avoiding constipation. Avoiding whatever specific foods made my

stomach hurt, like most pineapple. And using almond instead of peanut butter.

And hottubs.

I can eat a little wheat nowadays, but not on a daily basis.

Adrienne

----- Original Message -----

From: B

How did you get decrease your fermentation ?

-----Original Message-----

From: Adrienne Gomez [mailto:duckblossm@...]

I think alcohol is poisonous in small amts, esp on a longterm basis.

Maybe differs with individuals, but generally true. This is my

intuition. I have had plenty of interior fermentation in the past.

Better, now.

Adrienne

[Guest guest]

Hi, Sue. I do not know of any in Charlotte, but you might want to check

into a university hospital that may be in the area. They usually have

ped specialists on staff. Or perhaps your rheumy can recommend someone?

Where are you moving from? Good luck to you in your search. Michele

(17,pauci & spondy)

Charlotte, NC

Hello all,

My daughter who is eleven has been struggling with poly JRA for the

past year. She's on MTX, sulfasalazine and prednisone. She had an IV

dose of 1000 mg. of solumedrol yesterday. She has been having a bad

flare for the past three weeks. Her rheumy now feels that enbrel is

the next step. We are moving to Mt. Holly, North Carolina next week.

I was wondering if anyone knows of a good pediatric rheumatologist in

the Charlotte area? I would appreciate it if you have any info.

Sue and 11-poly

[Guest guest]

Hi! I live in the Charlotte area my daughter is 17 with Poly JRA. There are

no ped Rheumy's in Charlotte. We go to Duke University in Durham about a 2 1/2

hour drive from Charlotte. They have excellent ped rheumy's Dr

Rabinovich,Kredich & Schanburg..My daughter prefers Rabinovivh. If you have any

questions let

me know... I don't post.. but I try to read as much as I can.

Kristi

[Guest guest]

I can second the recommendation for Rabinovich. She used to be in

Chicago @ the University of Chicago hospitals and she was Chris' first

rheumy. She's great - really knows her stuff and is very thorough. Good

luck again. Michele (17,pauci & spondy)

Re: Charlotte, NC

Hi! I live in the Charlotte area my daughter is 17 with Poly JRA. There

are

no ped Rheumy's in Charlotte. We go to Duke University in Durham about a

2 1/2

hour drive from Charlotte. They have excellent ped rheumy's Dr

Rabinovich,Kredich & Schanburg..My daughter prefers Rabinovivh. If you

have any questions let

me know... I don't post.. but I try to read as much as I can.

Kristi

[Guest guest]

In a message dated 5/29/2006 8:11:54 P.M. Eastern Standard Time,

emma1abby@... writes:

We need to find a CBT/ ERP therapist and are having a lot of trouble.

Pat

Let me know if you would like to receive other website addresses for

referrals. I hope the doctor you found works out for you.

LT

[Guest guest]

Is there anyone out there from the Charlotte, NC area?

[Guest guest]

I live in Raleigh and we drive to the CT in Charlotte for treatment.

We are very happy there.

Jake-19m (tort resolved/rt plagio/DOCBand 11 weeks)

Jordan-4

>

> Is there anyone out there from the Charlotte, NC area?

>

[Guest guest]

Thanks! Are you at the Hanger in Lancaster? Can you tell me your

Orthotists name? I have an appt. at the Hanger in Rock Hill, but am

also going to look at the Charlotte location.

Thanks -

Kim

Cate- 4 months old

> > >

> > > Is there anyone out there from the Charlotte, NC area?

> > >

> >

>

[Guest guest]

Thanks! Is in the Charlotte office? I have received a lot

of feedback re: the laser scan vs. plaster casting. That is why I am

looking into Hanger. There is another group in Charlotte called

Level Four that also does laser scanning. Did you look into them?

I'm going to try to meet with L4 next week, along with CT and

Hanger. So much to digest...

