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Hi Bahnu.

I hope you are able to touch type those long messages rather than typing

with just one finger :-)

As you already know, muscle cramps can be a side effect of prednisone. Leg

and foot cramps can also be caused by electrolyte imbalances, but that

usually only starts happening when a person already has fairly advanced

chronic renal insufficiency. So if you don't, then it's probably not the

kidney disease itself that is causing the cramps.

Now, I'm not quite sure from your description, but something else you can

have is called " restless legs " . This can manifest as sudden twitching or

sudden movement during the night. Chronic renal insufficiency can definitely

cause that, but again, usually when it's more advanced. I don't remember

where you stand in terms of kidney function.

Prednisone can also cause anxiety, which can then cause or aggravate all of

the above. So, you can see how it can be hard to tell what is causing those

kinds of cramps.

When I started having cramps, my nephrologist didn't want to put me on any

more medications, and so she suggested I try 400 units of vitamin E per day.

I found that helped. I wouldn't recommend you start on vitamin E without

your doctor's knowledge and consent though.

Some of those symptoms could be relieved by the drug clonazepam. This drug,

while officially an anti-convulsant, is really simply one type of

benzodiazepine tranquilizer, in the same family as Valium. As such, it also

acts as a muscle relaxant. It is the drug commonly prescribed to kidney

patients who suffer from restless legs. A small dose can work wonders, and

if taken at night, it can really help you sleep.

I don't know of a single person who starts taking a statin for cholesterol,

reads the warning about muscle breakdown, and then thinks he or she has it.

I went through that too with Lipitor. The doctors are well-aware of this,

and they can easily do a lab test to find out if this is happening. It's

probably not the drug, but, you should of course mention your muscle

problems to your doctor. Prednisone, BP meds, etc. -- they can all make you

feel like that, in my opinion. For most people, the statin drugs actually

seem to help the kidneys.

Pierre

Leg Cramps

>

>

> Hello Everybody,

>

> Going to be another long mail..pls bear with me. I did read posts on

> cramps before but I wanted to give my situation and questions on this

> topic.

>

> I had couple of questions on the leg cramps that I have been having.

> The cramps have been very painful and regular since I started on

> Prednisone regimen. I thought it was compounded by Lipitor and we

> tried stopping it for few days (in conjunction with the Primary care

> physician). The cramps became less frequent but the alternative

> medicine (Zetia) did not work well, so I am now back on Pravachol.

> Looks like I am going to start getting them more.

>

> The kind of cramps I get these days are usually only in the middle of

> the night...and associated with some sort of 'twiching' before and

> after. I can sense that the muscles will become crampy sometime if I

> notice that the muscles are twitching on their own (mild movements) in

> the leg area. This is becoming a nightmare (in the literal sense) as

> one is sometimes scared into sleeping and waking up with the pain.

> Sometimes, the pain goes away after rubbing the feet and/or walking a

> bit...but these days I am just applying Bengay and looks like it

> works. So, it is kind of interesting how these cramps react to

> Bengay and the twiching aspect and was wondering -

>

> 1. Are these cramps related to electrolyte imbalances.

> 2. Are these ones caused by Prednisone.

> 3. Are these casused by combination of Prednisone & Statins (atleast

> the lipitor medicine guidance did refer to risk of myopathy for those

> using both medicines).

> 4. Are these cause of my lack of fitness (no excercise and general

> putting on weight with prednisone off late).

>

> I am worried on trying to start even treadmill (though it should not

> be an excuse and I should start with small steps) as it will then lead

> to cramps in the night. Also, the biggest question I have is the

> warning on Pravachol " Rarely, patients taking PRAVACHOL have

> experienced serious muscle breakdown resulting in kidney damage. The

> following can be signs of serious muscle breakdown: muscle pain,

> weakness or tenderness, fever, feeling more tired than usual, and

> passing brown or discolored urine. "

>

> I know that the Doctor knows of the muscle pains...as thats the cause

> for change from Lipitor to Pravachol. But since they do not say

> anything of this risk...I am wondering if any of you have any

> suggestions and what approach I can take to detect this so called

> muscle breakdown. The last thing I want is to vanish up my Kidney

> function.