>

> I am in Charlotte and went with at Hanger. The reasons I

went there is they were recomended to me by 2 other twin mothers.

One said that when she went to CT they told her both twins need

helmets but when she went to Hanger only one was needed. I did not

want to feel like it was being pushed on me. The other reason I

chose Hanger is that they do not do a casting. They do a digital

scan. I felt like my son would not handle the casting well so that

really impacted my decision. has been great so far but we

just got the band on Tuesday. Our first appointment there she took

measurements and saw us back in three weeks to see if there were any

improvements. When we went back his head had grown but there were no

improvements so we went with the band. Yesterday we had some red

spots that would not go away so we called this morning and they got

back to us right away so so far customer service has been good.

Hopefully all will go well. I have heard good things about CT in

this group so I guess go with who you feel comfortable. Just wanted

to let you know about my experience so far.

>

> Hen

> Charlotte, NC

>

>

> Is there anyone out there from the Charlotte, NC area?

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.7/1409 - Release Date:

5/1/2008 8:39 AM

>

[Guest guest]

I had my daughter scanned so have never been through casting. However

I have to say to me the results are absolutely the most important

thing, and I would definitely choose based on the ortho's/therapist's

experience, and not if they do casting or scanning. I would gladly

have had her head casted, if I thought the ortho was better.

As it turns out I was too ignorant to shop around before getting my

daughter's band - but luckily we went to a very good ortho.

-christine

sydney 2 yrs starband grad

> >

> > I am in Charlotte and went with at Hanger. The reasons I

> went there is they were recomended to me by 2 other twin mothers.

> One said that when she went to CT they told her both twins need

> helmets but when she went to Hanger only one was needed. I did not

> want to feel like it was being pushed on me. The other reason I

> chose Hanger is that they do not do a casting. They do a digital

> scan. I felt like my son would not handle the casting well so that

> really impacted my decision. has been great so far but we

> just got the band on Tuesday. Our first appointment there she took

> measurements and saw us back in three weeks to see if there were any

> improvements. When we went back his head had grown but there were no

> improvements so we went with the band. Yesterday we had some red

> spots that would not go away so we called this morning and they got

> back to us right away so so far customer service has been good.

> Hopefully all will go well. I have heard good things about CT in

> this group so I guess go with who you feel comfortable. Just wanted

> to let you know about my experience so far.

> >

> > Hen

> > Charlotte, NC

> >

> >

> > Is there anyone out there from the Charlotte, NC area?

> >

> >

> >

> >

> >

> >

> > --------------------------------------------------------------------

> ----------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG.

> > Version: 7.5.524 / Virus Database: 269.23.7/1409 - Release Date:

> 5/1/2008 8:39 AM

> >

>

[Guest guest]

I believe they are starting to scan at CT in Charlotte this month? I can ask

when I'm there tomorrow.

Staci

[Guest guest]

I believe it is supposed to be in on May 12.

Molly

Re: Charlotte, NC

I believe they are starting to scan at CT in Charlotte this month? I can ask

when I'm there tomorrow.

Staci

------------------------------------

For more plagio info

[Guest guest]

Yes, they will have it May 12th. I'm so excited!

Jake-20m (tort resolved/rt plagio/DOCBand 12 weeks)

Jordan-4

>

> I believe they are starting to scan at CT in Charlotte this month? I

can ask when I'm there tomorrow.

>

> Staci

>

[Guest guest]

is at the Charlotte office and the sville office. I see her at the Charlotte office. I honestly did not know about Level 4 untill I joined this post. I know that some one else in this group decided to go with Level 4. Perhaps they will respond and give you more info. Defintly a lot to digest. I am sure glad I found this group.

Charlotte, NC> > > Is there anyone out there from the Charlotte, NC area?> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.7/1409 - Release Date: 5/1/2008 8:39 AM>

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.8/1413 - Release Date: 5/3/2008 11:22 AM