>

> Thank you.

>

> Regards,

> Bhanu

>

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Guest guest

Hi Bahnu.

I hope you are able to touch type those long messages rather than typing

with just one finger :-)

As you already know, muscle cramps can be a side effect of prednisone. Leg

and foot cramps can also be caused by electrolyte imbalances, but that

usually only starts happening when a person already has fairly advanced

chronic renal insufficiency. So if you don't, then it's probably not the

kidney disease itself that is causing the cramps.

Now, I'm not quite sure from your description, but something else you can

have is called " restless legs " . This can manifest as sudden twitching or

sudden movement during the night. Chronic renal insufficiency can definitely

cause that, but again, usually when it's more advanced. I don't remember

where you stand in terms of kidney function.

Prednisone can also cause anxiety, which can then cause or aggravate all of

the above. So, you can see how it can be hard to tell what is causing those

kinds of cramps.

When I started having cramps, my nephrologist didn't want to put me on any

more medications, and so she suggested I try 400 units of vitamin E per day.

I found that helped. I wouldn't recommend you start on vitamin E without

your doctor's knowledge and consent though.

Some of those symptoms could be relieved by the drug clonazepam. This drug,

while officially an anti-convulsant, is really simply one type of

benzodiazepine tranquilizer, in the same family as Valium. As such, it also

acts as a muscle relaxant. It is the drug commonly prescribed to kidney

patients who suffer from restless legs. A small dose can work wonders, and

if taken at night, it can really help you sleep.

I don't know of a single person who starts taking a statin for cholesterol,

reads the warning about muscle breakdown, and then thinks he or she has it.

I went through that too with Lipitor. The doctors are well-aware of this,

and they can easily do a lab test to find out if this is happening. It's

probably not the drug, but, you should of course mention your muscle

problems to your doctor. Prednisone, BP meds, etc. -- they can all make you

feel like that, in my opinion. For most people, the statin drugs actually

seem to help the kidneys.

Pierre

Leg Cramps

>

>

> Hello Everybody,

>

> Going to be another long mail..pls bear with me. I did read posts on

> cramps before but I wanted to give my situation and questions on this

> topic.

>

> I had couple of questions on the leg cramps that I have been having.

> The cramps have been very painful and regular since I started on

> Prednisone regimen. I thought it was compounded by Lipitor and we

> tried stopping it for few days (in conjunction with the Primary care

> physician). The cramps became less frequent but the alternative

> medicine (Zetia) did not work well, so I am now back on Pravachol.

> Looks like I am going to start getting them more.

>

> The kind of cramps I get these days are usually only in the middle of

> the night...and associated with some sort of 'twiching' before and

> after. I can sense that the muscles will become crampy sometime if I

> notice that the muscles are twitching on their own (mild movements) in

> the leg area. This is becoming a nightmare (in the literal sense) as

> one is sometimes scared into sleeping and waking up with the pain.

> Sometimes, the pain goes away after rubbing the feet and/or walking a

> bit...but these days I am just applying Bengay and looks like it

> works. So, it is kind of interesting how these cramps react to

> Bengay and the twiching aspect and was wondering -

>

> 1. Are these cramps related to electrolyte imbalances.

> 2. Are these ones caused by Prednisone.

> 3. Are these casused by combination of Prednisone & Statins (atleast

> the lipitor medicine guidance did refer to risk of myopathy for those

> using both medicines).

> 4. Are these cause of my lack of fitness (no excercise and general

> putting on weight with prednisone off late).

>

> I am worried on trying to start even treadmill (though it should not

> be an excuse and I should start with small steps) as it will then lead

> to cramps in the night. Also, the biggest question I have is the

> warning on Pravachol " Rarely, patients taking PRAVACHOL have

> experienced serious muscle breakdown resulting in kidney damage. The

> following can be signs of serious muscle breakdown: muscle pain,

> weakness or tenderness, fever, feeling more tired than usual, and

> passing brown or discolored urine. "

>

> I know that the Doctor knows of the muscle pains...as thats the cause

> for change from Lipitor to Pravachol. But since they do not say

> anything of this risk...I am wondering if any of you have any

> suggestions and what approach I can take to detect this so called

> muscle breakdown. The last thing I want is to vanish up my Kidney

> function.

>

> Thank you.

>

> Regards,

> Bhanu

>

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Guest guest

Oh, and by the way, with chronic renal insufficiency, nobody really, truly

knows why people get leg cramps. It's easy to say " electrolyte imbalances " ,

but most of the time, they just don't know why it happens.

Pierre

Re: Leg Cramps

>

> Hi Bahnu.

>

> I hope you are able to touch type those long messages rather than typing

> with just one finger :-)

>

> As you already know, muscle cramps can be a side effect of prednisone. Leg

> and foot cramps can also be caused by electrolyte imbalances, but that

> usually only starts happening when a person already has fairly advanced

> chronic renal insufficiency. So if you don't, then it's probably not the

> kidney disease itself that is causing the cramps.

>

> Now, I'm not quite sure from your description, but something else you can

> have is called " restless legs " . This can manifest as sudden twitching or

> sudden movement during the night. Chronic renal insufficiency can

definitely

> cause that, but again, usually when it's more advanced. I don't remember

> where you stand in terms of kidney function.

>

> Prednisone can also cause anxiety, which can then cause or aggravate all

of

> the above. So, you can see how it can be hard to tell what is causing

those

> kinds of cramps.

>

> When I started having cramps, my nephrologist didn't want to put me on any

> more medications, and so she suggested I try 400 units of vitamin E per

day.

> I found that helped. I wouldn't recommend you start on vitamin E without

> your doctor's knowledge and consent though.

>

> Some of those symptoms could be relieved by the drug clonazepam. This

drug,

> while officially an anti-convulsant, is really simply one type of

> benzodiazepine tranquilizer, in the same family as Valium. As such, it

also

> acts as a muscle relaxant. It is the drug commonly prescribed to kidney

> patients who suffer from restless legs. A small dose can work wonders, and

> if taken at night, it can really help you sleep.

>

> I don't know of a single person who starts taking a statin for

cholesterol,

> reads the warning about muscle breakdown, and then thinks he or she has

it.

> I went through that too with Lipitor. The doctors are well-aware of this,

> and they can easily do a lab test to find out if this is happening. It's

> probably not the drug, but, you should of course mention your muscle

> problems to your doctor. Prednisone, BP meds, etc. -- they can all make

you

> feel like that, in my opinion. For most people, the statin drugs actually

> seem to help the kidneys.

>

> Pierre

>

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Guest guest

Bhanu,

Pierre gave you some good advice. I had horrid nighttime cramping when I

started on the prednisone. I found that drinking roughly 16 ounces of water

before bed helped greatly with cramp reduction. You tend to have to wake up to

go to the bathroom during the night but the cramps are minimized greatly. The

other thing I found to help when you are in the midst of an attack are ice

packs. I would pack the area with ice and within 15 minutes the cramping would

stop. I was getting them so bad I couldn't walk for a few hours if I didn't ice

them down as soon as they started. I kept ice cubes in ziplock bags in the

freezer just for this purpose. My husband would wake up at all hours to fetch

my ice packs when I would touch his arm and say " legs...pain " that was about all

I could get out of my mouth when the cramping hit.

My doctors only explanation was " It's the prednisone " since my electrolytes

were always in good ranges. Drinking water helped reduce the frequency of them

and icing them once the pain started helped to greatly reduce the amount of time

the cramp lasted.

Some good news... if it is the prednisone, once your dose starts to drop the

cramps do go away.

Amy G.

Leg Cramps

Hello Everybody,

Going to be another long mail..pls bear with me. I did read posts on

cramps before but I wanted to give my situation and questions on this

topic.

I had couple of questions on the leg cramps that I have been having.

The cramps have been very painful and regular since I started on

Prednisone regimen. I thought it was compounded by Lipitor and we

tried stopping it for few days (in conjunction with the Primary care

physician). The cramps became less frequent but the alternative

medicine (Zetia) did not work well, so I am now back on Pravachol.

Looks like I am going to start getting them more.

The kind of cramps I get these days are usually only in the middle of

the night...and associated with some sort of 'twiching' before and

after. I can sense that the muscles will become crampy sometime if I

notice that the muscles are twitching on their own (mild movements) in

the leg area. This is becoming a nightmare (in the literal sense) as

one is sometimes scared into sleeping and waking up with the pain.

Sometimes, the pain goes away after rubbing the feet and/or walking a

bit...but these days I am just applying Bengay and looks like it

works. So, it is kind of interesting how these cramps react to

Bengay and the twiching aspect and was wondering -

1. Are these cramps related to electrolyte imbalances.

2. Are these ones caused by Prednisone.

3. Are these casused by combination of Prednisone & Statins (atleast

the lipitor medicine guidance did refer to risk of myopathy for those

using both medicines).

4. Are these cause of my lack of fitness (no excercise and general

putting on weight with prednisone off late).

I am worried on trying to start even treadmill (though it should not

be an excuse and I should start with small steps) as it will then lead

to cramps in the night. Also, the biggest question I have is the

warning on Pravachol " Rarely, patients taking PRAVACHOL have

experienced serious muscle breakdown resulting in kidney damage. The

following can be signs of serious muscle breakdown: muscle pain,

weakness or tenderness, fever, feeling more tired than usual, and

passing brown or discolored urine. "

I know that the Doctor knows of the muscle pains...as thats the cause

for change from Lipitor to Pravachol. But since they do not say

anything of this risk...I am wondering if any of you have any

suggestions and what approach I can take to detect this so called

muscle breakdown. The last thing I want is to vanish up my Kidney

function.

Thank you.

Regards,

Bhanu

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Guest guest

Bhanu:

There are a few people on the kidney transplant board who are post tx and have a

higher creatinine than 1.8, so I don't think it's that bad.

Pierre Lachaine wrote:

Bhanu,

I think that, unless you are extremely tiny, a serum creatinine of 1.8,

while not normal, would indicate only very mild chronic renal insufficiency.

That level of renal failure would be unlikely to cause any symptoms

associated with renal failure, because you would still have plenty of

reserve kidney function. But of course, we all differ in that respect, with

some people's bodies being more sensitive to those effects. Personally, I

would suspect that the symptoms most people experience at that level are

more likely associated with the various medications they may be on than the

chronic kidney disease itself. I very much doubt that with a serum cr of

1.8, there would be things like cramps, etc., except as a side effect of

medications, or maybe something else.

I don't mean to minimize your concerns though. They are all valid concerns.

Pierre

Re: Leg Cramps

>

> Thanks for all the messages. My creatinine at last lab was 1.8....

>

> Regards,

> Bhanu

>

>

> On Fri, 25 Mar 2005 22:42:53 -0500, Pierre Lachaine

> wrote:

> > Oh, and by the way, with chronic renal insufficiency, nobody really,

truly

> > knows why people get leg cramps. It's easy to say " electrolyte

imbalances " ,

> > but most of the time, they just don't know why it happens.

> > Pierre

> >

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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  • 5 years later...
Guest guest

The last two nights I have been waking up during the night because my calfs were

cramping... Could this be related at all with adrenal/thyroid problems?

rT3 cleared one month an a half ago, I am now taking 50 T3, 25 HC, 1200

potassium and sea salt. Things seem to be getting better, but I don't feel

optimized yet. Today my nose was bleeding also and my basal temperature was low

(although this has happen to me before when I have slept poorly during the

night).

I would appreciate any insights,

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